708416
NSQXXX10.1177/0894318417708416Nursing Science QuarterlyBaumann / Global Perspectives
research-article2017
Global Perspectives
Graduate Students’ Reflections on Elder
and End-of-Life Care for Prisoners
Nursing Science Quarterly
2017, Vol. 30(3) 253–259
© The Author(s) 2017
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https://doi.org/10.1177/0894318417708416
DOI: 10.1177/0894318417708416
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Steven L. Baumann, RN; PhD,1
and Vidette Todaro-Franceschi, RN; PhD1
Abstract
The focus of this report was graduate nursing students’ reflections on elder and end-of-life care for prisoners. The personal
reflections of 21 graduate nursing students who attended a presentation by Susan J. Loeb on October 26, 2016 were included
in this report. The title of the presentation was “Enhancing End-of-Life Care for Prisoners Through Partnering With the
Prison Community.” The student essays were synthesized to construct a summary essay, from which four themes were
identified: aging in prison, dying in prison, ethical and professional issues in the elder and end-of-life care of prisoners, and
ethical and professional issues in research involving elderly and end-of-life care of prisoners. These findings were interpreted
from a global perspective in light of two different nursing perspectives: the humanbecoming tradition and the science of
unitary human beings.
Keywords
eldercare, end-of-life, humanbecoming, prisoners, science of unitary human beings
The worldwide demographic shift toward increased numbers
of older adults is affecting all facets of contemporary life,
including prisons. To better prepare nursing students for this
phenomenon, Susan J. Loeb, RN, PhD, was invited speak on
her program of research; the title of her presentation was
“Enhancing End-of-Life (EOL) Care for Prisoners Through
Partnering With the Prison Community.” The lecture was
part of the annual Viola S. Shifrin Lecture in Palliative Care
Nursing at Hunter-Bellevue School of Nursing.
The purpose of this project was to explore the ethical and
professional issues related to elder and end-of-life care in
prisons. The text for this project was a summary of 21 essays
written by graduate nursing students who attended the program. The students were asked to reflect on the ethical and
professional issues raised in the presentation. The findings
were considered from two different nursing perspectives, the
humanbecoming tradition and the science of unitary human
beings (SUHB). The problem of aging and dying in prison is
seen here as a global issue.
The Theoretical Perspectives
One of the investigators of this project (S.L.B.) used the
humanbecoming tradition (Parse, 2014, 2016) to consider the
themes in the students’ essays, following the processes
outlined in humanbecoming hermeneutic sciencing. This perspective holds that the humanuniverse process is an indivisible, unpredictable, everchanging cocreation. Hermeneutic
inquiry from a humanbecoming perspective seeks to discover
emergent meanings of humanuniverse experiences as captured in documents and artforms. One of the authors (S.L.B.)
and his colleagues have completed two other humanbecoming hermeneutic projects involving graduate students’ personal reflections (Baumann & Ganzer, 2016; Baumann,
Murphy, & Ganzer, 2015). The last of these two projects was
on graduate nursing student essays on the documentary film
The American Nurse, which included the story of Tonia Faust,
RN, who works on a hospice unit in Louisiana State
Penitentiary (Baumann & Ganzer, 2016). In addition, Parse
(2007) conducted a humanbecoming hermeneutic inquiry on
hope in Stephen King’s short story about a wrongly convicted
prisoner, titled Rita Hayworth and Shawshank Redemption.
The co-investigator (V.T.-F.) used the Rogerian SUHB
perspective (Butcher, 2016; Rogers, 1992) to explore the
text. Unitary nursing science is based in part on ideas from
physical theories of the universe (Butcher, 2016) and was
developed by Rogers (1992). Unitary nursing science postulates that humans and their environment are energy fields
that are inseparable and not bound in space-time (Butcher,
2016; Rogers, 1992). Thus, all is essentially one and change
is an inherent characteristic rather than a causal process
1
Professor, Hunter College of the City University of New York, USA
Contributing Editor:
Steven L. Baumann, RN, PhD, Professor, Hunter College of the City
University of New York, 82 Sherman Ave, Williston Park, NY 11596,
USA.
