research-article

ACES: promoting empathy towards aphasia through language distortion emulation software

Authors:

Joshua Hailpern,

Marina Danilevsky,

Karrie Karahalios,

Julie HengstAuthors Info & Claims

CHI '11: Proceedings of the SIGCHI Conference on Human Factors in Computing Systems

Pages 609 - 618

https://doi.org/10.1145/1978942.1979029

Published: 07 May 2011 Publication History

Abstract

Individuals with aphasia, an acquired communication disorder, constantly struggle against a world that does not understand them. This lack of empathy and understanding negatively impacts their quality of life. While aphasic individuals may appear to have lost cognitive functioning, their impairment relates to receptive and expressive language, not to thinking processes. We introduce a novel system and model, Aphasia Characteristics Emulation Software (ACES), enabling users (e.g., caregivers, speech therapists and family) to experience, firsthand, the communication-distorting effects of aphasia. By allowing neurologically typical individuals to "walk in another's shoes," we aim to increase patience, awareness and understanding. ACES was grounded in the communication science and psychological literature, and informed by an initial pilot study. Results from an evaluation of 64 participants indicate that ACES provides a rich experience that increases understanding and empathy for aphasia.

References

[1]

Benson, D. F. Aphasia, Alexia and Agraphia: Clinical Neurology and Neurosurgery Monographs. Churchill Livingstone, New York, 1979.

[2]

Benson, D. F. The neurology of thinking. Oxford University Press, USA, 1994.

[3]

Boyd-Graber, J. L. et al. Participatory design with proxies: developing a desktop-PDA system to support people with aphasia. In In Proceedings of the CHI 06 (2006). ACM, Montreal, Canada.

Digital Library

[4]

Bruno Martins. JaSpell. http://jaspell.sourceforge.net/.

[5]

Chapey, R. Language intervention strategies in aphasia and related neurogenic communication disorders. Lippincott Williams &#38; Wilkins, 2001.

[6]

Czvik, P. S. Assessment of family attitudes toward aphasic patients with severe auditory processing disorders. In Proceedings of Clinical Aphasiology (1977).

[7]

Daemen, E. et al. Designing a free style, indirect, and interactive storytelling application for people with aphasia. INTERACT 2007, 2010, 221--234.

Digital Library

[8]

Devlin, S. and Unthank, G. Helping aphasic people process online information. In Proc. of Assets '06 (2006). ACM, Portland, Oregon, USA New York, NY, USA.

Digital Library

[9]

Doerksen, S. Recreation for Persons with Disabilities (RPM 277). Pennsylvania State University Department of Recreation, Park and Tourism Management, Fall, 2009.

[10]

Dymond, R. F. A scale for the measurement of empathic ability. Journal of Consulting Psychology, 13(2), 1949, 127--133.

[11]

Furbacher, E. A. and Wertz, R. T. Simulation of Aphasia by Wives of Aphasic Patients. Clinical aphasiology, 1983, 227.

[12]

Goodglass, H., Goodglass, Kaplan. Boston Diagnostic Aphasia Examination: Stimulus Cards--Short Form. Lippincott Williams &#38; Wilkins, 2001.

[13]

H. Goodglass and Kaplan, E. The Assessment of Aphasia and Other Neurological Disorders. Williams and Wilkins, Baltimore, MD, 1983.

[14]

Hugo Liu, Aingh, Push, and Eslick, Ian. ConceptNet. (http://web.media.mit.edu/~hugo/conceptnet/.

[15]

Hengst, J. Augmentative and Alternative Communication (SHS 473). University of Illinois Department of Speech and Hearing Science, Spring, 2005.

[16]

Kitzing, P., Maier, A., and &#197;hlander, V. L. Automatic speech recognition (ASR) and its use as a tool for assessment or therapy of voice, speech, and language disorders. Logopedics Phonatrics Vocology, 34(2), 2009, 91--96.

[17]

Liechty, J. A. and Heinzekehr, J. B. Caring for Those Without Words: A Perspective on Aphasia. The Journal of Neuroscience Nursing, 39(5), 2007, 316.

[18]

Sarno, M. T. Acquired aphasia (Third Edition). Academic Press, San Diego, CA, 1998.

[19]

Martin Porter. Snowball: A language for stemming algorithms. 2010, http://snowball.tartarus.org/.

[20]

McCall, D. et al. Integrating technology and targeted treatment to improve narrative production in aphasia: A case study. Aphasiology, 23(4), 2009, 438--461.

[21]

McQuiggan, S. W. and Lester, J. C. Learning empathy: A data-driven framework for modeling empathetic companion agents. In Proceedings of Autonomous Agents and Multiagent Systems (2006). ACM, New York, NY.

