research-article

Personal Informatics in Interpersonal Contexts: Towards the Design of Technology that Supports the Social Ecologies of Long-Term Mental Health Management

Authors:

Elizabeth L. Murnane,

Tara G. Walker,

Jaime SnyderAuthors Info & Claims

Proceedings of the ACM on Human-Computer Interaction, Volume 2, Issue CSCW

Article No.: 127, Pages 1 - 27

https://doi.org/10.1145/3274396

Published: 01 November 2018 Publication History

Abstract

Personal informatics systems for supporting health largely grew out of a "self"-centric orientation: self-tracking, self-reflection, self-knowledge, self-experimentation, self-improvement. Health management, however, even when self-driven, is inherently social and depends on a person's direct relationships and broader sociocultural contexts, as an emerging line of research is coming to recognize, study, and support. This is particularly true in the case of mental health. In this paper, we engage with individuals managing the serious mental illness bipolar disorder and members of their support circles to (a) identify key social relations and the roles they play in condition management, (b) characterize patients' complex interactions with these relations (e.g., positive or negative, direct or peripheral, steady or unstable), and (c) understand how personal informatics mediates these recovery relations. Based on these insights, we offer a model of this social ecology, along with design implications for personal informatics systems that are sensitive to these interpersonal contexts.

References

[1]

Tim Althoff, Rok Sosivc, Jennifer L. Hicks, Abby C. King, Scott L. Delp, and Jure Leskovec. 2017. Large-scale physical activity data reveal worldwide activity inequality. Nature, Vol. 547 (July 2017), 336.

[2]

Eirik Årsand and George Demiris. 2008. User-centered methods for designing patient-centric self-help tools. Informatics for Health and Social Care, Vol. 33, 3 (2008), 158--169.

[3]

Ross J Baldessarini and Leonardo Tondo. 2003. Suicide risk and treatments for patients with bipolar disorder. JAMA, Vol. 290, 11 (2003), 1517--1519.

[4]

Stinne Aaløkke Ballegaard, Thomas Riisgaard Hansen, and Morten Kyng. 2008. Healthcare in everyday life: designing healthcare services for daily life. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems. ACM, 1807--1816.

Digital Library

[5]

Jakob E Bardram, Mads Frost, Károly Szántó, Maria Faurholt-Jepsen, Maj Vinberg, and Lars Vedel Kessing. 2013. Designing mobile health technology for bipolar disorder: a field trial of the monarca system. In Proceedings of the SIGCHI conference on human factors in computing systems. ACM, 2627--2636.

Digital Library

[6]

Jakob E Bardram and Mads M Frost. 2017. Double-loop health technology: enabling socio-technical design of personal health technology in clinical practice. In Designing Healthcare That Works . Elsevier, 167--186.

[7]

Irán Barrera. 2008. An ecological systems theory approach in looking at mental health care barriers in the Latino community . Ph.D. Dissertation. The University of Texas at Arlington.

[8]

David Barton and Carmen KM Lee. 2012. Redefining vernacular literacies in the age of Web 2.0. Applied linguistics, Vol. 33, 3 (2012), 282--298.

[9]

Marc Berg. 1999. Accumulating and coordinating: occasions for information technologies in medical work. Computer Supported Cooperative Work (CSCW), Vol. 8, 4 (1999), 373--401.

Digital Library

[10]

Andrew BL Berry, Catherine Lim, Andrea L Hartzler, Tad Hirsch, Edward H Wagner, Evette Ludman, and James D Ralston. 2017. How values shape collaboration between patients with multiple chronic conditions and spousal caregivers. In Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems. ACM, 5257--5270.

Digital Library

[11]

Joyce Bierbooms, Hans Van Oers, Jeroen Rijkers, and Inge Bongers. 2016. Development of a comprehensive model for stakeholder management in mental healthcare. Journal of health organization and management, Vol. 30, 4 (2016), 630--647.

[12]

Matthew J Bietz, Cinnamon S Bloss, Scout Calvert, Job G Godino, Judith Gregory, Michael P Claffey, Jerry Sheehan, and Kevin Patrick. 2015. Opportunities and challenges in the use of personal health data for health research. Journal of the American Medical Informatics Association, Vol. 23, e1 (2015), e42--e48.

[13]

Dale E Brashers, Daena J Goldsmith, and Elaine Hsieh. 2002. Information seeking and avoiding in health contexts. Human Communication Research, Vol. 28, 2 (2002), 258--271.