Email: sbaumann@hunter.cuny.edu
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Nursing Science Quarterly 30(3)
(Todaro-Franceschi, 1999, 2001). Human beings, in mutual
process with their environment, are always changing
together, and change is innovative, unpredictable, and complex. Time is relative and nonlinear, so that being and becoming is pandimensional in nature. Wellness and illness are
defined by individuals as they are living and experiencing
change. Health and healing are not static things or concepts
but rather are defined by the unique pattern manifestations of
each person. The manifestations of pattern (unique to each
person) can be discerned, and care providers assist people to
actualize their potential to live well and die well as each person chooses. In so doing, the care providers and the person
change, purposefully, creatively, and unpredictably together
(Todaro-Franceschi, 1999, 2001).
Humanbecoming Hermeneutic
Sciencing
Hermeneutics was initially developed to study sacred and
classic texts. Humanbecoming hermeneutic sciencing (Parse,
2016) follows select tenants of humanbecoming existential
hermeneutics. The assumptions of humanbecoming hermeneutic sciencing are as follows:
1.
2.
3.
4.
Scholar-text and scholar-artform dialogues coconstruct emergent meanings with the becoming visibleinvisible becoming of the emerging now.
Interpretations of texts and artforms are perspectival,
personal humanuniverse cocreations.
Newknowings of living experiences arise with interpretations of texts and artforms.
Newknowings transfigure the scholars’ living experiences. (Parse, 2014, pp. 77-78)
Hermeneutics is well suited for sciencing living experiences
in texts, such as the essays written by graduate nursing students on topics like aging and dying in prison.
Humanbecoming hermeneutic sciencing involves the following: “discoursing with penetrating engaging, interpreting
with quiescent beholding, and understanding with inspiring
envisaging” (Parse, 2016, p. 273). Discoursing with penetrating engaging was used in this project to uncover the obvious and not-so-obvious in the experience of ethical and
professional issues discussed in the graduate nursing students’ essays on “Enhancing End-of-Life Care for Prisoners
Through Partnering With the Prison Community” presentation. It is a rigorous attending to and reflecting on that which
arises when reading the text to explore for new meaning.
Interpreting with quiescent beholding in this project
involved silent pondering and dwelling with the summary
essay, as well as the students’ essays, which were read and
reread. According to Parse (2007), this is “explicitly-tacitly
immersing in the appropriating-disappropriating of the surfacing meanings” (p. 149). It is rigorous rational-intuitive considering of the meanings that arise in the scholar-text dialogue.
Parse (2001, 2007, 2016) described it as a rhythmical expanding of understanding by reflectively attending to moments that
arise in dialogue with artforms.
According to Parse (2001), understanding with inspiring
envisaging involves bringing forth new views from the dialogue between the researcher and texts. It is exploring with
deep contemplation the meanings that arise while challenging the researcher’s previous understandings of the ethical
and professional issues related to “Enhancing End-of-Life
Care for Prisoners Through Partnering With the Prison
Community.” It is a reflective questioning of the researchertext dialogue that generates new questions, changing the
researcher (Parse, 2001).
The Hermeneutic Engagement
The summary essay is the text that is engaged by the researchers from two horizons of interpretation. The researchers read
and reread the text many times, searching for the meaning of
the ethical and professional issues as discussed by the students. Notes were made from the presentation, from each
participant’s essay, surfacing meanings that have global
implications. In the process of penetrating engaging, quiescent beholding, and inspiring envisaging, the researchers,
with the text, reflected upon the meaning of the words and
images, particularly those that were relevant for global nursing. Understanding arose from consideration of two horizons
of interpretation of the nurse’s reflective essays.
Research Ethics
The Hunter College IRB approved the project, and only the
essays of graduate nursing students who gave consent were
included.
The Circumstance and Setting
As a course assignment graduate nursing students, who were
all RNs with at least 2 years’ experience as nurses, were
asked to attend the annual Viola S. Shifrin Lecture in
Palliative Care Nursing Studies at Hunter-Bellevue School
of Nursing on October 26, 2016, where Susan J. Loeb presented “Enhancing End-of-Life Care for Prisoners Through
Partnering With the Prison Community.” The students were
also asked to write a brief personal essay on the program.
The essays of those who gave consent were included. Of the
43 students who gave consent, only the essays of the students
who included reflections on their personal experiences
related to the research question were included, 21 in total.
The Presentation
Dr. Loeb (personal communication, October 26, 2016) began
her remarks by asking the question, “Why should we care?”
