Autism spectrum disorder is a neurodevelopmental disorder which is increasing across the globe. T... more Autism spectrum disorder is a neurodevelopmental disorder which is increasing across the globe. The disorder in children not only creates burden of care in caregivers but also leads to impaired quality of life of families. To study the burden of care and quality of life in caregivers of children and adolescents with ASD. Cross sectional study conducted in Child and Adolescent psychiatry outpatient services at a government centre in north India between September 2014 to August 2015. The sample consisted of 40 caregivers of children with Autism. Mean age of the caregiver's were 34.72 ± 6.32 years. Burden of care and quality of life were measured by Burden Assessment Schedule (BAS) and World Health Organization Quality of Life Instrument, Short Form (WHOQOL-BREF) questionnaire respectively. Mean burden of care on BAS was 71.73 ± 8.62 indicating quite a high degree of burden on the caregivers of ASD. Significantly higher burden was reported by caregivers belonging to low income families and caregivers of children in age group 6-12 years. A positive correlation was observed between severity of autism and burden of care in caregivers. The study also found that as the severity of symptom increases the QoL in caregiver worsens. Caregivers of children with ASD suffer from high burden of care and impaired QoL.
Attention deficit hyperactivity disorder (ADHD) is associated with impairment in all aspects of t... more Attention deficit hyperactivity disorder (ADHD) is associated with impairment in all aspects of the patient's life. Despite availability of effective treatments for ADHD, a majority of the patient lack access to or have a significant delay in seeking help. This study aimed to assess the pathway of care in ADHD among patients attending the outpatient psychiatric services of a tertiary care centre in India. 57 newly registered cases of the age group 6-16 years with the diagnosis of ADHD as per DSM-IV-TR criteria were included in the study. Pathway of care was assessed on the semi structured proforma. The mean duration of delay in seeking help for ADHD symptoms was 3.96 Years (SD=1.96). Only 50% of the subjects consulted psychiatrists as first contact. Majority of the patients (45.61%) were referred by school teachers. Major reason given by the family members was that the patient was naughty rather than having any disorder for not seeking treatment in (89.47%). Our study showed that there was lack of recognition of ADHD at the level of other qualified practitioners and subsequent delay in referral to CAMHS. Sociocultural beliefs affected the help seeking by the parents.
Abstract
Background: Mothers are the most important caregivers of children. When a child with
dis... more Abstract Background: Mothers are the most important caregivers of children. When a child with disability is born a mother’s responsibilities increase by leaps and bounds. Caring for a child with mental retardation (MR) challenges the role of mother and may lead to excessive burden of care. Method: A non-experimental descriptive cross sectional assessment of burden of care among mothers of mentally retarded children and adolescents attending child and adolescent psychiatry OPD was done using burden assessment schedule. Results and conclusion: The mean age of children with mental retardation was 9.09 ± 3.07 years. The mean age mothers of children with mental retardation was 32.97 ± 6.25 years. Maximum burden of care was found in physical and mental health domains (14.33 ± 2.81) followed byexternal support domain (10.79± 2.24), taking responsibility (9.3 ± 1.06)and Caregivers routine (8.77 ± 1.67). In this study, it was found that mother of mentally retarded children and adolescent experience burden of care which increases as the financial status of the family decreases. The burden of care is higher in severe to profound MR than mild to moderate MR. The burden of care in the domain of physical and mental health was highest. KEYWORDS: Mothers, Burden Assessment Schedule, Mental Retardation.
Autism spectrum disorder is a neurodevelopmental disorder which is increasing across the globe. T... more Autism spectrum disorder is a neurodevelopmental disorder which is increasing across the globe. The disorder in children not only creates burden of care in caregivers but also leads to impaired quality of life of families. To study the burden of care and quality of life in caregivers of children and adolescents with ASD. Cross sectional study conducted in Child and Adolescent psychiatry outpatient services at a government centre in north India between September 2014 to August 2015. The sample consisted of 40 caregivers of children with Autism. Mean age of the caregiver's were 34.72 ± 6.32 years. Burden of care and quality of life were measured by Burden Assessment Schedule (BAS) and World Health Organization Quality of Life Instrument, Short Form (WHOQOL-BREF) questionnaire respectively. Mean burden of care on BAS was 71.73 ± 8.62 indicating quite a high degree of burden on the caregivers of ASD. Significantly higher burden was reported by caregivers belonging to low income families and caregivers of children in age group 6-12 years. A positive correlation was observed between severity of autism and burden of care in caregivers. The study also found that as the severity of symptom increases the QoL in caregiver worsens. Caregivers of children with ASD suffer from high burden of care and impaired QoL.
