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"Wearing a High Heel and a House Shoe at the Same Time": Parents' Information Needs While Navigating Change in their Child's Behavioral Care

Authors:

Olivia K. Richards,

Carol F. Scott,

Allison Spiller,

Gabriela MarcuAuthors Info & Claims

Proceedings of the ACM on Human-Computer Interaction, Volume 6, Issue CSCW2

Article No.: 352, Pages 1 - 32

https://doi.org/10.1145/3555772

Published: 11 November 2022 Publication History

Abstract

Change is an inevitable part of a parent's role, whether due to their child's development, family life, or external events. To understand the information needs of parents navigating change, we studied the effects of the COVID-19 pandemic as a widely experienced disruption in the lives of parents and children. We interviewed 16 parents about their caregiving experience as the COVID-19 pandemic collapsed boundaries between home, school, and work. In particular, we asked about adjustments to behavioral care, or the social learning, supports, and interventions through which children develop social and emotional skills. We focused on parents of children already receiving accommodations and behavioral support from their school, to understand how disruptions in these services affected the role of the parent in meeting their child's individual needs. Applying role theory and the Kübler-Ross change curve, we describe the coping mechanisms that parents used to navigate the stages of change, as well as the information needs that remained unmet, despite their efforts. We discuss how practitioner-initiated and parent-centered supports can be designed around the lived experience of change, by accommodating a parent's capacity to accept and use help at different stages.

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Index Terms

"Wearing a High Heel and a House Shoe at the Same Time": Parents' Information Needs While Navigating Change in their Child's Behavioral Care
1. Human-centered computing
  1. Collaborative and social computing
    1. Empirical studies in collaborative and social computing

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Proceedings of the ACM on Human-Computer Interaction Volume 6, Issue CSCW2

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Su ZKamath STirakitsoontorn PChen Y(2024)Creating Safe Places: Understanding the Lived Experiences of Families Managing Cystic Fibrosis in Young ChildrenProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642334(1-18)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3613904.3642334
Milton AMaestre JRoy AUmbach RChancellor S(2024)Seeking in Cycles: How Users Leverage Personal Information Ecosystems to Find Mental Health InformationProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3641894(1-16)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3613904.3641894

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