[14]

Urie Bronfenbrenner. 1979. The ecology of human development: Experiments by nature and design . Technical Report.

[15]

Urie Bronfenbrenner. 1992. Ecological systems theory. Jessica Kingsley Publishers.

[16]

Finn Brunton and Helen Nissenbaum. 2011. Vernacular resistance to data collection and analysis: A political theory of obfuscation. First Monday, Vol. 16, 5 (2011).

[17]

Yunan Chen, Karen Cheng, Charlotte Tang, Katie A Siek, and Jakob E Bardram. 2013. Is my doctor listening to me? Impact of health IT systems on patient-provider interaction. In CHI'13 Extended Abstracts on Human Factors in Computing Systems. ACM, 2419--2426.

Digital Library

[18]

Cynthia Cheung, Matthew J Bietz, Kevin Patrick, and Cinnamon S Bloss. 2016. Privacy attitudes among early adopters of emerging health technologies. PLOS One, Vol. 11, 11 (2016), e0166389.

[19]

Chia-Fang Chung, Elena Agapie, Jessica Schroeder, Sonali Mishra, James Fogarty, and Sean A Munson. 2017. When personal tracking becomes social: Examining the use of Instagram for healthy eating. In Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems. ACM, 1674--1687.

Digital Library

[20]

Chia-Fang Chung, Kristin Dew, Allison Cole, Jasmine Zia, James Fogarty, Julie A Kientz, and Sean A Munson. 2016. Boundary negotiating artifacts in personal informatics: Patient-provider collaboration with patient-generated data. In Proceedings of the 19th ACM Conference on Computer-Supported Cooperative Work & Social Computing. ACM, 770--786.

Digital Library

[21]

Ellen P Cook. 2015. Understanding people in context: The ecological perspective in counseling .John Wiley & Sons.

[22]

Patrick W Corrigan and Deepa Rao. 2012. On the self-stigma of mental illness: Stages, disclosure, and strategies for change. The Canadian Journal of Psychiatry, Vol. 57, 8 (2012), 464--469.

[23]

Gavin Doherty, Joseph McKnight, and Saturnino Luz. 2010. Fieldwork for requirements: Frameworks for mobile healthcare applications. International Journal of Human-Computer Studies, Vol. 68, 10 (2010), 760--776.

Digital Library

[24]

Serge Egelman, Andrew Oates, and Shriram Krishnamurthi. 2011. Oops, I did it again: mitigating repeated access control errors on facebook. In Proceedings of the SIGCHI conference on Human Factors in Computing Systems. ACM, 2295--2304.

Digital Library

[25]

Stefan Rennick Egglestone, Lesley Axelrod, Thomas Nind, Ruth Turk, Anna Wilkinson, Jane Burridge, Geraldine Fitzpatrick, Sue Mawson, Zoe Robertson, Ann Marie Hughes, et almbox. 2009. A design framework for a home-based stroke rehabilitation system: Identifying the key components. In Pervasive Computing Technologies for Healthcare . IEEE, 1--8.

[26]

Daniel Epstein, Felicia Cordeiro, Elizabeth Bales, James Fogarty, and Sean Munson. 2014. Taming data complexity in lifelogs: exploring visual cuts of personal informatics data. In Proceedings of the 2014 conference on Designing interactive systems. ACM, 667--676.

Digital Library

[27]

Daniel A Epstein, Alan Borning, and James Fogarty. 2013. Fine-grained sharing of sensed physical activity: a value sensitive approach. In Proceedings of the 2013 ACM international conference on Pervasive and ubiquitous computing . 489--498.

Digital Library

[28]

Daniel A Epstein, Bradley H Jacobson, Elizabeth Bales, David W McDonald, and Sean A Munson. 2015a. From nobody cares to way to go!: A Design Framework for Social Sharing in Personal Informatics. In Proceedings of the 18th ACM Conference on Computer Supported Cooperative Work & Social Computing. ACM, 1622--1636.

Digital Library

[29]

Daniel A Epstein, An Ping, James Fogarty, and Sean A Munson. 2015b. A lived informatics model of personal informatics. In Proceedings of the 2015 ACM International Joint Conference on Pervasive and Ubiquitous Computing. ACM, 731--742.

Digital Library

[30]

Geraldine Fitzpatrick. 2011. New challenges for health IT--Design fit for life. In Proceedings of the First European Conference on Design, Vol. 4. 121--135.