Digital Library

[22]

Mehrabian, A. and Epstein, N. A measure of emotional empathy. Journal of personality, 40(4), 1972, 525--543.

[23]

Moffatt, K. et al. The participatory design of a sound and image enhanced daily planner for people with aphasia. In Proceedings of CHI 04 (2004). ACM, NY.

Digital Library

[24]

Mullennix, J. and Stern, S. Computer Synthesized Speech Technologies: Tools for Aiding Impairment. Medical Information Science Reference, Hershey, PA, 2010.

Digital Library

[25]

National Institute on Deafness and Other Communication Disorders. Aphasia. 2010, (http://www.nidcd.nih.gov/health/voice/aphasia.htm.

[26]

Schwartz, M. F. et al. A case-series test of the interactive two-step model of lexical access: Evidence from picture naming. Journal of Memory and Language, 54(2), 2006, 228--264.

[27]

Shewan, C. M. and Kertesz, A. Reliability and validity characteristics of the Western Aphasia Battery (WAB). Journal of Speech and Hearing Disorders, 45(3), 1980, 308.

[28]

Shill, M. A. Motivational factors in aphasia therapy: Research suggestions. Journal of Communication Disorders, 12(6), 1979, 503--517.

[29]

Stotland, E. Exploratory investigations of empathy. Advances in experimental social psychology, 4, 1969, 271--314.

[30]

van de Sandt-Koenderman, M., Wiegers, J., and Hardy, P. A computerised communication aid for people with aphasia. Disability &#38; Rehabilitation, 27(9), 2005, 529--533.

[31]

Weizenbaum, J. Contextual understanding by computers. Communications of the ACM, 10(8), 1967, 480.

Digital Library

[32]

Zion Software. JBuddy Messenger. (http://www.zionsoftware.com/products/messenger/.

Cited By

Griffey HLaures-Gore J(2024)Ratings of perceived stress in persons with aphasia by unfamiliar proxy reporters, proxy reporter self-reported perceived stress, stress contagion, and trait empathyAphasiology10.1080/02687038.2024.231584238:9(1509-1526)Online publication date: 11-Feb-2024
https://doi.org/10.1080/02687038.2024.2315842
Chen RWhite F(2024)The future of prejudice reduction researchComputers in Human Behavior10.1016/j.chb.2023.108073152:COnline publication date: 14-Mar-2024
https://dl.acm.org/doi/10.1016/j.chb.2023.108073
Jain GTeng YCho DXing YAziz MSmith B(2023)"I Want to Figure Things Out": Supporting Exploration in Navigation for People with Visual ImpairmentsProceedings of the ACM on Human-Computer Interaction10.1145/35794967:CSCW1(1-28)Online publication date: 16-Apr-2023
https://dl.acm.org/doi/10.1145/3579496
Show More Cited By

Index Terms

ACES: promoting empathy towards aphasia through language distortion emulation software

Index terms have been assigned to the content through auto-classification.

Recommendations

ACES: a cross-discipline platform and method for communication and language research
CSCW '13: Proceedings of the 2013 conference on Computer supported cooperative work

While conducting research focused on individuals with impairments is vitally important, such experiments often have high costs (time and money), and researchers may be limited in the instructions they can give, or participant feedback they can gather (...
ACES: aphasia emulation, realism, and the turing test
ASSETS '11: The proceedings of the 13th international ACM SIGACCESS conference on Computers and accessibility

To an outsider it may appear as though an individual with aphasia has poor cognitive function. However, the problem resides in the individual's receptive and expressive language, and not in their ability to think. This misperception, paired with a lack ...
Interdependent components of web accessibility
W4A '05: Proceedings of the 2005 International Cross-Disciplinary Workshop on Web Accessibility (W4A)

Increasingly, the Web is providing unprecedented access to information and interaction for people with disabilities. However, the Web will not be equally accessible, allowing people with disabilities to access and contribute to the Web, until:• ...

Comments

Information & Contributors

Information

Published In

cover image ACM Conferences

CHI '11: Proceedings of the SIGCHI Conference on Human Factors in Computing Systems

May 2011

3530 pages

ISBN:9781450302289

DOI:10.1145/1978942

General Chair:
Desney Tan
Microsoft Research
,
Program Chairs:
Geraldine Fitzpatrick
Vienna University of Technology
,
Carl Gutwin
University of Saskatchewan
,
Bo Begole
PARC
,
Wendy A. Kellogg
IBM Research

Copyright © 2011 ACM.

Permission to make digital or hard copies of all or part of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for components of this work owned by others than ACM must be honored. Abstracting with credit is permitted. To copy otherwise, or republish, to post on servers or to redistribute to lists, requires prior specific permission and/or a fee. Request permissions from [email protected]

Sponsors

SIGCHI: ACM Special Interest Group on Computer-Human Interaction

Publisher

Association for Computing Machinery

New York, NY, United States

Publication History

Published: 07 May 2011

Permissions

Request permissions for this article.

