Breaking Down The Barriers: Reaching Out To Deaf People and Their Organisations: A Guide For The Third Sector
Breaking Down The Barriers: Reaching Out To Deaf People and Their Organisations: A Guide For The Third Sector
Breaking Down The Barriers: Reaching Out To Deaf People and Their Organisations: A Guide For The Third Sector
the barriers
NEP believes that people with direct experience of discrimination are best placed to develop
solutions to address it, and aims to ensure that all work on equality, diversity and human rights
in the third sector is done with the close involvement of equality organisations.
What do we do?
We offer training, information and one-to-one support to umbrella organisations to help
them challenge disablism, homophobia, racism, sexism and other forms of discrimination
and human rights abuse. We enable organisations to increase their voices so that inequality is
tackled effectively. All of our work promotes collaboration and partnerships, sharing expertise
and encouraging long-term relationships between equalities organisations and the wider third
sector.
Our work is closely informed by our reference group encompassing all equalities sectors as
well as generalist organisations. The partnership of NEP is made up of:
» Women’s Resource Centre (WRC)
» Voice4Change England
» Consortium of Lesbian, Gay, Bisexual and Transgender Voluntary and Community
Organisations
» National Association for Voluntary and Community Action (NAVCA)
Women’s Resource Centre is the lead partner with core staff based at our London office.
Currently, there is a core membership of twenty Deaf users, five freelance interpreters and
representation from NSLIS. The Forum also enables the local Deaf community to engage in
policy changes to the interpreting service and identify the training needs of Deaf users and
interpreters.
Within the guide are case studies, exercises and checklists to help you improve the way you
reach out to the Deaf community.
It is important to note that while some of the guidance given will apply equally to Deafblind,
Deafened and other Deaf people, who do not use British Sign Language (BSL), this guide has
been written from the Deaf cultural perspective of BSL users.
The community is proud of its heritage, rich culture and language (BSL). It has sought over the
past three decades to achieve a sense of equality within the mainstream of society. However, it
is clear that the Deaf community remains marginalised. It is rare to find Deaf people engaging
at any level within local and national communities.
In 1981, disabled people were beginning to develop what was to become the social model of
disability, identifying negative attitudes, environmental factors and social structures, rather
than their medical conditions as the barriers to disabled people’s participation in society. At
the same time, Deaf people were making demands to be recognised as an ‘ethnic body with
their ownlanguage, culture and mode of thinking’ (Dimmock, 1981).
Parallels can be made with ethnic minority groups who have established centres across Britain
for members of the community to meet, worship and celebrate their cultural life.
Historically, Deaf people have seen the education system as the source of their oppression.
Oralism denies access to BSL and many Deaf people give personal accounts of the abusive
treatment they have experienced as punishment for using BSL (Taylor & Bishop, 1991).
The medical model of deafness – seeing deafness as a deficit in hearing rather than as a
cultural and linguistic heritage – is another example of oppression felt by the Deaf community.
It is this difference in the lived reality of deafness that is at the heart of Deaf people’s hostility
to the cochlear implantation of children. This device is portrayed in the media as a ‘bionic ear’,
transforming deaf children into children who hear normally, rather than a surgically implanted
hearing aid. It is a symbol of society’s wish to change Deaf people into speaking and hearing
people, rather than recognising BSL users as a minority group.
In common with other minority groups, Deaf people are also able to identify their oppression.
Arthur Dimmock, in his writing, identified the parallels with other groups in Britain, using
languages other than English.
In 1976, the linguist, Mary Brennan, recognised that BSL was often as complex as spoken
languages in its ability to express sophisticated thoughts and emotions. Following her
observations, the British Deaf community campaigned for over twenty years to have BSL
recognised by the Government as one of Britain’s indigenous languages alongside Welsh,
Gaelic and Cornish.
The campaign finally achieved its goal in 2003 but it could be argued that this recognition
has yet to be implemented. There have been few changes in practice, and Deaf people often
remain invisible on television and in other spheres of national and political life.
» education
» medical and social provisions
» participation in political and democratic processes
» activities in their local communities
» employment
Often it is assumed that because Deaf people have limited access to information conveyed
by speech, this can be circumvented by providing written information such as a handwritten
note, a leaflet or being directed to a website. However, research has shown that Deaf people
often have a lower than average reading age. For example, Deaf people, who left school in 1975,
had an average reading age of nine years. Twenty-five per cent of school leavers, who were
described as ‘less deaf’ (hearing loss below 85dB) had no reading comprehension and 50% of
school leavers with deafness greater than this were also illiterate (Conrad 1979).