[31]

Geraldine Fitzpatrick and Gunnar Ellingsen. 2013. A review of 25 years of CSCW research in healthcare: contributions, challenges and future agendas. Computer Supported Cooperative Work (CSCW), Vol. 22, 4--6 (2013), 609--665.

Digital Library

[32]

Ellen Frank, Holly A Swartz, and Elaine Boland. 2007. Interpersonal and social rhythm therapy: an intervention addressing rhythm dysregulation in bipolar disorder. Dialogues in clinical neuroscience, Vol. 9, 3 (2007), 325.

[33]

Jon Froehlich, Mike Y Chen, Sunny Consolvo, Beverly Harrison, and James A Landay. 2007. MyExperience: a system for in situ tracing and capturing of user feedback on mobile phones. In Proceedings of the 5th international conference on Mobile systems, applications and services. ACM, 57--70.

Digital Library

[34]

Mads Frost, Afsaneh Doryab, Maria Faurholt-Jepsen, Lars Vedel Kessing, and Jakob E Bardram. 2013. Supporting disease insight through data analysis: refinements of the monarca self-assessment system. In Proceedings of the 2013 ACM international joint conference on Pervasive and ubiquitous computing. ACM, 133--142.

Digital Library

[35]

Erving Goffman. 1963. Stigma: Notes on a spoiled identity. Jenkins, JH & Carpenter (1963).

[36]

Frederick K Goodwin and Kay Redfield Jamison. 2007. Manic-depressive illness: bipolar disorders and recurrent depression. Vol. 1. Oxford University Press.

[37]

Franz Gravenhorst, Amir Muaremi, Jakob Bardram, Agnes Grünerbl, Oscar Mayora, Gabriel Wurzer, Mads Frost, Venet Osmani, Bert Arnrich, Paul Lukowicz, et almbox. 2015. Mobile phones as medical devices in mental disorder treatment: an overview. Personal and Ubiquitous Computing, Vol. 19, 2 (2015), 335--353.

Digital Library

[38]

Kathryn Greene, Valerian J Derlega, and Alicia Mathews. 2006. Self-disclosure in personal relationships. The Cambridge handbook of personal relationships (2006), 409--427.

[39]

Erik Grönvall and Nervo Verdezoto. 2013. Beyond self-monitoring: understanding non-functional aspects of home-based healthcare technology. In Proceedings of the 2013 ACM international joint conference on Pervasive and ubiquitous computing . 587--596.

Digital Library

[40]

Vigdis Heimly. 2010. How can the Locales Framework be used as basis for design of collaborative systems in shared health care?. In Collaborative Technologies and Systems (CTS), 2010 International Symposium on. IEEE, 207--215.

[41]

Bernie Hogan. 2010. The presentation of self in the age of social media: Distinguishing performances and exhibitions online. Bulletin of Science, Technology & Society, Vol. 30, 6 (2010), 377--386.

[42]

Steven Houben, Mads Frost, and Jakob E Bardram. 2015. Collaborative affordances of hybrid patient record technologies in medical work. In Proceedings of the 18th ACM Conference on Computer Supported Cooperative Work & Social Computing. 785--797.

Digital Library

[43]

Edwin Hutchins. 1995. Cognition in the Wild .MIT press.

[44]

Maree L Inder, Marie T Crowe, Peter R Joyce, Stephanie Moor, Janet D Carter, and Sue E Luty. 2010. “I really don't know whether it is still there”: ambivalent acceptance of a diagnosis of bipolar disorder. Psychiatric Quarterly, Vol. 81, 2 (2010), 157--165.

[45]

Maree L Inder, Marie T Crowe, Stephanie Moor, Suzanne E Luty, Janet D Carter, and Peter R Joyce. 2008. “I actually don't know who I am”: The impact of bipolar disorder on the development of self. Psychiatry: Interpersonal and Biological Processes, Vol. 71, 2 (2008), 123--133.

[46]

Maia L Jacobs, James Clawson, and Elizabeth D Mynatt. 2015. Comparing health information sharing preferences of cancer patients, doctors, and navigators. In Proceedings of the 18th ACM Conference on Computer Supported Cooperative Work & Social Computing. ACM, 808--818.

Digital Library

[47]

Yuan Jia, Likun Liu, Xing Yu, and Stephen Voida. 2017. Designing leaderboards for gamification: Considering perceived differences based on user ranking, application domain, and personality traits. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI 2017) . ACM Press, New York, 1949--1960.