She discussed her program of research as described in the
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Baumann / Global Perspectives
title of her presentation. She pointed out that there was a
large and growing population of older prisoners, many of
whom were in need of end-of-life care. She reported that
Dostoyevsky (as quoted by Shapiro, 2006, p. 210) had once
said, “The degree of civilization in a society can be judged
by entering its prisons.” Dostoyevsky himself had been
exiled to do hard labor in a prison camp in Siberia, after
being accused of reading and distributing works of literature,
which were banned because they were seen as criticizing
Russian politics and religion.
Findings
Aging in Prison
A summary essay based on the essays of 21 graduate nursing
students on Loeb’s presentation makes up the findings of this
hermeneutic project. The first part of the story told by Loeb
about her research, which surprised many, was that there
were a large and growing number of older adults in prisons
and that prisons were not designed to accommodate them.
Even for the students who had taken care of incarcerated
individuals, they never really thought about prisoners aging.
The students appreciated that aging in prison must be difficult, in part because of the prison environment. They could
imagine how hard it is for elder inmates to get into top bunk
beds or navigate narrow hallways with a walker. Many said
they knew that prisons were often overcrowded, and they
had no problem understanding that incarceration accelerates
aging and aggravates health problems. Many of the students
could also appreciate that older inmates suffer because prisons are in general more about punishment, loss of freedom,
and reduced choices than providing quality healthcare or
rehabilitating individuals. In light of the long sentences in
remote locations, prisons often end up the only family and
home inmates have, even in the context of some inmates who
remain predators of the weak and vulnerable. The students
could appreciate that confined overcrowded institutions
increase the exposure to infections, such as TB. Several students picked up on Loeb’s point that prisons have limited and
fixed budgets for nutrition, recreation, and healthcare. One
admitted that she had been under the impression that prisoners “did not have it so bad, and that most were in good condition because they worked out a lot.”
Most of the students discussed the impact of misinformation, biases, and stigma on the quality of relationship between
nurses and incarcerated persons. Several knew that prisoners
disproportionately come from poor and disadvantaged backgrounds, as well as racial, religious, or political minority
groups. Many admitted that they had previously held strong
negative attitudes toward the incarcerated and that they had a
difficult time trusting them and treating them like “law-abiding” persons. One said that prisoners who had “committed
crimes against their family or acts considered especially heinous” were likely to have less family and community
contacts. Another said, “Some of them were a product of
their circumstances, such as economic status, environment,
or just being at the wrong place at the wrong time and a significant proportion of the population suffered from mental
illness.” A third said that a neighbor of hers had been imprisoned for a crime he may not have committed and that he had
become psychotic in prison and that even after his release he
was never the same. Another wrote that her father was a corrections officer and that he told her about how bad some corrections guards treat prisoners. One wrote, “What is needed
is a better relationship of trust and caring between the inmates
and prison staff.”
One student said she had been a volunteer in a prison in
the Philippines. She said, “In the Philippines the prisons are
overcrowded and some prisoners are innocent, but they are
in prison because of the Philippine government’s ‘no mercy’
policy on drugs. Prisoners there are treated inhumanely; they
are subjected to abuse and brutality and placed in crowded
cells, like cages for animals. One can assume that health and
well-being of the incarcerated there is not a priority.”
The students appreciated that providing healthcare for
incarcerated persons requires specialized knowledge, commitment, and unique attitudes and skills that many nurses do
not possess. Several were impressed with the Loeb’s achievements. One reported, “Efforts to transform the quality of life
for aging inmates require selfless perseverance.” Many of
the participants on this project admitted that before this event
they had not been interested in learning about how to provide
quality care to incarcerated persons in jail. Many said that
they were grateful because the presentation “opened their
eyes to the realities and suffering of aging prisoners,” and
several felt moved by their plight and came to the conclusion
that they, like the rest of the aging population, deserve
respectful care and to be treated with dignity.
Dying in Prison
As with aging in prison, the students in this project were surprised to hear about prisoners dying there. Many noted that
corrections officers, chaplains, volunteers, and other prisoners are often the only caregivers most prisoners have and that
for many these relationships are long term. In addition, many
inmates do not have advanced directives. Several students
also picked up on special issues with narcotic medications in
prison which can be barrier to quality palliative care for
inmates. They also noted that there were a limited number of
hospice beds in prisons.
