A Parent’s Handbook:

Your Guide to
Autism Programs

July 2012
Table of Contents
Introduction 1

Services and Supports for Children and Youth with Special Needs and Their Families 1

What is Autism Spectrum Disorder? 2

Early Indicators of Autism Spectrum Disorder 3

What to Do if You Think Your Child May Have Autism 4

What Causes Autism Spectrum Disorder? 5

Is There a Cure? 5

Assessment and Diagnosis 6

British Columbia Autism Assessment Network (BCAAN) 6

Non-BCAAN (Private) Assessment and Diagnosis 6

Children Over Age Six Diagnosed with ASD Prior to April 1, 2004 6

Moving to B.C. from Another Province 6

Moving to B.C. from Another Country 6

My Child Has a Diagnosis of ASD. What Do I Do? 8

Applying for Autism Programs 8

Autism Programs 9

Autism Funding: Under Age 6 9

Registry of Autism Service Providers (RASP) 9

Setting Up an Autism Intervention Program for Your Child Under 6 12

Autism Funding: Ages 6 – 18 13

Accessing Autism Programs 16

Funding 17

Invoice Payment 17
 Autism Funding Programs and Parent Responsibilities 17

Foster Parents and Children in Care 19

Appeals or Complaints 19

Confidentiality and Your Privacy 19

Tips for Parents 20

Who Will Be Working with My Child? 20

How Much Can I Expect to Pay for Services? 21

How Do I Know My Child is Receiving Quality Intervention? 21

What is a Behavioural Plan of Intervention (BPI)? 23

Contact Us 24

Appendices

1. B.C. Service and Autism Organizations 25

2. Behavioural Plan of Intervention 27

3. Autism Funding – Summary of Eligible Expenses

29

4. Autism Funding – Summary of Ineligible Expenses

30

Frequently Used Acronyms

ASD: Autism Spectrum Disorder
MCFD: Ministry of Children and Family Development or the ministry
Introduction
This handbook is for parents and caregivers of
children and youth who may have, or have been
diagnosed with, Autism Spectrum Disorder (ASD).
It provides information on ASD, intervention, and
programs available for children and youth with
ASD and their families.
The Ministries of Children and Family
Development (MCFD), Education and Health
Services work closely to coordinate assessment,
diagnosis, intervention and support services for
children and youth with ASD and their families.

Services and Supports

for Children and Youth with
Special Needs and Their Families
In addition to the autism programs described on
pages 9-16, MCFD provides a range of programs
for children and youth with special needs and
their families. These include:
• Aboriginal Infant Development Program
• Aboriginal Supported Child Development
• At Home Program (medical and respite)
• Community Brain Injury Program
• Early Intervention Therapies
• Infant Development Program
• Key Worker and Parent Support
• Nursing Support Services
• Provincial Outreach and Professional Supports
• Provincial Services for the Deaf and Hard of
Hearing
• School-Aged Therapies
• Supported Child Development WEBLINK
For information on program eligibility, see the www.mcf.gov.bc.ca/spec_needs/index.htm
WEBLINK.

1
What is Autism Spectrum Disorder?
Autism Spectrum Disorder is a complex condition
that impacts normal brain development
and affects a person’s social relationships,
communication, interests and behaviour. Studies
indicate that ASD affects one in every 150 children.
ASD usually appears early in life, often before
the age of three, and is four to five times more
common in boys than in girls.
ASD is a general term that includes the following
disorders: Autistic Disorder, Asperger’s Disorder,
Pervasive Developmental Disorder – Not
Otherwise Specified (PDD-NOS), Rett’s Disorder,
and Childhood Disintegrative Disorder (CDD). In
each of these disorders, social interaction is most
commonly affected.
The symptoms and characteristics of ASD
can present themselves in a wide variety of
combinations, from mild to severe. Although ASD
is defined by certain sets of behaviours, individuals
can exhibit any combination of the behaviours
in any degree of severity. Children with the same
diagnosis can act very differently and have varying
skills. Therefore, there is no standard type or
typical person with ASD.
Parents may hear different terms used to describe
children within the spectrum, such as: autistic- WEBLINKS
like, autistic tendencies, autism spectrum, high- www.autismsocietycanada.ca
functioning or low-functioning autism. These terms www.child-autism-parent-cafe.com
are not related to the child’s abilities or needs. It is
www.cairn-site.com
more important to understand that, whatever the
diagnosis, appropriate education and treatment
based on the child’s abilities and needs can help
children to develop to their full potential.

2 A Parent’s Handbook: Your Guide to Autism Programs

Early Indicators of
Autism Spectrum Disorder
If you think your child may have Autism Spectrum
Disorder (ASD), please read through the list of
possible signs of ASD. Your child does not need
to demonstrate all of the indicated behaviours in
order to be referred for an assessment. Please note If you think your child is not
that these characteristics may also be indicators of developing typically, please consult
other conditions. your doctor as soon as possible. Your
Possible signs of ASD (adapted from First Signs*): local Child Development Centre or
• Seems disinterested in sharing enjoyment with Infant Development Program may
others also be able to provide information,
guidance and support.
• Does not speak, or uses very few words
• Appears to understand very little
• May seem deaf or doesn’t respond when name WEBLINKS
is called ACT – Autism Community Training:
• Unusual sensitivity to light or sound; for www.actcommunity.net
example, flickering lights or a vacuum cleaner Infant Development Programs:
can provoke uncontrolled screaming www.idpofbc.ca
• May walk on his or her toes British Columbia Association for Child
• When excited, may flap hands Development and Intervention:
• May not make eye contract as other children do www.bcacdi.org/member.html
• May resist cuddles and hugs First Signs: www.firstsigns.org
• Frequent tantrums when required to do Children and Youth with Special
Needs anything new or when asked to change Ministry of Children and Family
activities without advance warning Development:
• Does not point to show you interesting things www.mcf.gov.bc.ca/spec_needs/index.htm
• Does not engage in make-believe play
• May line up toys and obsess on strange objects
• * First Signs, Inc. is a national non-profit organization
Does not show objects to others dedicated to educating parents and pediatric professionals
• Does not look to where you are pointing about the early warning signs of autism and other
• Likes things to be done the same way all the time developmental disorders.