Digital Library

[48]

David A Kahn, Gary S Sachs, David J Printz, Daniel Carpenter, John P Docherty, and Ruth Ross. 2000. Medication treatment of bipolar disorder 2000: a summary of the expert consensus guidelines. Journal of Psychiatric Practice®, Vol. 6, 4 (2000), 197--211.

[49]

Elizabeth Kaziunas and Mark S Ackerman. 2015. Designing for lived health: A practice-based approach for person-centered health information technologies. In Designing socially embedded technologies in the real-world. Springer, 357--381.

[50]

Elizabeth Kaziunas, Mark S Ackerman, Silvia Lindtner, and Joyce M Lee. 2017. Caring through Data: Attending to the Social and Emotional Experiences of Health Datafication. In CSCW. 2260--2272.

Digital Library

[51]

Christina Kelley, Bongshin Lee, and Lauren Wilcox. 2017. Self-tracking for Mental Wellness: Understanding Expert Perspectives and Student Experiences. In Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems. ACM, 629--641.

Digital Library

[52]

Helen Kennedy, Rosemary Lucy Hill, Giorgia Aiello, and William Allen. 2016. The work that visualisation conventions do. Information, Communication & Society, Vol. 19, 6 (2016), 715--735.

[53]

Elisabeth Kersten-van Dijk and Wijnand A IJsselsteijn. 2016. Design Beyond the Numbers: Sharing, Comparing, Storytelling and the Need for a Quantified Us. IxD&A, Vol. 29 (2016), 121--135.

[54]

KR Krishnan. 2005. Psychiatric and medical comorbidities of bipolar disorder. Psychosomatic medicine, Vol. 67, 1 (2005), 1--8.

[55]

David J Kupfer, Ellen Frank, Victoria J Grochocinski, Patricia A Cluss, Patricia R Houck, and Debra A Stapf. 2002. Demographic and clinical characteristics of individuals in a bipolar disorder case registry. Journal of Clinical Psychiatry, Vol. 63, 2 (2002), 120--125.

[56]

Edgar Levenson. 1996. Aspects of self-revelation and self-disclosure. Contemporary Psychoanalysis, Vol. 32, 2 (1996), 237--248.

[57]

Ian Li, Anind Dey, and Jodi Forlizzi. 2010. A stage-based model of personal informatics systems. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems. ACM, 557--566.

Digital Library

[58]

Catherine Lim, Andrew BL Berry, Tad Hirsch, Andrea L Hartzler, Edward H Wagner, Evette Ludman, and James D Ralston. 2016. It Just Seems Outside My Health: How Patients with Chronic Conditions Perceive Communication Boundaries with Providers. In Proceedings of the 2016 ACM Conference on Designing Interactive Systems. 1172--1184.

Digital Library

[59]

Bruce G Link, Lawrence H Yang, Jo C Phelan, and Pamela Y Collins. 2004. Measuring mental illness stigma. Schizophrenia bulletin, Vol. 30, 3 (2004), 511.

[60]

Jennifer D Lish, Susan Dime-Meenan, Peter C Whybrow, R Arlen Price, and Robert MA Hirschfeld. 1994. The National Depressive and Manic-depressive Association (DMDA) survey of bipolar members. Journal of affective disorders, Vol. 31, 4 (1994), 281--294.

[61]

Edith Talina Luhanga, Akpa Akpro Elder Hippocrate, Hirohiko Suwa, Yutaka Arakawa, and Keiichi Yasumoto. 2018. Identifying and Evaluating User Requirements for Smartphone Group Fitness Applications. IEEE Access, Vol. 6 (2018), 3256--3269.

[62]

Deborah Lupton. 2013. Quantifying the body: monitoring and measuring health in the age of mHealth technologies. Critical Public Health, Vol. 23, 4 (2013), 393--403.

[63]

Deborah Lupton. 2014. Self-tracking cultures: towards a sociology of personal informatics. In Proceedings of the 26th Australian Computer-Human Interaction Conference on Designing Futures: the Future of Design. ACM, 77--86.

Digital Library

[64]

Deborah Lupton. 2015. Lively data, social fitness and biovalue: The intersections of health self-tracking and social media. (2015).

[65]

Michelle Madejski, Maritza Johnson, and Steven M Bellovin. 2012. A study of privacy settings errors in an online social network. In IEEE International Conference on Pervasive Computing and Communications. 340--345.

[66]

Julie Maitland and Matthew Chalmers. 2011. Designing for peer involvement in weight management. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems. ACM, 315--324.