Hearing about the vulnerability of dying prisoners helped
the students put aside biases and stereotypical attitudes about
prisoners. They were moved by the presentation to acknowledge that dying prisoners deserve to be treated with dignity.
One wrote, “I believe that through education, the majority of
the prison staff will eventually develop more compassion for
dying prisoners. This might encourage a better relationship
of trust and caring between the inmates and prison staff.”
256
Another said, “I realized that my conception of how the
prison system worked was wrong. I now know that there is
an aging prison population that will require palliative care.”
Another wondered how funeral rites of deceased inmates
were done, and if their bodies were released to their families.
Most of the students quoted Loeb’s remark that “every person’s life is meaningful to someone.” Another wrote, “They
deserve our compassion. They deserve to be cared for just as
any free man or woman is cared for as their death approaches.”
One student wrote, “Caring for dying prisoners requires
the entire prison staff. End-of-life care needs to be comprehensive and done in a holistic manner. The approach should
be free of judgment.” They described the lecture as “an eye
opener about a part of population that we very often pretend
or forget that it exists.” Several participants added that they
thought that nurses needed to be advocates for dying prisoners. Another wrote, “I was dismayed and astonished that our
society could continue to allow this. My first thought was:
What happened to humanity? We continue to discriminate
against these individuals and treat them in such an inhumane
and barbarous manner. Does anyone truly deserve such
persecution?”
Ethical and Professional Issues in the Eldercare
and End-of-Life Care of Prisoners
The students in this study were asked to reflect on the ethical
and professional issues raised in the presentation. It is therefore understandable that most discussed ethical and professional dilemmas related to providing care to aging and dying
prisoners. Many reflected on Loeb’s question “Why should
we care?” A few added, “My thoughts exactly.” Some mentioned the cost of healthcare and end-of-life care to taxpayers
and questioned why should prisoners receive quality aging
and end-of-life care when many “law-abiding” people do
not? Another said she had difficulty providing services to
“those who committed atrocities, when many in our society
don’t even have health insurance.”
Another said, “I had not thought about inmates having
access to technology. Honestly, in the past when I thought of
prisoners, I did not think of them as people who add something positive to the world. My bias was that such people
should be written off and isolated. The thought of them getting better care through technology never crossed my mind.”
Several talked about others, who “find it difficult to provide
compassionate care and kindness to persons who have committed violent crimes.”
All of the students who wrote reflective essays wrestled
with the incongruence of nurses being ethical and professionals and withholding or providing substandard care to a
group of individuals. Many agreed with Dostoevsky’s remark
that suggests the condition of the way a country treats its
prisoners reflects something critical about that country.
Another wrote, “I think Loeb’s work highlights the importance and beauty of the nursing profession that strives to the
Nursing Science Quarterly 30(3)
highest degree of integrity and ethical standards.” Several
were moved by Loeb’s logic that each person is significant to
someone and that by not providing care to prisoners, others
suffered as well, continuing a cycle of pain and sorrow. Thus,
prisoners came to be seen as human beings with the right to
quality end-of-life care. Most of the students liked Loeb’s
logo “respect-dignity-hope.” One said, “as a profession with
compassionate care, we can forge ahead to redefine what
health care should be about.”
The student from the Philippines and a few others referred
to national policies, incarceration inequity, and social injustice. One discussed a documentary she has seen on Netflix,
titled Thirteenth. She said, “The theme of the documentary
was that once you enter the prison system you are unofficially a slave.” Another who said she saw the film described
prisons as big businesses “providing cheap labor comparable
to a sweatshop, but worse.”
Ethical and Professional Issues in Research
Involving Elderly and End-of-Life Prisoners
The last issue the students talked about in their essays was
the importance of and ethical challenges of doing research
involving aging and end-of-life prisoners. Several of the students said they admired Loeb for her tenacity and ability to
get grants. One student wrote, “She reminded us that ethically, this is an extremely vulnerable population. Historically
and still today, there are egregious violations to prisoners,
including denial of necessary healthcare and human experimentation.” Another mentioned the Tuskegee Syphilis Study
and said:
This lecture opened my eyes to participant selection issues.