These school leavers will now be around the age of 50. Currently only a third (32.9%) of
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deaf children achieves good results at GCSE compared to over half (57.1%) of their hearing
peers(source: www.ndcs.org.uk). Research does not suggest that the literacy levels of deaf
people aged over 50 or between 19 and 50 will be higher than these averages (Boddis 2007).
Without doubt, Deaf people have difficulty accessing information.
"
We lag behind on information
on a daily basis. I feel like it’s a
constant catch-up game with
the hearing community. We
just have a lack of up-to-date
information.
(Eckhardt 2005)
To illustrate Deaf people’s experiences, we have included three case studies of Deaf people
accessing services. These are followed by exercises to help third sector organisations to
understand these experiences and think about ways to overcome barriers to effective support
for Deaf people.
Case Study 1
“I’ve got a Deaf son who attended football coaching provided by the Foundation
Football Club at his school, we had an interpreter for that and he loved it. He felt
equal with the other children. Then budgets were reduced, and they had to stop
the interpretation provision.
“They said to me that as a parent I could apply for a government grant, which is
available, to provide support for any disabled person with access needs e.g. an
interpreter. I got help to fill in the application form, but was told that I had been
unsuccessful because they were not prepared to pay to meet the needs of just
one child although they were prepared to help a group. But if there is only one
Deaf child living in the area we would have to go further away to find other children
who may be interested in football coaching, in order to get support. My child has
experienced the same problems with Cubs and Scouts. He’s given up going now
as he can’t attend the social events.
“He’s tried going with somebody who’s got Stage 1 skills in BSL, but that’s not high
enough. It’s better than nothing, but someone at Stage 1 can’t pass on all the
information that other children are saying in the group.
“Communication’s fine at home and at the Deaf Club. But out there in society
as a whole, there’s no access. And it’s a budget issue for other services. The
school budget does not have the capacity to pay for interpreters for after-school
services; they’re not funded to provide for his social life. And if I want to attend
school functions as a Deaf parent it’s difficult, as again, it’s an issue of budgetary
considerations.”
As this case study demonstrates, the issue is not just about budgetary considerations, but
structures and attitudes.
If a group wants to include someone who is a BSL user, and it is committed to social inclusion,
the group will find a way to break down the barrier that excludes the person, by providing
accurate advice about funding and finding effective ways to provide support.
Case Study 2
A second Deaf mother gave an account of difficulties her daughter, Mary,
experienced attending the Brownies and Girl Guides.
The family was encouraged by parents at their children’s school to join the
Rainbows. Jane, the leader, had known them for a long time and could use BSL.
When the child was ready to move to the Brownies, it was fine as Jane was the
Brown Owl (leader of the Brownies’ group). However when Jane left, Mary’s
involvement began to fragment. Even though, Ruth, a member of the school staff
stepped in to provide communication support, this was not ideal.
Mary’s mother has never been given the full story of what happened, but she
suddenly received a message from Mary’s teacher to say that her daughter had
been banned from attending the Brownies because of her behaviour.
She then discovered that Ruth had not been at the Brownies for four weeks, and
although Mary’s mother tried to get an explanation, she was unable to contact the
Brown Owl directly, with all communications coming to her via the teacher. The
mother explained her feelings:
“I’m so angry because they see it as all my responsibility and they have the cheek
to award a badge to Brownies for communication with Deaf people.”
The school said that they could not help any further because they had, unknown
to the family, paid for the support through the Children’s Fund and this had now
been exhausted. The mother was also incensed because in order to keep Mary
involved in social activities she now had to apply to Social Services for money to
add to the payments she made for communication support.
Case Study 3
Peter has an ambition to run 100 races before he loses his sight due to retinitis
pigmentosa, a condition which, combined with deafness, is called Usher.
In order to find a running partner – someone who will run just ahead of him to
increase his safety – Peter decided to write to as many sources of possible help
that he could find. He wrote fifty letters to voluntary organisations, the police, the
army and Deaf organisations. He did not receive a single reply from this or from a
website, which finds running partners.
Peter approached five running clubs in his city but all of them met in the evening,
the wrong time of day for someone with poor night vision. He found a running club
that met on a Sunday morning and they suggested he turn up and run with them.
Exercise
Referring to the case study above, please consider these questions:
1. How would you feel if you were Peter?
2. Peter needed an interpreter to assist with these first steps, but where would
the funding come from to pay for this service?
3. What would be the next step in this situation?
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A hearing person with Level 1 BSL (equivalent to the skill a tourist may have in a foreign
language), is welcomed as a volunteer for the Deaf community, even though they can barely
communicate with Deaf people, but it doesn’t work the other way around for Deaf volunteers.
Deaf volunteers can’t just turn up.
"
It involves extra work because you have to explain the
need for an interpreter, keep pushing for an interpreter,
and IF there is funding then you end up being
responsible for booking the interpreters.