Digital Library

[67]

Thomas W Malone, Robert Laubacher, and Chrysanthos Dellarocas. 2009. Harnessing crowds: Mapping the genome of collective intelligence. (2009).

[68]

Mark Matthews, Saeed Abdullah, Elizabeth Murnane, Stephen Voida, Tanzeem Choudhury, Geri Gay, and Ellen Frank. 2016. Development and evaluation of a smartphone-based measure of social rhythms for bipolar disorder. Assessment, Vol. 23, 4 (2016), 472--483.

[69]

Mark Matthews, Elizabeth Murnane, and Jaime Snyder. 2017a. Quantifying the Changeable Self: The role of self-tracking in coming to terms with and managing bipolar disorder. Human-Computer Interaction, Vol. 32, 5--6 (2017), 413--446.

Digital Library

[70]

Mark Matthews, Elizabeth Murnane, Jaime Snyder, Shion Guha, Pamara Chang, Gavin Doherty, and Geri Gay. 2017b. The double-edged sword: A mixed methods study of the interplay between bipolar disorder and technology use. Computers in Human Behavior, Vol. 75 (2017), 288--300.

Digital Library

[71]

Mark Matthews, Stephen Voida, Saeed Abdullah, Gavin Doherty, Tanzeem Choudhury, Sangha Im, and Geri Gay. 2015. In situ design for mental illness: Considering the pathology of bipolar disorder in mhealth design. In Proceedings of the 17th International Conference on Human-Computer Interaction with Mobile Devices and Services. ACM, 86--97.

Digital Library

[72]

David J Miklowitz, Michael W Otto, Ellen Frank, Noreen A Reilly-Harrington, Stephen R Wisniewski, Jane N Kogan, Andrew A Nierenberg, Joseph R Calabrese, Lauren B Marangell, Laszlo Gyulai, et almbox. 2007. Psychosocial treatments for bipolar depression: a 1-year randomized trial from the Systematic Treatment Enhancement Program. Archives of general psychiatry, Vol. 64, 4 (2007), 419--426.

[73]

Andrew D Miller and Elizabeth D Mynatt. 2014. StepStream: a school-based pervasive social fitness system for everyday adolescent health. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems. ACM, 2823--2832.

Digital Library

[74]

Sonali R Mishra, Andrew D Miller, Shafli Haldar, Maher Khelifi, Jordan Eschler, Rashmi G Elera, Ari H Pollack, and Wanda Pratt. 2018. Supporting Collaborative Health Tracking in the Hospital: Patients' Perspectives. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems. ACM.

Digital Library

[75]

Sean A Munson, Hasan Cavusoglu, Larry Frisch, and Sidney Fels. 2013. Sociotechnical challenges and progress in using social media for health. Journal of medical Internet research, Vol. 15, 10 (2013).

[76]

Elizabeth L Murnane, Dan Cosley, Pamara Chang, Shion Guha, Ellen Frank, Geri Gay, and Mark Matthews. 2016. Self-monitoring practices, attitudes, and needs of individuals with bipolar disorder: implications for the design of technologies to manage mental health. Journal of the American Medical Informatics Association, Vol. 23, 3 (2016), 477--484.

[77]

Elizabeth L Murnane, David Huffaker, and Gueorgi Kossinets. 2015. Mobile health apps: adoption, adherence, and abandonment. In Adjunct Proceedings of the 2015 ACM International Joint Conference on Pervasive and Ubiquitous Computing . ACM, 261--264.

Digital Library

[78]

Christopher JL Murray and Alan D Lopez. 1996. Evidence-based health policy--lessons from the Global Burden of Disease Study. Science, Vol. 274, 5288 (1996), 740--743.

[79]

Dawn Nafus. 2016. Quantified: Biosensing technologies in everyday life .MIT Press.

Digital Library

[80]

National Alliance on Mental Illness (NAMI). 2016. Mental Health By the Numbers. Washington, DC (2016).

[81]

National Research Council. 2006. Improving the quality of health care for mental and substance-use conditions. Quality Chasm Series (2006).

[82]

Francisco Nunes and Geraldine Fitzpatrick. 2015. Self-care technologies and collaboration. International Journal of Human-Computer Interaction, Vol. 31, 12 (2015), 869--881.

[83]

Kathleen O'Leary, Stephen M Schueller, Jacob O Wobbrock, and Wanda Pratt. 2018. “Suddenly, we got to become therapists for each other”: Designing Peer Support Chats for Mental Health. In Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems. ACM, 331.