Some prisoners sign up for research because of possible
perceived benefits or out of boredom. Also informed consent
must be at the forefront of the investigators obligation to the
study and the participants. They must make sure that the patient
understands what is going on and that promises are not made
based on participation. Working at a cancer center I have seen
some patients without any other treatment options looking for
clinical trials. We have to make sure that patients are signing up
with full understanding and informed consent.
Health and general literacy was mentioned by several students as concerns for getting informed consent. Another
alluded to the compounding vulnerability of both being
elderly and a prisoner, because of the potential for “coercion
of inmates in research studies such as the stories of chemical
and medication studies on prisoners as test subjects with high
risks and consequences.” A third reflected on “the legacy of
mistrust with research” that many prisoners feel and how that
makes recruitment more challenging. Another noted:
these older populations within the prison face environmental
challenges and have very limited availability to basic freedom
and privileges. Her [Loeb] strategies involved establishing
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credibility and trust. It is important to form the right team with
the right tools and promote safety while conducting research in
prisons.
The Humanbecoming Hermeneutic Engagement
With Students’ Reflections
The above summary of the students’ essays on the ethical and
professional issues related to aging and end-of-life care of
prisoners represent the text explored in this humanbecoming
hermeneutic engagement. One of the authors (S.L.B.)
immersed himself in the text all-at-once penetrating engaging, quiescent beholding, and inspiring envisaging in the
essays of the students, on the presentation described above.
Immersion in the reflections suggested something about
what was said and not said about the becoming visible-invisible becoming while arriving at new knowings. Kübler-Ross
recognized the value of having hope, even if that hope was
for a peaceful dying. Parse (2007) explored hope in the
meaning moments in the Stephen King short story Rita
Hayworth and the Shawshank Redemption. She said:
The specific reference to hope arose explicitly and subtly many
times in the story. The thread of hope–no-hope as a universal
lived experience meandered throughout the narrative, surfacing
with brief glimpses of moments of hope. For example, signs of
keeping hope alive arose when the prisoners laid bets on certain
things that surfaced in day-today living, setting expectations for
winning. (Parse, 2007, p. 131)
In this project, the students struggled to find meaning and
hope, thinking about, for the first time for most, the juxtaposition of aging, death, and incarceration. The topic weaves
together two key existential issues that all human beings
face, freedom and awareness of mortality. Loeb’s presentation as reflected on by the students raises difficult questions
about how we treat other human beings and suggests that the
media often distorts uncomfortable truths. The essays reflect
surprise that even in the face of advanced age and dying,
many people are confined to an institution designed not for
care or dignity but to remove persons from the general community and to some degree to punish. What bothered some of
the students was that they had been okay with that. Contained
in the student essays are hints of the forgiveness needed to
restore the perception of the worth of dying criminals as still
humans and of ourselves as guilty bystanders of incarceration inequality. Yet freedom and mystery as conceived by
Parse (2014), remain even in the maximum security prisons.
As demonstrated in the work of Tonia Faust in Louisiana
State Penitentiary (Jones, 2014) and Lafeyette, one of her
inmate caregivers, who create opportunities for family reunification and redemption as they bathe and clean the wounds
of dying prisoners, which can also be seen as cotranscending
with the possibles (Parse, 2014).
In the language of the humanbecoming paradigm (Parse,
2014), the essays contain references to shifting rhythmical
patterns in the “the revealing-concealing, enabling-limiting
of connecting-separating” (Parse, 2014, p. 36), as the graduate nursing students concede that dying prisoners are important to someone, and see that they after all are not so different
from the rest of us, beings who will also get frail and die.
This new knowing restores a degree of solidarity, and gives
rise to compassion. Enabling-limiting of connecting-separating can be seen in the interdisciplinary team building needed
for the end-of-life care and research involving prisoners.
Included is team building with chaplains, corrections officers, inmate caregivers, and prison administrators, in the
eldercare and end-of-life care, for individuals who more
likely than not had been previously in adversarial and mistrustful relationships. Genuinely respectful teams who bear
witness to fading and dying prisoners can also be seen as
transforming the familiar-unfamiliar (Parse, 2014).
Dempsey (2008) used the humanbecoming paradigm to
guide her exploratory descriptive study of feeling confined.
