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An ethnographic study of an online, mutual-aid health community: group dynamics, roles, and relationships

Published: 20 April 2002 Publication History

Abstract

The research project will examine a fairly well studied, long established, and thriving online health bulletin board through a multi level, in-depth analysis. Ethnographic research methods will be used in combination with social network analysis and an examination of issues related to usability. The purpose of the research is to document the role the online community plays in the lives of its members; define the patterns of interaction within the group; compare group dynamics in the online community to those in face to face mutual aid groups, and examine the impact of usability issues on group process.

References

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Finn, J., 'An exploration of helping processes in an online self-help group focusing on issues of disability.' 1998, Available at www.unh.edu/socialwork/SW810/disabl3.html
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Forsyth, D., Group Dynamics (Third Edition). Wadsworth Publishing Company, Belmont, CA 1999.
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Galegher, J., Sproull, L. and S. Kiesler. 'Legitimacy, Authority, and Community in Electronic Support Groups.' Written Communication 15, no.4 (1998): 493--530.
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Jones, S. Doing Internet Research: Critical Issues and Methods for Examining the Net. Thousand Oaks, CA: Sage Publications, 1999.
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Preece, J., Online Communities: Designing Usability, Supporting Sociability. New York, NY: Wiley & Sons, Ltd., 2000.
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Rainie, L., and D. Packel, 'More online, doing more.' Washington, DC: Pew Internet & American Life Project, (2001).
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Rice, R. E., 'The Internet and Health Communication: A Framework of Experiences.' In R. E. Rice and J. E. Katz (Eds.), The Internet and Health Communication: Experiences and Expectations. Thousand Oaks, CA: Sage Publications, (2001): 5--46.
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Schoch, N. A., and White, M. D. A study of the communication patterns of participants in consumer health electronic discussion groups, in Proceedings of the 60th ASIS Annual Meeting, Washington, DC. (1997).
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Wellman, B. and S. D. Berkowitz (Eds.), Social Structures: A Network Approach. Greenwich, Connecticut: Jai Press, Inc., 1988.

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cover image ACM Conferences
CHI EA '02: CHI '02 Extended Abstracts on Human Factors in Computing Systems
April 2002
488 pages
ISBN:1581134541
DOI:10.1145/506443
Permission to make digital or hard copies of all or part of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for components of this work owned by others than ACM must be honored. Abstracting with credit is permitted. To copy otherwise, or republish, to post on servers or to redistribute to lists, requires prior specific permission and/or a fee. Request permissions from [email protected]

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Association for Computing Machinery

New York, NY, United States

Publication History

Published: 20 April 2002

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Author Tags

  1. health bulletin boards
  2. health communities
  3. interactive process analysis
  4. mutual-aid groups
  5. on-line communities
  6. online group dynamics
  7. social network
  8. usability

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CHI02
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CHI02: Human Factors in Computing Systems
April 20 - 25, 2002
Minnesota, Minneapolis, USA

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Overall Acceptance Rate 6,164 of 23,696 submissions, 26%

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