• Exhibits a loss of social play or language skills

3
What to Do if You Think Your Child May Have Autism

Review Early Indicators

of Autism Spectrum
Disorder on page 3

🠟
Make an appointment
to discuss your Doctor does not make
concerns with your a referral for Continue to
child’s doctor 🠞 assessment 🠞 monitor your child’s
development. If
🠟 concerns continue,
Doctor makes a let your child’s doctor
referral to British know.
Columbia Autism
Your local Child
Assessment Network
Development Centre
(BCAAN)
is another source
🠟 of information and
support.
Child does not receive
Assessment 🠞 diagnosis of ASD 🠞
🠟

Child receives a
diagnosis of
ASD

🠟
Contact your local
MCFD office to apply
for Autism Programs
4 A Parent’s Handbook: Your Guide to Autism Programs
 What Causes
Autism Spectrum Disorder?
The causes of autism are still largely unknown. We
do know that it is not caused by parents or the way
a child is raised, and there is likely no single cause.
Research is underway to explore possible causes
including genetic and environmental factors.

Is There a Cure?
For now, there is no cure for ASD. There are,
however, highly effective treatment and
intervention methods available that can help
individuals and their families address the
characteristics of this disorder. Early interventions
based on best practices are intended to help
children with ASD develop skills, learn to
communicate effectively, share in family life and
enjoy success at school. For more information on
best practices, please see page 21.

WEBLINKS
For information on current research, see the
National Institute of Mental Health:
www.nimh.nih.gov/health/publications/
autism/index.shtml
www.nimh.nih.gov/health/topics/
autism-spectrum-disorders-pervasive-
developmental-disorders/index.shtml

5
Assessment and Diagnosis
British Columbia Autism Assessment
Network (BCAAN)
If you have concerns about your child’s Parents are responsible for any costs charged for
development, please see your family doctor who the private assessment.
may refer you to BCAAN for assessment and
diagnosis. Children Over Age Six Diagnosed
with ASD Prior to April 1, 2004
BCAAN provides multidisciplinary diagnostic
If your child was diagnosed with ASD before April
assessments for children under age six and
1, 2004, and you would like to apply for autism
clinical diagnostic assessments for children age
programs, a Confirmation of Previous Diagnosis
six and older. Children can be diagnosed at any
of ASD form must be completed by a qualified
age, some as young as two years old. BCAAN will
B.C. specialist (paediatrician, child psychiatrist, or
arrange for an assessment to be done as close to
registered psychologist).
where you live as possible. There is no charge for
BCAAN services. Moving to B.C.
At the completion of the assessment and from Another Province
diagnosis, you will receive a BCAAN Clinical If your child has had a diagnostic assessment
Outcomes form. This form provides a summary of of ASD from another province in Canada and
the testing results that will indicate whether your you are applying for the Ministry of Children
child has Autism Spectrum Disorder. and Family Development (MCFD) autism
programs, a Confirmation of Diagnosis form
Non-BCAAN (Private) Assessment must be completed by a qualified B.C. specialist
and Diagnosis (paediatrician, psychiatrist or registered
Families may obtain a non-BCAAN (private) psychologist).
diagnostic assessment. This assessment must
meet the same standards as a BCAAN assessment Moving to B.C.
(see the WEBLINK opposite page). from Another Country
Families who have recently moved to British
Children under age six require a multidisciplinary
Columbia from another country are required to
diagnostic assessment. Children age six and
have a new diagnostic assessment for ASD within
older require a clinical diagnostic assessment
B.C. to apply for autism programs.
(completed by a paediatrician, child psychiatrist,
or registered psychologist). You can obtain the Non- BCAAN
(Private) Diagnosis of Autism
The clinician must complete a Non-BCAAN
Spectrum Disorder and Confirmation
(Private) Diagnosis of Autism Spectrum Disorder
of Diagnosis forms from the WEBLINK
form to document a positive ASD diagnosis if
opposite or by calling MCFD at
the family wishes to apply for autism programs.
1 877 777-3530.

6 A Parent’s Handbook: Your Guide to Autism Programs

WEBLINKS
BCAAN: www.phsa.ca/
AgenciesAndServices/Services/Autism
Standards and Guidelines for
the Assessment and Diagnosis of
Autism Spectrum Disorder:
www.health.gov.bc.ca/library/publications/
year/2003/asd_standards_0318.pdf
Confirmation of Diagnosis form:
www.mcf.gov.bc.ca/autism/forms.htm
Non-BCAAN (Private) Diagnosis of
Autism Spectrum Disorder form:
www.mcf.gov.bc.ca/autism/forms.htm

7
 My Child Has a Diagnosis of Autism Spectrum Disorder. What Do I Do?
When a child is diagnosed with ASD, the emotional impact on parents and extended family can be
profound. This can be a very difficult and stressful time for everyone.
Every family has their own questions and concerns, but for many families it is important to learn as much
about ASD as possible, and to connect with other parents and professionals who can offer information
and support.
Information on local groups can be found through organizations listed on page 25. Workshops are also
available throughout the province on a range of topics (see the ACT – Autism Community Training
WEBLINK below for more information).
It is important for parents to know that children and youth with ASD can benefit from an intervention
program. Research has identified interventions and approaches that are supported by evidence and
proven to be effective for ASD – these are known as best practices. For more information on best
practices, please see page 21.