The next three case studies are examples of Deaf people volunteering.
Case Study 4
A woman who does voluntary work for the Deaf Children’s Society and
voluntary Deaf Awareness training for schools, as well as preparing
Scouts, Guides and Brownies for their finger spelling badges.
Case study 5
A volunteer interpreter who gives police cadets insight into the Deaf
community. She said that she feels able to participate fully:
“The first problem was that that they did not have funding to include
me in the information and training sessions for volunteers. I wasn’t very
happy about this as I knew they provided an interpreter for another Deaf
person who was on their Management Committee. However, I was very
keen to be involved so I managed the training by reading all the written
information, lip-reading and bringing a hearing friend to interpret some
of the sessions. They said they would pay him but they never did.
“Then I became aware that all the other volunteers were being matched with
families but there was no offer of work for me. Eventually I was told of a family
but then told that they had pulled out. In the end I was so busy with my own life
and volunteering at the Deaf Centre that I put it behind me, but it was a shame.”
Exercise
Referring to the case studies above, please consider these questions:
1. How do you feel about the experiences of these volunteers?
2. Are non-Deaf people, particularly disabled people and parents of disabled
children, missing out if Deaf people cannot share their experience and
expertise?
3. If Deaf volunteers work only in the Deaf community, how best can they
be given support and training for the many kinds of issues they may be
confronted with?
4. How can Deaf people be supported around issues that they may be unaware
of (e.g. Health and Safety, working alone, domestic violence, child protection
procedures, vulnerable adult policies and legal matters).
» Each Deaf person is an individual with a range of other identities and communication needs
» The Deaf community mirrors the wider community with its ethnic mix and includes old and
young Deaf people, middle aged people, gay men and lesbians, Deaf people with illnesses
and disability, people with mental health issues and learning difficulties, and many others
» Each individual will have their own sense of identity and place in society formulated through
their own life experiences
» The knowledge and exercise of their rights varies between Deaf people
» Not all Deaf people know of their right to ask for an interpreter or act on this right, in
particular those with additional needs and also those with limited language skills
» Deaf people who have been segregated into the learning disability services may never have
been given access to BSL or have been introduced to it comparatively late in life
Bren Davies, Chief Executive of Community Concern Erewash says that she and a colleague
had some BSL skills and were able to support a Deaf volunteer. She feels that currently BSL is
treated as a luxury ‘add on’ and not as a fundamental part of provision. She makes the case
for free access to BSL training, arguing that this should be a part of the capacity building
programme for voluntary organisations.
"
"
Where Deaf people work,
Deaf customers go.
"
It is only when you have an
established Deaf contact that
Deaf people are likely to get
involved in the more social
aspects, such as user groups.
“I was looking at the Deaf person signing, hearing the interpreter relay what
was being communicated, and by the time the interpreter had finished
the sentence of one Deaf person, another Deaf person (who had received
the information before me) was already signing their response.
Case study 8
The Citizens Advice Bureau (CAB) provides a four-minute advice video
for the Deaf community on YouTube. The video which is sub-titled
and signed in BSL by a Deaf CAB advisor, gives a basic introduction
to the CAB, how Deaf people can find their local CAB and describes
how they can help advise on debt or discrimination issues.
Checklist
Publications
British Deaf News, British Deaf Association (www.bda.org.uk)
Council on Deafness (www.deafcouncil.org.uk)
Forest Books (www.forestbooks.com) Good Practice Guide: providing access to public
services for Deaf people 2001, UK
Videos
What we do and how we help – a 4-minute video by Citizens Advice
(www.citizensadvice.org. uk/index/aboutus/what_we_do_how_we_help.htm)
Deaf Studies
There is a range of courses across the UK, from beginners Sign Language to post-graduate
courses on Deaf studies, culture and history. Bristol, Durham, Wolverhampton, City University
(London), Heriot-Watt and Central Lancashire offer a range of courses in Deaf Studies.
Boddis, J. ‘Are Hearing Impaired Students Successful in Mainstream Education?’ Deaf Worlds
vol 23 issue 1 2007
Brennan, M. ‘Can Deaf Children Acquire Language’ British Deaf Association 1975
Dimmock, A. ‘International Year of the Disabled People’ 1981 in Deaf Liberation, National Union
of the Deaf 1992
Eckhardt, E. ‘An exploration of HIV/AIDS perceptions, knowledge, and beliefs among individuals
who are Deaf’ Ph.D.diss New York University 2005
Hawcroft, L., Peckford, B. and Thomson, A. ‘Visible Voices: Developing Deaf Service User
Involvement in Local Services’ Joseph Rowntree Foundation undated (approx 1995)
Taylor, G. and Bishop, J. ‘Being Deaf: The Experience of Deafness’ Pinter Press 1991