The participants in her study were 13 men on a locked psychiatric prison unit in the Midwest of the United States. She
reported that feeling confined for these men “was an uneasy
restricted seclusion arising with moments of reverie, as
acknowledgement amid potential disregard emerges with
shifting intimacies, while pondering possibles surfaces with
endeavoring” (Dempsey, 2008, p. 140). In the words of her
participants, one said, “I lost too much freedom being confined and I value freedom now more than anything,” and
another said, “feeling confined is a time of loneliness where
there’s no outside communication” (Dempsey, 2008, p. 143).
This study suggested that confinement and freedom are parts
of a rhythm, which includes feeling lonely and caged. This
observation can be heard in the student who described life in
prisons in the Philippines as being treated “like animals in a
cage.” In the language of the humanbecoming paradigm,
connecting-separating and enabling-limiting is lived as dying
prisoners make efforts to reconcile with their families outside the prison as they live out the final days in the context of
prison’s culture, relationships and services.
A Rogerian Glance at Students’ Reflections
Exploring student essays on Loeb’s presentation provides
much food for thought from a SUHB perspective. Rogers
(1992) said, “The purpose of nursing is to promote human
betterment wherever people are” (p. 33). Her work reflects a
consistent moral stance that nurses provide humanistic, compassionate care for all people. This is a notion that is prevalent in every nursing framework, and within the context of
the SUHB, it is emphasized by the key postulates (human
and environmental energy fields, pattern, and pandimensionality) and principles of homeodynamics (resonancy, helicy,
and integrality).
Humans and their environments are inseparable energy
fields with distinct patterns that are unique to the individual,
as well as group, community, society, world, and universe(s).
258
That everything is a form of energy and that it is all connected implies that all is one and that whatever I do or you do
is not just reflected in the whole, it is the whole (TodaroFranceschi, 1999, 2013). Change is a continuous mutual process that involves everything, together (Rogers, 1992). Every
act or change emerges in manifestations of pattern, which
humans can often (but at times do not) discern. Through pattern appraisal, recognition and appreciation nurses identify
ways to contribute to the actualizing of human potential and
well-being (Cowling, 1997).
Many of the students shared that prior to listening to
Loeb’s presentation, they had thought that incarcerated individuals did not deserve much from society. Why should prisoners get quality healthcare when so many others who are
good, law-abiding people lack it? Most of the students admitted to rarely, if ever, thinking about this vulnerable population at all (literally an invisible-visible paradox). Yet
unequivocally Loeb’s presentation provided a reaffirmation
of the most basic nursing premise—that all people deserve
compassionate care and ultimately all of the students conceded that the question of “why care?” tugged at the communal meaning and purpose of who we as nurses serve and
why we do it.
The human-environmental field process evident in the
compilation of essays reflects Rogers’ principles of homeodynamics (integrality, resonancy, and helicy). Not only does
everything change all at once, all together (integrality), but
change is continuous, innovative, and unpredictable (helicy)
and occurs in wave patterns from lower to higher frequency
(resonancy). These principles taken as a whole are said to
reflect the nature of human-environmental field change. The
students individually and collectively came to the conclusion
that their initial thoughts were not reflective of who they are
as nurses or how life should be for those aging or nearing end
of life while incarcerated. In addition, they came to agree
that without focusing on the whole (the human-environmental field), which in this case includes the inmates, correction
officers, prison staff, and healthcare team, there could be no
attentive care to the individuals who are aging or dying in
prison. Prompted to ponder the limitations of caring for those
who are aging and dying in the prison, students applauded
the manner in which the entire community, inmates, and
employees became engaged in a partnership to enhance the
quality of elder and/or end-of-life care in prison.
In her theory of accelerating evolution, Rogers (1992)
noted changing manifestations of pattern that belie the idea
that there is anything explicitly “normal” or “abnormal.”
Instead, she suggested that human-environmental field
changes occurring throughout our world are becoming
increasingly diverse, innovative, and unpredictable, with
new emergents arising all the time. Rogers (1992) viewed
both aging and dying as dynamic processes in which is there
is increasing diversity and creativity, along with limitless
potential for growth. Aging is relative, as time is relative (we
are not running down nor are we running out of energy—for
Nursing Science Quarterly 30(3)
we are manifestations of energy). Our bodies are not the
whole of us as living entities; our energy fields in communal
process with our environmental fields are increasingly
diverse entities that continue to exist after death.