Applying for Autism Programs

If your child has been diagnosed with ASD, and you wish to enrol in the Autism Funding Program, contact
your local MCFD office to complete a funding agreement.

WEBLINKS
ACT – Autism Community Training:
www.actcommunity.net
MCFD:
www.mcf.gov.bc.ca/autism/index.htm

8 A Parent’s Handbook: Your Guide to Autism Programs

Autism Programs
The Ministry of Children and Family Development Registry of Autism Service Providers (RASP)
provides two autism programs: Parents of children receiving Autism Funding:
• Autism Funding: Under Age 6 Under Age 6 are required to select professional
• Autism Funding: Ages 6-18 service providers for their child from the RASP. The
RASP is managed by ACT – Autism Community
Autism Funding: Under Age 6 Training on behalf of the Ministry of Children
The primary intent of Autism Funding: Under Age and Family Development. In order to be included
6 is to assist families with the cost of on the RASP, professionals must demonstrate
purchasing autism intervention services (based that their education and experience meet the
on best practices) to promote their child’s qualifications described by the ministry.
communication, social-emotional, pre-academic
and functional life skills development. Families WEBLINKS
of children age five and younger with a Registry of Autism Service Providers (RASP)
diagnosis of ASD may receive up to 320,000 per and information on choosing service
year (322,000 as of April 1, 2010) towards eligible providers at: www.actcommunity.net
intervention.
Your child’s intervention program must be based
on a plan that takes into account his or her unique
strengths and needs. This Behavioural Plan
of Intervention (BPI) is written by a behaviour
consultant, with input from family members
and other intervention team members, such as
the speech-language pathologist, occupational
therapist, physiotherapist, and/or behaviour
interventionist(s). The BPI should be reviewed
and updated regularly to ensure that your
child is making meaningful progress. For more
information on BPIs, see page 23.
You must submit the BPI to the Autism Funding
Unit within four months of signing the Autism
Funding Agreement. The behaviour consultant
you use to develop and monitor your child’s BPI
must be selected from the Registry of Autism
Service Providers (RASP). While the BPI is being
completed, you may hire other professionals listed
on the RASP. An updated BPI must be submitted
annually to the Autism Funding Unit.
9
 Autism Funding: Under Age 6 Training within B.C.
may only be used for the following: (round trip greater than 80 kms):
• Services of behaviour consultants, speech- • Reimbursement for registration and travel
language costs for parents or behaviour interventionists
Tip for Parents pathologists, to attend autism-specific training. Fees for
occupational post-secondary credit courses are not eligible
The service provider’s
therapists, and expenses.
hourly rate of pay
physiotherapists • Travel expenses may include actual fare for
should reflect the cost
who are listed on air, bus or train travel, or mileage at 30.40 per
of doing business.
the Registry of kilometre for a private vehicle.
Administrative costs
Autism Service • Hotel expenses to a maximum of 3100 per night
incurred by the service
Providers (RASP) are eligible.
provider are not eligible
(see WEBLINK
expenses. • Parking may be reimbursed to a maximum of
opposite page).
315 per day.
• Ferry and toll charges are eligible expenses.
• Behaviour interventionists
• Administrative costs (e.g., bookkeeping/payroll,
• Educational books, DVDs and videos for parents
up to 3100 monthly).
(specific to autism).
• Applicable employer costs (e.g., employee
income tax, Canada Pension Plan, Employment Travel costs to access
Insurance and Workers Compensation Board autism intervention within B.C.
premiums, four per cent vacation pay). (round trip greater than 80 kms):
• Up to 20 per cent of the funding may be • If you are unable to access service providers in
used for training, travel costs to access autism your own community, you may claim expenses
intervention and training within B.C. (round for the most cost-effective method of receiving
trip greater than 80 kms) and equipment as services as close to home as possible.
necessary for effective intervention, outlined • Options may include travel to the service
in a Justification for Equipment/Supplies form provider or bringing the service provider to the
from a professional/specialist (please see the community.
WEBLINK next page or Autism Funding: • Travel expenses may include actual fare for air,
Under Age 6 - Ineligible Expenses on page 11 for bus or train, or mileage at 30.40 per kilometre
more information). for a private vehicle.
• Hotel expenses to a maximum of 3100 per night
are eligible.
• Parking may be reimbursed up to a maximum of
315 per day.
• Ferry and toll charges are eligible expenses.
10 A Parent’s Handbook: Your Guide to Autism Programs
 Equipment and materials Autism Funding: Under Age 6
related to intervention: Ineligible Expenses
Equipment and materials necessary for the child’s Some interventions and equipment
intervention must be requested in a Justification recommended by a professional/specialist are
for Equipment /Supplies form that is completed ineligible expenses. The following are examples of
by a professional/specialist from the following list: ineligible items:
• Behaviour consultant • Home repairs, renovations, swimming pools, hot
• Physiotherapist tubs, trampolines, playground equipment
• Speech-language pathologist • Household items, including appliances
• Occupational therapist • General recreation and sports enrolment fees
• Registered psychologist • Sports/fitness equipment, including bicycles
• Registered psychological associate • Electronics, including televisions, CD players,
• Paediatrician stereos, MP3 players, game systems, video
games, tracking devices, and cellular phones/
• Psychiatrist
palm pilots
• Neurologist
• Non-ASD specific CDs, DVDs, and videos
Other avenues of funding for equipment • Musical instruments (purchase or rental)
purchases or loans must be explored. Purchases
• Vitamins, medical supplies, incontinence
must not duplicate those that would be approved
supplies, orthotics
under SET-BC, the At Home Program, other
agencies providing equipment or that are typical • Clothing, helmets
expenses for a child. Please see the WEBLINK • Food (however, small reinforcers for Applied
below for more information on SET-BC. Behaviour Analysis therapy may be eligible)

The following are examples of ineligible services:

WEBLINKS • Child care
Justification for Equipment/Supplies form: • Respite
www.mcf.gov.bc.ca/autism/forms.htm
• Lessons (group or individual), such as swimming
SET-BC: www.setbc.org and karate
ACT – Autism Community Training: • Medical services
www.actcommunity.net • Services provided out of province
Not all ineligible expenses are listed here. It is
recommended that families contact the Autism
Funding Unit at 1 877 777-3530 for pre-approval
before purchasing items.