Request Permissions

Check for updates

Author Tags

Qualifiers

Research-article

Conference

CHI '11

Sponsor:

SIGCHI

CHI '11: CHI Conference on Human Factors in Computing Systems

May 7 - 12, 2011

BC, Vancouver, Canada

Acceptance Rates

CHI '11 Paper Acceptance Rate 410 of 1,532 submissions, 27%;

Overall Acceptance Rate 6,199 of 26,314 submissions, 24%

Contributors

Other Metrics

View Article Metrics

Bibliometrics & Citations

Bibliometrics

Article Metrics

28
Total Citations
View Citations
575
Total Downloads

Downloads (Last 12 months)39
Downloads (Last 6 weeks)2

Reflects downloads up to 06 Oct 2024

Other Metrics

View Author Metrics

Citations

Cited By

Griffey HLaures-Gore J(2024)Ratings of perceived stress in persons with aphasia by unfamiliar proxy reporters, proxy reporter self-reported perceived stress, stress contagion, and trait empathyAphasiology10.1080/02687038.2024.231584238:9(1509-1526)Online publication date: 11-Feb-2024
https://doi.org/10.1080/02687038.2024.2315842
Chen RWhite F(2024)The future of prejudice reduction researchComputers in Human Behavior10.1016/j.chb.2023.108073152:COnline publication date: 14-Mar-2024
https://dl.acm.org/doi/10.1016/j.chb.2023.108073
Jain GTeng YCho DXing YAziz MSmith B(2023)"I Want to Figure Things Out": Supporting Exploration in Navigation for People with Visual ImpairmentsProceedings of the ACM on Human-Computer Interaction10.1145/35794967:CSCW1(1-28)Online publication date: 16-Apr-2023
https://dl.acm.org/doi/10.1145/3579496
Depradine C(2023)Introducing Inclusive Design by Showing the Effects of Impaired Environments on Neurodiverse Users2023 IEEE Gaming, Entertainment, and Media Conference (GEM)10.1109/GEM59776.2023.10390238(1-6)Online publication date: 19-Nov-2023
https://doi.org/10.1109/GEM59776.2023.10390238
Daher KSaad DMugellini ELalanne DAbou Khaled O(2022)Empathic and Empathetic Systematic Review to Standardize the Development of Reliable and Sustainable Empathic SystemsSensors10.3390/s2208304622:8(3046)Online publication date: 15-Apr-2022
https://doi.org/10.3390/s22083046
Neate TKladouchou VWilson SShams S(2022)“Just Not Together”: The Experience of Videoconferencing for People with Aphasia during the Covid-19 PandemicProceedings of the 2022 CHI Conference on Human Factors in Computing Systems10.1145/3491102.3502017(1-16)Online publication date: 29-Apr-2022
https://dl.acm.org/doi/10.1145/3491102.3502017
Pratte S(2022)Designing Fashion Technology Garments for AwarenessProceedings of the Sixteenth International Conference on Tangible, Embedded, and Embodied Interaction10.1145/3490149.3503580(1-6)Online publication date: 13-Feb-2022
https://dl.acm.org/doi/10.1145/3490149.3503580
Laures-Gore JLamb KRice K(2022)Empathy, Post-Stroke Aphasia, and Speech-Language Pathology StudentsAphasiology10.1080/02687038.2022.204625437:6(854-868)Online publication date: 30-Mar-2022
https://doi.org/10.1080/02687038.2022.2046254
Maeda KAoyama KWatanabe MHirose MIto KAmemiya T(2022)VisionPainter: Authoring Experience of Visual Impairment in Virtual RealityHuman Interface and the Management of Information: Applications in Complex Technological Environments10.1007/978-3-031-06509-5_20(280-295)Online publication date: 26-Jun-2022
https://dl.acm.org/doi/10.1007/978-3-031-06509-5_20
Pratte STang AOehlberg LKaltenbrunner MMurer MWolf KOakley I(2021)Evoking Empathy: A Framework for Describing Empathy ToolsProceedings of the Fifteenth International Conference on Tangible, Embedded, and Embodied Interaction10.1145/3430524.3440644(1-15)Online publication date: 14-Feb-2021
https://dl.acm.org/doi/10.1145/3430524.3440644
Show More Cited By

View Options

Get Access

Login options

Check if you have access through your login credentials or your institution to get full access on this article.

Full Access

Get this Publication

View options

PDF

View or Download as a PDF file.

eReader

View online with eReader.

Media

Figures

Other

Tables

View Table of Contents