In the student reflections, there was collective surprise
over the apparent accelerated aging of individuals living in
prison. From a unitary science perspective, we might be able
to better understand the accelerating change in incarcerated
individuals who are considered geriatric at the age of 50-55
as a new emergent or different “norm,” through pattern
appraisal and appreciation. This could lead us to identify
novel ways of assisting inmates to attain a better quality of
life and death.
Evident as well, in the cohort of student reflections, is the
integrality of the human and environmental fields where
changes are occurring in such a manner as to call out to those
who are participating in the change process to do so more
knowingly. Where one might have been unknowingly participating, for example not noticing that an inmate is no longer eating breakfast or is no longer able to climb down out of
a bunk bed, through the intervention the community is participating more knowingly in change. Together there is a
communal shift toward making known the unknown and acting upon it. Barrett’s (1989, 2010) power as knowing participation in change theory, based on the SUHB, aptly applies
here. Through the use of the educational cards developed
(GRIMMM), the entire community was able to participate
more knowingly in changes that enhanced the well-being of
the collective—both inmates and staff alike. From a research
perspective, the acts combined to foster the further development of trust among the community members, which in turn
paved the way for future research opportunities.
Underfunding, lack of resources, and safety issues, along
with stigmas associated with being incarcerated, make it
challenging to care for this vulnerable population. Students
noted how nice it was to have all of the staff and inmates on
equal footing rather than identifying who was more expert.
This approach, that everyone is important and contributes to
the whole, sets a moral tone that we are all in this together,
and we can overcome barriers to care. Rogers (1992)
addressed this in her work as well, noting there is “a critical
need for mutual respect between all health personnel;
between nurses, between health fields, and between the
fields of science” (p. 34). Engaging and educating all members of the prison community to enhance the quality of both
living and dying is indeed very Rogerian. One student poignantly noted that by not treating prisoners with attentive
care and compassion, we are not just hurting them but are
also hurting those who care about them, “pushing hurt and
negativity into society.” Unknowing participation where
actions may seem dispassionate or inattentive eventually
hurts everyone (Todaro-Franceschi, 2013). In closing,
Butcher (1999) had noted, “knowing participation within
Rogerian science is an ethic” (p. 116). Having explored the
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student essays related to this complex subject through a
Rogerian lens, this author heartily agrees.
Conclusion
French Canadian Jean Vanier (2015), philosopher and founder
of communities of L’Arche, suggested that two worlds exist
divided by a road. Located on one side are those seeking to
advance themselves up the ladder of success, wealth, and power
and, on the other side, are persons with mental handicaps, with
whom he lives, those in prisons, and other persons unable to
compete in such a way. Attending the presentation by Loeb and
reflecting on her story about nurses partnering with the staff and
those who live, age, and die in prison represents a visit to the
other world for the students and the authors of this paper. As
Vanier found in his 50 years of living with persons with mental
handicaps, students got a glimpse of the human community as a
whole, that prisoners are in the big picture not so different, that
we all face becoming frail and death, and as Loeb said, “every
person’s life is meaningful to someone.” This insight gives rise
to compassion for all human beings. They not only crossed the
road but encountered persons on the other side and began the
work of mutual transformation.
It has been just over 50 years that the United Nations Human
Rights Office of the High Commissioner published the Human
Rights Covenants, which included the recommendation to protect the right to not be imprisoned without proper reason, the
right to be treated with humanity and respect while in detention,
and also suggested limitations of imprisonment. But these documents made no mention of aging or dying in prison. Solzhenitsyn
(1971/1975), who, like Dostoyevsky, understood firsthand the
pernicious nature of incarceration, wrote “in our camps, as
nowhere else, in detail and on a large scale, the special process
of narrowing the intellectual and spiritual horizons of a human
being, the reduction of the human being to an animal and the
process of dying alive” (p. 208). Within such circumstances as
aging and dying, persons struggle to hold on to their cherished
values and beliefs, and nurses when working with their community partnering knowingly participate in creating change and
in the human-environmental fields to give rise to illuminating
meaning, shifting views of what is, and cotranscending with the
possible. While humanbecoming and the Rogerian science are
different in many respects, both views convergence on their
commitment to human betterment for all persons, which
remains in the authors’ views the essence of nursing.
Declaration of Conflicting Interests
The authors declared no potential conflicts of interest with respect
to the authorship and/or publication of this review.
Funding
The authors received no financial support for the authorship and/or
publication of this review.
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