11
Setting Up an Autism Intervention Program for Your Child Under 6

MCFD: Ministry of Children and Family

Development Contact MCFD to
www.mcf.gov.bc.ca/autism/index.htm
apply for Autism
ACT: ACT- Autism Community Training Programs
www.actcommunity.net

ASD: Autism Spectrum Disorder 🠟

(see page 2)
Receive Autism
RASP: Registry of Autism Service Providers Funding: Under Age 6
(see page 9)

BPI: Behavioural Plan of Intervention 🠟

(see page 23) Contact ACT to learn about ASD
BC: Behaviour Consultant
intervention and how to hire
(see page 20) a service provider
SLP: Speech-Language Pathologist 🠟
(see page 20) Interview potential
OT: Occupational Therapist service providers
(see page 20) from RASP
PT: Physiotherapist
(see page 20)
🠟 🠟
Select a Behaviour Select an SLP, OT
Consultant (BC) from and PT from the
the RASP RASP, if needed for
🠟 your child
🠟
Provide a copy The BC develops a Behavioural Plan of
of BPI to MCFD Intervention, with input from the parents
and the child’s SLP, OT, and/or PT
🠟
Select Behaviour Interventionists
to implement the BPI, under the
supervision of the BC
🠟
Provide an The BC updates the
annual BPI to BPI regularly, based on
MCFD the child’s progress
12 A Parent’s Handbook: Your Guide to Autism Programs
Autism Funding: Ages 6 - 18 What can Autism Funding: Ages 6 – 18
The primary intent of Autism Funding: Ages 6 - 18 be used for?
is to assist families with the cost of purchasing Funding may be used to purchase a range of
autism intervention that will promote their child’s autism intervention services, designed to address
communication, social-emotional, academic and your child’s individual needs. For example, you
functional life skills development. may choose to use the funding for consultation
Families of children aged 6 to 18 with a diagnosis on a specific routine or behaviour issue that is
of ASD may receive up to 36,000 per year towards impacting your child or family. Some examples
eligible intervention services that are outside of of common routine issues are: toileting, bedtime,
the child’s school or educational program (please independent play, meal times, morning routines
see Best Practices on page 21). Up to 20 per cent and transportation issues.
of the annual funding may be used to purchase
Autism Funding: Ages 6 – 18
training, travel and equipment related to autism
may only be used for the following:
intervention.
• Behaviour consultants
• Speech-language pathologists, occupational
therapists, and physiotherapists
• Behaviour interventionists
• Life skills and social skills programs
• Out-of-school learning support/tutoring (not
part of the regular school program)
• Specialized therapeutic activities and
camps designed to address your child’s
ASD
• Dietary or nutritional counseling from a
registered dietician/nutritionist
• Family counseling/therapy
• Other interventions as recommended by a
professional/specialist (written pre-approval from
the Autism Funding Unit recommended)
• Administrative costs (e.g., bookkeeping services,
up to 350 monthly)
• Applicable employer costs (e.g., employee
income tax, Canada Pension Plan, Employment
Insurance and WorkSafeBC premiums, four per
cent vacation pay)
• Up to 20 per cent of the funding may be
used for training, travel costs to access autism
13
 intervention and training (round trip greater • Parking may be reimbursed up to a maximum
than 80 kms), and equipment as necessary for of 315 per day.
effective intervention, outlined in a Justification • Ferry and toll charges are eligible expenses.
for Equipment/Supplies form completed by
a professional/specialist (see the WEBLINK Equipment and materials
below or Autism Funding: Ages 6-18 - Ineligible related to intervention:
Expenses on page 16 for more information) Equipment and materials necessary for the child’s
intervention must be requested in a Justification
Training within B.C. for Equipment/Supplies form completed by a
(round trip greater than 80 kms): professional/specialist from the following list:
• Reimbursement for registration and travel costs
• Behaviour consultant
for parents or behaviour interventionists to
attend autism-specific training. • Physiotherapist
• Travel expenses may include actual fare for • Speech-language pathologist
air, bus or train travel, or mileage at 30.40 per • Occupational therapist
kilometre for a private vehicle. • Registered psychologist
• Hotel expenses to a maximum of 3100 per night • Registered psychological associate
are eligible. • Psychiatrist
• Parking may be reimbursed to a maximum of • Paediatrician
315 per day. • Neurologist
• Ferry and toll charges are eligible expenses.
Other avenues of funding for equipment
• Educational books, DVDs and videos for parents purchases or loans must be explored. Purchases
(specific to autism). must not duplicate those that would be approved
Travel costs to access under SET-BC, the At Home Program, other
autism intervention within B.C. agencies providing equipment or that are typical
(round trip greater than 80 kms): expense for a child. Please see the WEBLINK
• If you are unable to access service providers in below for more information on SET-BC.
your own community, you may claim expenses
for the most cost-effective method of receiving WEBLINKS
services
as close to home as possible.
Justification for Equipment/Supplies form:
• Options may include travel to the service provider www.mcf.gov.bc.ca/autism/programs/
or bringing the service provider to the community. forms.htm
• Travel expenses may include actual fare for air, bus
or train, or mileage at 30.40 per kilometre for a SET-BC: www.setbc.org
private vehicle.
• Hotel expenses to a maximum of 3100 per
night are eligible.