Attention deficit hyperactivity disorder (ADHD) is associated with impairment in all aspects of t... more Attention deficit hyperactivity disorder (ADHD) is associated with impairment in all aspects of the patient's life. Despite availability of effective treatments for ADHD, a majority of the patient lack access to or have a significant delay in seeking help. This study aimed to assess the pathway of care in ADHD among patients attending the outpatient psychiatric services of a tertiary care centre in India. 57 newly registered cases of the age group 6-16 years with the diagnosis of ADHD as per DSM-IV-TR criteria were included in the study. Pathway of care was assessed on the semi structured proforma. The mean duration of delay in seeking help for ADHD symptoms was 3.96 Years (SD=1.96). Only 50% of the subjects consulted psychiatrists as first contact. Majority of the patients (45.61%) were referred by school teachers. Major reason given by the family members was that the patient was naughty rather than having any disorder for not seeking treatment in (89.47%). Our study showed that there was lack of recognition of ADHD at the level of other qualified practitioners and subsequent delay in referral to CAMHS. Sociocultural beliefs affected the help seeking by the parents.
Abstract
Background: Mothers are the most important caregivers of children. When a child with
dis... more Abstract Background: Mothers are the most important caregivers of children. When a child with disability is born a mother’s responsibilities increase by leaps and bounds. Caring for a child with mental retardation (MR) challenges the role of mother and may lead to excessive burden of care. Method: A non-experimental descriptive cross sectional assessment of burden of care among mothers of mentally retarded children and adolescents attending child and adolescent psychiatry OPD was done using burden assessment schedule. Results and conclusion: The mean age of children with mental retardation was 9.09 ± 3.07 years. The mean age mothers of children with mental retardation was 32.97 ± 6.25 years. Maximum burden of care was found in physical and mental health domains (14.33 ± 2.81) followed byexternal support domain (10.79± 2.24), taking responsibility (9.3 ± 1.06)and Caregivers routine (8.77 ± 1.67). In this study, it was found that mother of mentally retarded children and adolescent experience burden of care which increases as the financial status of the family decreases. The burden of care is higher in severe to profound MR than mild to moderate MR. The burden of care in the domain of physical and mental health was highest. KEYWORDS: Mothers, Burden Assessment Schedule, Mental Retardation.
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Background: Mothers are the most important caregivers of children. When a child with
disability is born a mother’s responsibilities increase by leaps and bounds. Caring for a
child with mental retardation (MR) challenges the role of mother and may lead to excessive
burden of care. Method: A non-experimental descriptive cross sectional assessment of
burden of care among mothers of mentally retarded children and adolescents attending
child and adolescent psychiatry OPD was done using burden assessment schedule. Results
and conclusion: The mean age of children with mental retardation was 9.09 ± 3.07 years.
The mean age mothers of children with mental retardation was 32.97 ± 6.25 years. Maximum
burden of care was found in physical and mental health domains (14.33 ± 2.81) followed
byexternal support domain (10.79± 2.24), taking responsibility (9.3 ± 1.06)and Caregivers
routine (8.77 ± 1.67). In this study, it was found that mother of mentally retarded children
and adolescent experience burden of care which increases as the financial status of the
family decreases. The burden of care is higher in severe to profound MR than mild to
moderate MR. The burden of care in the domain of physical and mental health was highest.
KEYWORDS: Mothers, Burden Assessment Schedule, Mental Retardation.
Background: Mothers are the most important caregivers of children. When a child with
disability is born a mother’s responsibilities increase by leaps and bounds. Caring for a
child with mental retardation (MR) challenges the role of mother and may lead to excessive
burden of care. Method: A non-experimental descriptive cross sectional assessment of
burden of care among mothers of mentally retarded children and adolescents attending
child and adolescent psychiatry OPD was done using burden assessment schedule. Results
and conclusion: The mean age of children with mental retardation was 9.09 ± 3.07 years.
The mean age mothers of children with mental retardation was 32.97 ± 6.25 years. Maximum
burden of care was found in physical and mental health domains (14.33 ± 2.81) followed
byexternal support domain (10.79± 2.24), taking responsibility (9.3 ± 1.06)and Caregivers
routine (8.77 ± 1.67). In this study, it was found that mother of mentally retarded children
and adolescent experience burden of care which increases as the financial status of the
family decreases. The burden of care is higher in severe to profound MR than mild to
moderate MR. The burden of care in the domain of physical and mental health was highest.
KEYWORDS: Mothers, Burden Assessment Schedule, Mental Retardation.