Data Linkage
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Recent papers in Data Linkage
Data Linkage is an important step that can provide valuable insights for evidence-based decision making, especially for crucial events. Performing sensible queries across heterogeneous databases containing millions of records is a complex... more
Two methods, linkage analysis and linkage disequilibrium (LD) mapping or association study, are usually utilised for mapping quantitative trait loci (QTL). Linkage mapping is appropriate for low resolution mapping to localise trait loci... more
Scotland has existing data resources which are competitive internationally and available to researchers from elsewhere. The Scottish Informatics and Linkage Collaboration (SILC) was recently launched, allowing data sets to be linked... more
Waleed A. Muhanna * Roger Alan Pick Department of Accounting and Management Information Systems, College of Business, The Ohio State University, 1775 College Road, Columbus, Ohio 43210-1399 Henry W. Bloch School of Business ...
Information on the background characteristics and lifestyles of young people enables us to understand, and plan for, youth transitions. Linking data from the Longitudinal Surveys of Australian Youth (LSAY) with external data sources would... more
This is a visual summary of our recent systematic review and thematic synthesis of qualitative studies examining public attitudes towards the sharing or linkage of health data for research purposes which was published in BMC Medical... more
Analyses the attitudes of Scottish citizens towards the sharing of personal data between the public, private and third1 sectors for statistical and research purposes. Specific objectives of the research were to establish: whether and how... more
Background Many western nations continue to have high rates of teenage pregnancies and births, which can result in adverse outcomes for both mother and child. This study identified possible antecedents of teenage pregnancy using linked... more
1. Background: The small size of previous studies of mortality in opioid dependent people has prevented an assessment of the extent to which elevated mortality risks are consistent across time, clinical and/or patient groups. The current... more
The aim of this paper is to show for the first time mortality differentials by level of education for Swiss men and women. This work is of interest to public health efforts in Switzerland as well as for co-operative international research... more
The aim of this paper is to show for the first time mortality differentials by level of education for Swiss men and women. This work is of interest to public health efforts in Switzerland as well as for co-operative international research... more
Filmed at the Edinburgh Fringe Festival, 15th August 2014. As part of the "Cabaret of Dangerous Ideas", Dr Mhairi Aitken (University of Edinburgh) discusses whether our information should be thought of as private and belonging to each us... more
The data management process is characterised by a set of tasks where data quality management (DQM) is one of the core components. Data quality, however, is a multidimensional concept, where the nature of the data quality issues is very... more
Background: Health system performance assessment (HSPA) is a major tool for evidence-based governance in health systems and patient/population-orientation is increasingly considered as an important aspect. The IPHA study... more
Background: Patient and Public Involvement (PPI) in health and social care research has been shown to improve the quality and relevance of research. PPI in data linkage research is important in ensuring the legitimacy of future health... more
Combining the Longitudinal Surveys of Australian Youth (LSAY) with other data sources would enhance the breadth of information without adding respondent burden. This discussion paper explores two issues: the potential for linking data... more
Background: The past 10 years have witnessed a significant growth in sharing of health data for secondary uses. Alongside this there has been growing interest in the public acceptability of data sharing and data linkage practices. Public... more
Summary. We analyse patterns of consent and consent bias in the context of a large general household survey, the ‘Improving survey measurement of income and employment’ survey, also addressing issues that arise when there are multiple... more
Objectives: Welfare reform (Personal Responsibility and Work Opportunity Reconciliation Act of 1996) resulted in dramatic policy changes, including health-related requirements and the administrative separation of cash assistance from... more