14 A Parent’s Handbook: Your Guide to Autism Programs

Autism Funding: Ages 6-18
Ineligible Expenses
Some interventions and equipment
recommended by a professional/specialist are
ineligible expenses. The following are examples of
ineligible items:
• Home repairs, renovations, swimming pools, hot
tubs, trampolines, playground equipment
• Household items, including appliances
• General recreation and sports enrolment fees
• Sports/fitness equipment, including bicycles
• Electronics, including televisions, CD players,
stereos, MP3 players, game systems, video
games, tracking devices and cellular phones/
palm pilots
• Non-ASD specific CDs, DVDs, and videos
• Musical instruments (purchase or rental)
• Vitamins, medical supplies, incontinence
supplies, orthotics
• Clothing, helmets
• Food (however, small reinforcers for Applied
Behaviour Analysis therapy may be eligible)
The following are examples of services that are
not eligible:
• Child care
• Respite
• Lessons (group or individual), such as swimming
and karate
• Medical services
• Services provided out of province
Not all ineligible expenses are listed. It is
recommended that families contact the Autism
Funding Unit at 1 877 777-3530 for pre-approval
before purchasing items.

15
Accessing Autism Programs
Step 1:
Once an assessment is completed, you will receive a BCAAN Clinical Tip for Parents
Outcomes form or a Non-BCAAN (Private) Diagnosis of ASD form. If the
form indicates a diagnosis of ASD and you would like to apply for autism Your child will be eligible
programs, it is important to contact the local MCFD office as soon as for funding from the first
possible to schedule a meeting with a CYSN Support Worker (see Contact day of the month that
Us on page 24). MCFD receives all required
documents. It is suggested
The following documents are required: that you mail or fax the
• The BCAAN Clinical Outcomes form or Non-BCAAN (Private) Diagnosis required documents to your
of ASD form, showing a diagnosis of ASD (see Diagnosis and local MCFD office before
Assessment on page 6 your meeting with a CYSN
• Proof of your child’s age (such as a birth certificate) Support Worker (see Contact
• Your child’s BC Care Card Us on page 24). The CYSN
Support Worker will review
• An Application for Autism Programs.
the documents to ensure
The Application for Autism Programs can be found at: www.mcf.gov. that they are complete.
bc.ca/autism/, or your CYSN Support Worker can provide you with one.

Step 2:
Your CYSN Support Worker will meet with you to: Tip for Parents
• Confirm your child’s eligibility for autism programs
In addition to autism
• Describe the autism programs, including the options available in your programs, MCFD provides a
community range of supports for families
• Discuss additional planning and support service available through of children and youth with
MCFD (please see the sidebar) special needs. The CYSN
Support Worker will provide
you with information about
these supports.

16 A Parent’s Handbook: Your Guide to Autism Programs

Funding
Parents are responsible for managing employment-
related expenses, such as Canada Pension Plan,
Invoice Payment
Employment Insurance and Workers’ Compensation
Through an Autism Invoice Payment Agreement,
Board premiums, where there is an employer/
funding is set aside in an “account” held within
employee relationship. MCFD cannot make these
government in the child’s name and payment is
payments on behalf of parents but can reimburse
provided directly to service providers for eligible
parents for these expenses.
intervention services.
Parents choose the service(s) they need and the Autism Funding Programs
service provider(s), and notify the Autism Funding and Parent Responsibilities
Unit using a Request to Pay Service Providers/
Suppliers form. (The non-profit agency ACT – The autism funding programs offer flexibility and
Autism Community Training maintains a Registry of choice to parents.
Service Providers that parents with children under It is important to know the responsibilities
six must choose from.) Service providers submit associated with these programs. Review the
invoices to the Autism Funding Unit for services parental obligations listed in your Autism Invoice
they have provided. Payment Agreement and request clarification from
MCFD is committed to paying all authorized the Autism Funding Unit if needed.
invoices within 30 days of their receipt, although Parents’ responsibilities include:
most are paid sooner. • Using the funds for eligible autism intervention
Currently, MCFD requires service providers to expenses and for no other purpose, in
submit invoices no more than once per month accordance with the terms of the funding
for authorized services that have already taken agreement and current program policies
place. Invoices received for future-dated services • Hiring and monitoring service providers
or for missed appointments are not eligible for • Ensuring all service providers are at least 19
funding through the Autism Funding Programs. years old and have a clear and current criminal
Service providers who provide services under record check
Invoice Payment have up to a maximum of six
• Determining whether an employer/employee
months after the date of service being provided
relationship exists between the parent and
to submit an invoice to the Autism Funding Unit
service providers
for payment.
• Meeting employer/employee obligations, including
Parents can contact the Autism Funding Unit at any complying with relevant employment standards
time to confirm the amount of funds remaining and paying Canada Pension Plan, Employment
in their child’s account. Insurance and Workers’ Compensation Board –
Autism funding agreements are automatically WorksafeBC premiums and other employer costs
renewed at the end of a child’s birth month. as required
17
• If the child is under age six:
• Submitting a copy of the child’s Behavioural WEBLINKS
Plan of Intervention within four months of Resources of assistance in determining
entering into the Autism Invoice Payment obligations as an employer and tax
Agreement information:
• Selecting professional service providers from Canada Revenue Agency
the Registry of Autism Service Providers (information specific to employment
• Submitting a Request to Pay Service Providers/ obligations) 1 800 959-5525
Suppliers form to the Autism Funding Unit for www.cra-arc.gc.ca/E/pub/tg/rc4110/
each service provider, indicating the maximum README.html
amount that the service provider can invoice
during the period listed on the Request to Pay Workers’ Compensation Board - WorkSafeBC
form. 1 888 922-2768
www.worksafebc.com/employers_and_
• Notifying the Autism Funding Unit within 30
small_business/overview/default.asp
days of any changes in address, child’s care or
custody, or any change in circumstances that Employment Standards Branch
may eliminate or reduce the need for funding Ministry of Labour and Citizen’s Services
• Additional responsibilities as noted in the 1 800 663-3316
Autism Invoice Payment Agreement (or in Prince George, call: 250 612-4100)
www.labour.gov.bc.ca/esb/
does-esa-apply.htm

Please note: The Autism Funding Unit is not

able to provide advice or answer questions
with regards to employer responsibilities or
taxation.

