German title & Paper, Abstract in English below Wie Psychiatrie-Erfahrene Forschungsprozesse gestalten: Geschichte und Methoden der Nutzer-geleiteten partizipativen Forschung in englischsprachigen Ländern. Journal Sozialpsychiatrische... more
German title & Paper, Abstract in English below
Wie Psychiatrie-Erfahrene Forschungsprozesse gestalten: Geschichte und Methoden der Nutzer-geleiteten partizipativen Forschung in englischsprachigen Ländern. Journal Sozialpsychiatrische Informationen 2017, (47:2); 38-42
Authors: Ute Maria Krämer (MSc student King's College London, Psychiatric Survivor & Independent Intellectual/Author), Diana Rose (Professor for User-led Research, Service User Research Enterprise, IoPPN, King's College London)
Abstract
The paper presents user-led research projects with participatory roles for mental health service users as co-researchers. In a descriptive and accessible manner the authors highlight the development of user/survivor-led research projects from within user/survivor-movements as illustrated by 'The Well-Being Project' conducted by the California Mental Health Clients Network (Campbell & Schraiber, 1989), and the spreading of User-focused Monitoring, initially conceived by Diana Rose, throughout England from 1996 into the 2010s. Readers in German-speaking countries are introduced to the groundbreaking UK-wide user-led qualitative project 'Strategies for Living' (Faulkner & Layzell, 2000) and to a methodology of user-participation in developing user-centered outcome measures (Rose et al. 2011). Major principles of supportive and meaningful user-led research conducted together with 'ordinary' service users as well as the effects of 'users interviewing users' are discussed. (Article in German language.).
Wie Psychiatrie-Erfahrene Forschungsprozesse gestalten: Geschichte und Methoden der Nutzer-geleiteten partizipativen Forschung in englischsprachigen Ländern. Journal Sozialpsychiatrische Informationen 2017, (47:2); 38-42
Authors: Ute Maria Krämer (MSc student King's College London, Psychiatric Survivor & Independent Intellectual/Author), Diana Rose (Professor for User-led Research, Service User Research Enterprise, IoPPN, King's College London)
Abstract
The paper presents user-led research projects with participatory roles for mental health service users as co-researchers. In a descriptive and accessible manner the authors highlight the development of user/survivor-led research projects from within user/survivor-movements as illustrated by 'The Well-Being Project' conducted by the California Mental Health Clients Network (Campbell & Schraiber, 1989), and the spreading of User-focused Monitoring, initially conceived by Diana Rose, throughout England from 1996 into the 2010s. Readers in German-speaking countries are introduced to the groundbreaking UK-wide user-led qualitative project 'Strategies for Living' (Faulkner & Layzell, 2000) and to a methodology of user-participation in developing user-centered outcome measures (Rose et al. 2011). Major principles of supportive and meaningful user-led research conducted together with 'ordinary' service users as well as the effects of 'users interviewing users' are discussed. (Article in German language.).
Research Interests:
Authors: Thomas Bock (UKE University Medical Center Hamburg Eppendorf), Jörg Utschakowski (Ministerium für Gesundheit Bremen), Ute Maria Krämer (MSc student King's College London and independent survivor researcher), Elena Demke (UKE... more
Authors: Thomas Bock (UKE University Medical Center Hamburg Eppendorf), Jörg Utschakowski (Ministerium für Gesundheit Bremen), Ute Maria Krämer (MSc student King's College London and independent survivor researcher), Elena Demke (UKE University Medical Center Hamburg Eppendorf & survivor researcher), Candelaria Mahlke (UKE University Medical Center Hamburg Eppendorf), Gyöngyvér Sielaff (UKE University Medical Center Hamburg Eppendorf), Michaela Amering (Psychiatrische Universitätsklinik Wien)
Article in German language, published 2015
Journal Nervenheilkunde
Article in German language, published 2015
Journal Nervenheilkunde
Research Interests:
Authors Thomas Bock (UKE University Medical Center Hamburg Eppendorf) & Ute Maria Krämer (MSc King's College London & independent survivor researcher)
Article in German language, published 2015
Journal Nervenheilkunde
Article in German language, published 2015
Journal Nervenheilkunde
Research Interests:
Nothing About Us Without Us: First German lecture series with Mental Health Service User-Researchers from Europe and Germany at the University Hamburg 2016-17. Lecture Series was co-developed by Elena Demke M.A., Historian & Psychiatric... more
Nothing About Us Without Us: First German lecture series with Mental Health Service User-Researchers from Europe and Germany at the University Hamburg 2016-17. Lecture Series was co-developed by Elena Demke M.A., Historian & Psychiatric Survivor, and Ute Maria Krämer M.A., Psychiatric Survivor & Independent Intellectual/Author.