18 A Parent’s Handbook: Your Guide to Autism Programs

 Foster Parents Appeals
and Children In Care or Complaints
Children in care are eligible for autism programs. If you have a concern about the service provided
by If you think that a child or youth you are caring for the Autism Funding Unit, or about an
autism funding may have autism, discuss your concerns with their decision, contact the Autism
Funding Unit at guardianship worker. 1 877 777-3530. If your complaint is not resolved,
Services for children and youth with ASD contact the manager, Autism Funding Unit,
are delivered by MCFD. The child or youth’s at 1 877 777-3530.

guardianship worker completes the Autism

Funding Application (see the WEBLINK below). Confidentiality
CYSN Support Workers confirm eligibility and and Your Privacy
initiate access to autism funding. Some personal information about you and your
For information on health supports available for child is required to complete a diagnosis,
determine children in care, please see the Health Supports eligibility and provide ongoing
services. All
Guide accessible through the WEBLINK below. necessary personal information must be collected,
used and disclosed in accordance the Freedom of
WEBLINKS Information and Protection of Privacy Act (FOIPPA).
Application Form for Autism Funding:
www.mcf.gov.bc.ca/autism/programs/ WEBLINKS
forms.htm Freedom of Information and Protection of
Privacy Act:
Ministry of Children and Family Development:
www.qp.gov.bc.ca/statreg/stat/F/
Health Supports for Children in Care and
96165_00.htm
Youth Agreements:
www.mcf.gov.bc.ca/foster/pdf/
health_supports_cic.pdf
Tips For Parents
Who Will Be Working with My Child? WEBLINKS
Depending on the needs of your child his or her
therapy team may include: ACT – Autism Community Training for the
Registry of Autism Service Providers (RASP)
• Behaviour Consultant (BC): Designs and/or
and information on hiring professionals:
develops the individualized Behavioural Plan of
www.actcommunity.net
Intervention (BPI) and behaviour support plans,
and provides ongoing supervision of the plans. The British Columbia Association of Speech-
• Speech-Language Pathologist (SLP): Language Pathologists and Audiologists:
Provides services that focus on verbal and www.bcaslpa.ca
non- verbal communication skill development The College of Occupational Therapists of
and the oral-motor skills required for drinking British Columbia: www.cotbc.org
and eating. British Columbia Society of Occupational
• Occupational Therapist (OT): Provides Therapists: www.bcsot.org
services to promote the development of the The College of Physical Therapists of BC:
child’s highest attainable level of participation in www.cptbc.org
all daily activities
Physiotherapy Association of BC:
• Physiotherapist (PT): Provides services that
www.bcphysio.org
focus on the prevention, identification and
alleviation of movement dysfunction.
• Behaviour Interventionist(s) (BI):
Implements the BPI, under the supervision of
the Behavioural Consultant, typically on a one-
to-one basis.
When hiring professionals, select someone whose
training, experience and approach fits with the
needs and strengths of your child and family.
Understand what each person on your child’s
team will be doing, how much time they will
spend with you and your child, and what they
charge for their services. You should have a written
contract or agreement with the professionals
you hire. Information on selecting a professional
to work with your child is available from ACT –
Autism Community Training.
20 A Parent’s Handbook: Your Guide to Autism Programs
How Much Can I Expect to Pay How Do I Know My Child is Receiving
for Services? Quality Intervention?
The yellow box has guidelines to assist you and MCFD requires that interventions and programs
service providers in negotiating fees. These for children under age six be based on best
guidelines were developed in consultation practices. “Best practices” refers to interventions
with professionals and upon review of existing and approaches that are supported by evidence
guidelines developed by professional associations. and proven to be effective. These should also be
Although many factors may affect the fees used as a reference for children over age six.
charged by professionals, you can expect a
correlation between the rate and their credentials, Best Practices for Autism Intervention
education and experience. • Development of an individualized behavioural
plan of intervention based on a curriculum that
emphasizes: academic, communication, social/
Fee Guidelines play skills, emotional/self regulation, motor/
BC: 360 - 3100 per hour sensory functioning, independence/life skills
(Registered psychologists: • Intensive one-to-one intervention at home,
Up to 3150 per hour) in preschool programs and in a variety of
community settings on a year-round basis
OT: 380 - 3110 per hour • High levels of predictability and routine
• Highly supportive, structured teaching
SLP: 395 - 3120 per hour methods, based on the principles of applied
behaviour analysis (ABA), that incorporate a
PT: 364-74 per visit
variety of strategies to help your child acquire,
BI(s): 310 - 330 per hour generalize and maintain new skills
315 to 20 per hour is common. • Intervention progresses from more formal
and structured settings to more natural
Service providers’ rates may vary from environments
these guidelines. • Use of functional assessment and positive
behavioural support techniques to address
problem behaviours
• Collaboration between behaviour consultants
and therapists such as speech-language
pathology, occupational therapy and physical
therapy
• Interaction with typical children in preschool or
day-care settings
• Families are involved in the development,
implementation and review of intervention

21
 plans and receive training in order to help their
child progress
• Deliberate planning for the transition from
preschool to kindergarten
• Interventionists are trained
• Regular, ongoing monitoring of the child’s
progress

Adapted from the following publications: Dawson, G.

& Osterling, J. (1997). Early Intervention in Autism. In M.J.
Guralnick (Ed.), The Effectiveness of Early Intervention (pp.
307-326). Baltimore: Paul H. Brookes.
Lovaas, OI. Teaching Individuals with Developmental Delays.
Austin, TX: Pro-Ed.
National Research Council (2001). Educating Children with
Autism. Committee on Educational Interventions for Children
with Autism, Division of Behavioral and Social Sciences and
Education. Washington, DC: National Academy Press.

When choosing an intervention for your child, ask

the service provider:
• Is there research that shows this intervention is
effective, if so what kind of research is it?
• How will this intervention help my child
function better?
• How will my child’s progress be evaluated?
• What will be the measures and how often?
• How will the program be adjusted according to
my child’s progress?

Adapted from Jack, M., Ady, J. A Guide to Choosing

Interventions for Children with Autism Spectrum Disorders.
Alberta Centre For Child, Family & Community Research, 2006.

Information on selecting a professional to work

with your child is available from ACT – Autism WEBLINKS
Community Training (see the WEBLINK
ACT – Autism Community Training:
opposite).
www.actcommunity.net/AI/Treatment/
SelectPro.htm

22 A Parent’s Handbook: Your Guide to Autism Programs

What is a Behavioural Plan of
Intervention (BPI)?
A Behavioural Plan of Intervention
A behavioural plan of intervention (BPI) is an
(BPI) should:
individualized program designed for a specific
child that focuses on identifying areas where • Be completed within the framework of best
the child needs intervention. It is developed and practices
written by a behaviour consultant in collaboration • Be based on a developmental curriculum that
with the parents of the child, and includes input includes: identifying global goals for all areas of
from professionals who are members of the development (academic, communication, social
child’s team (e.g., speech-language pathologist, skills/play skills, motor/sensory functioning and
occupational therapist). independence/life skills)
A BPI is needed to put in place effective and • Identify specific goals within the global goals
suitable interventions for a child. The initial BPI • Include input from specific professionals who are
also establishes a baseline that states “where on the team, as appropriate
the child is now” and looks towards “where we • Identify the specific teaching strategies
want to go.” It is also a roadmap that or methods to be used to achieve each
outlines how intervention will proceed. Through goal
regular • Use ongoing data collection procedures
reviews, the plan measures the child’s progress. It to monitor the child’s progress and make
is important that parents are part of the planning adjustments to the child’s program based on this
and review processes. information
The BPI is required for children under the • Use a functional approach to challenging
age of six. Although a BPI is not required for behaviour
children older than six, it is recommended that • Identify team members (including their contact
intervention is always guided by a plan that is information) and their responsibilities to ensure
regularly reviewed. collaboration, communication and accountability
• List dates for regular review and updating of
the plan, based on the child’s individual needs
(e.g., some children may require reviews as
often as monthly)
• Include strategies for generalization and
maintenance of acquired skills across different
environments and ensure that these are regularly
addressed, monitored and updated
See page 27 for a Behavioural Plan of Intervention
(BPI) Template.
23
Contact Us
We are here to assist you and ensure you receive accurate and helpful information.

Autism Funding Unit

This unit is responsible for funding agreement processing, payments to families and service providers, and
financial reconciliation.
For inquiries regarding eligible expenses and parental responsibilities associated with funding agreements:
In Victoria: 250 387-3530
Toll-Free: 1 877 777-3530 (translation services available)
Fax: 250 356-8578
Web: www.mcf.gov.bc.ca/autism/index.htm
E-mail: MCF.AutismFundingUnit@gov.bc.ca
Mail: Autism Funding Unit
P.O. Box 9776
Victoria, B.C. V8W 9S5

Service BC
Service BC provides information and referral services for all provincial government programs and services
and can provide you with contact information for local ministry offices.
In Victoria: 250 387-6121
In Vancouver: 604 660-2421
Elsewhere in BC: 1 800 663-7867

24 A Parent’s Handbook: Your Guide to Autism Programs

Appendix 1 : B.C. Service and Autism Organizations
ACT – Autism Community Training Society Ministry of Children and Family Development
A not-for-profit society providing information and The ministry provides services and planning
training on a wide range of autism-related topics. support for children, youth and adults with
ACT also maintains the Registry of Autism Service developmental disabilities and for children and
Providers for the ministry. youth who have an Autism Spectrum Disorder
Tel: 604 205-5467, Toll-Free: 1 866 939-5188 diagnosis, or are eligible for the At Home
E-mail: info@actcommunity.net Program (children with severe disabilities).
Web: www.actcommunity.net Web: www.mcf.gov.bc.ca/autism/index.htm
The Autism Society of BC Families for Early Autism Treatment
A parent-based and directed society providing of British Columbia (FEAT of BC)
support to individuals with Autism Spectrum Information for parents and concerned
Disorder and their families in B.C. and the Yukon. professionals working for universal access to
Tel: 604 434-0880, Toll-Free: 1 888 437-0880 effective autism treatment.
E-mail: administrator@autismbc.ca E-mail: info@featbc.org
Web: www.autismbc.ca Web: www.featbc.org
BC Autism Assessment Network (BCAAN) – Family Support Institute
Provincial Health Services Authority A family-directed organization providing
Information on assessment/diagnosis of children information, training and province-wide
who may have Autism Spectrum Disorder. networking to assist families and their communities.
Tel: 604 453-8343 Tel: 604 540-8374
E-mail: autism@phsa.ca E-mail: fsi@bcacl.org
Web: www.phsa.ca/AgenciesAndServices/ Web: www.familysupportbc.com
Services/Autism/default.htm
The Knowledge Network
Canada Revenue Agency Provides information about autism and treatment
Canada Revenue Agency has information for options available in B.C.
individual income tax enquiries as well as specific Web: www.knowledgenetwork.ca/
information on topics and services that may be of autism/index.html
interest to individuals with disabilities.
Toll-free: 1 800 959-8281 Ministry of Children and Family Development
Web: www.cra-arc.gc.ca/disability Children and Youth with Special Needs
Information on autism funding and programs:
Web: www.mcf.gov.bc.ca/autism/index.htm
Information on other programs for children and
youth with special needs:
Web: www.mcf.gov.bc.ca/spec_needs/index.htm

25
Ministry of Education
Special Education: Autism
Information on special education programs and
autism initiatives.
Web: www.bced.gov.bc.ca/specialed/
sped_res_docs.htm
Ministry of Health Services
Access to an evidence-based report: Standards and
Guidelines for Assessment and Diagnosis of Young
Children with Autism Spectrum Disorder in B.C.
Tel: 250 952-1742, Toll-Free: 1 800 465-4911
Web: www.health.gov.bc.ca/library/publications/
year/2003/asd_standards_0318.pdf
Provincial Outreach Program for Autism
and Related Disorders (POPARD)
An educational organization to help teachers,
parents and para-professionals access
information about autism and the B.C. school
system’s available resources.
Web: www.autismoutreach.ca
SET – BC
Provides resources and training for assistive
technology used in the school setting.
Tel: 604 261-9450
Web: www.setbc.org

26 A Parent’s Handbook: Your Guide to Autism Programs

Appendix 2: Behavioural Plan of Intervention
(required for children under age 6)

Name of child: Child’s date of birth:

Name of parent(s)/guardian(s): Today’s date: Date to review/update plan:

Professionals involved in the child’s program

Title Name Role & Responsibilities Contact information
Behaviour consultant

Occupational therapist

Physiotherapist

Speech language pathologist

Supported Child Development
consultant
Supported Child Development
worker
Preschool/daycare supervisor

Behaviour interventionist(s)

Other

Family Goals:
1.

2.

3.

4.

5.
The following is a list of domain areas that need to be addressed in the behavioural plan of intervention. With
collaboration from family and professionals who are members of the child’s intervention team, identify: specific
goals/objectives, teaching procedures, measurable outcomes/mastery criterion for each domain and which family
goal this objective is addressing.
DOMAIN Specific Goals/ Teaching Procedures Measurable Family Goal
Objectives Outcomes/
Mastery Criterion
Social skills

Play skills

Communication

Emotional functioning/
Self regulation

Academics/ cognition

Fine & gross

motor/ sensory
functioning

Life skills

Behaviour Consultant (please print) Signature of Behaviour Consultant

(In signing I confirm that I have assessed the child’s skill level and will monitor his/her program)

Parent (please print) Signature of parent

(In signing I agree the behavioural plan of intervention addresses my family’s and child’s needs)
Appendix 3: Autism Funding – Summary of Eligible Expenses
Autism Funding: Under Age 6
may only be used for: • Applicable employer costs (e.g., employee
income tax, Canada Pension Plan, Employment
• Services of behaviour consultants, speech- Insurance and Workers Compensation Board
language pathologists, occupational therapists, premiums, four per cent vacation pay).
and physiotherapists who are listed on the
Registry of Autism Service Providers (RASP), at Up to 20 per cent of BOTH Autism Funding:
www.actcommunity.net/. Under Age 6 and Autism Funding: Ages 6-18
• Behaviour interventionists may be used for:
• Administrative costs (up to 3100 monthly). • Training within B.C.
• Applicable employer costs (e.g., employee • Travel costs to access autism intervention or
income tax, Canada Pension Plan, Employment training within B.C.
Insurance and Workers Compensation Board (round trip greater than 80 kms)
premiums, four per cent vacation pay). • Equipment, as necessary for effective
intervention, outlined in a Justification for
Autism Funding: Ages 6 – 18
Equipment/Supplies form, from a professional/
may only be used for:
specialist—pre-approval suggested
• Behaviour consultants
• Speech-language pathologists, occupational Please note: A professional/specialist is defined
therapists, physiotherapists as a behaviour consultant, physiotherapist,
speech-language pathologist, paediatrician,
• Behaviour interventionists
psychiatrist, registered psychologist, registered
• Life skills and social skills programs psychological associate, neurologist or
• Out-of-school support/tutoring (not part of occupational therapist.
regular school program)
Call 1 877 777-3530
• Specialized therapeutic activities and camps for further information.
designed to address your child’s ASD
• Dietary or nutritional counselling from a
registered dietician/nutritionist
• Family counseling/therapy
• Other interventions recommended by
a professional/specialist—pre-approval
suggested
• Administrative costs (up to 350 monthly).

29
Appendix 4: Autism Funding – Summary of Ineligible Expenses
Please note: Some interventions and equipment
recommended by a professional/specialist are
ineligible expenses. The following are examples of
items that are ineligible expenses:
• Home repairs, renovations, swimming pools, hot
tubs, trampolines, playground equipment
• Household items, including appliances
• General recreation and sports enrolment fees
• Sports/fitness equipment, including bicycles
• Electronics, including televisions, CD players,
stereos, MP3 players, game systems, video
games, tracking devices, and cellular phones/
palm pilots
• Non-ASD specific CDs, DVDs, and videos
• Musical instruments (purchase or rental)
• Vitamins, medical supplies, incontinence
supplies, orthotics
• Clothing, helmets
• Food (however, small reinforcers for Applied
Behaviour Analysis therapy may be eligible)

The following are examples of services that are

not eligible:
• Child care
• Respite
• Lessons (group or individual), such as swimming
and karate
• Medical services

• Services provided out of province

Not all ineligible expenses are listed. It is

recommended that families contact the
Autism Funding Unit at 1 877 777-3530
for pre-approval before purchasing
items.
30 A Parent’s Handbook: Your Guide to Autism Programs