Digital Library

[84]

Mustafa Ozkaynak, Rupa Valdez, Richard J Holden, and Jason Weiss. 2018. Infinicare framework for integrated understanding of health-related activities in clinical and daily-living contexts. Health Systems, Vol. 7, 1 (2018), 66--78.

[85]

Laura R Pina, Sang-Wha Sien, Teresa Ward, Jason C Yip, Sean A Munson, James Fogarty, and Julie A Kientz. 2017. From Personal Informatics to Family Informatics: Understanding Family Practices around Health Monitoring. In CSCW. 2300--2315.

Digital Library

[86]

Rhys Price-Robertson, Angela Obradovic, and Brad Morgan. 2017. Relational recovery: beyond individualism in the recovery approach. Advances in Mental Health, Vol. 15, 2 (2017), 108--120.

[87]

Aare Puussaar, Adrian K Clear, and Peter Wright. 2017. Enhancing Personal Informatics Through Social Sensemaking. In Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems. ACM, 6936--6942.

Digital Library

[88]

Madhu C Reddy, Paul Dourish, and Wanda Pratt. 2006. Temporality in medical work: Time also matters. Computer Supported Cooperative Work (CSCW), Vol. 15, 1 (2006), 29--53.

Digital Library

[89]

Brandon Ellis Rodgers. 2009. An ecological approach to understanding the stigma associated with receiving mental health services: the role of social proximity . Ph.D. Dissertation. Virginia Tech.

[90]

Yvonne Rogers. 2012. HCI theory: classical, modern, and contemporary. Synthesis Lectures on Human-Centered Informatics, Vol. 5, 2 (2012), 1--129.

[91]

Markus Rohde, Peter Brödner, Gunnar Stevens, Matthias Betz, and Volker Wulf. 2017. Grounded Design--a praxeological IS research perspective. Journal of Information Technology, Vol. 32, 2 (2017), 163--179.

[92]

John Rooksby, Mattias Rost, Alistair Morrison, and Matthew Chalmers Chalmers. 2014. Personal tracking as lived informatics. In Proceedings of the 32nd annual ACM conference on Human factors in computing systems. ACM, 1163--1172.

Digital Library

[93]

Mattias Rost, John Rooksby, and Claire McCallum. 2015. FITtogether: An `Average' Activity Tracker. Beyond Personal Informatics CHI Workshop (2015).

[94]

Jessica Schroeder, Jane Hoffswell, Chia-Fang Chung, James Fogarty, Sean Munson, and Jasmine Zia. 2017. Supporting patient-provider collaboration to identify individual triggers using food and symptom journals. In Proceedings of the Conference on Computer-Supported Cooperative Work, Vol. 2017. NIH Public Access, 1726.

Digital Library

[95]

Petr Slovák, Joris Janssen, and Geraldine Fitzpatrick. 2012. Understanding heart rate sharing: towards unpacking physiosocial space. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems. ACM, 859--868.

Digital Library

[96]

Susan Leigh Star and James R Griesemer. 1989. Institutional ecology,translations' and boundary objects: Amateurs and professionals in Berkeley's Museum of Vertebrate Zoology, 1907--39. Social studies of science, Vol. 19, 3 (1989), 387--420.

[97]

Jarrett R Takayama. 2010. Ecological systems theory of Asian American mental health service seeking. (2010).

[98]

Paul C Tang, Joan S Ash, David W Bates, J Marc Overhage, and Daniel Z Sands. 2006. Personal health records: definitions, benefits, and strategies for overcoming barriers to adoption. Journal of the American Medical Informatics Association, Vol. 13, 2 (2006), 121--126.

[99]

Stephen Voida, Mark Matthews, Saeed Abdullah, Mengxi Chrissie Xi, Matthew Green, Won Jun Jang, Donald Hu, John Weinrich, Prashama Patil, Mashfiqui Rabbi, et almbox. 2013. Moodrhythm: tracking and supporting daily rhythms. In Proceedings of the 2013 ACM conference on Pervasive and ubiquitous computing adjunct publication. ACM, 67--70.

Digital Library

[100]

Ron Wakkary and Leah Maestri. 2007. The resourcefulness of everyday design. In Proceedings of the 6th ACM SIGCHI conference on Creativity & cognition. ACM, 163--172.

Digital Library

[101]

Karl E Weick. 1995. Sensemaking in organizations . Vol. 3. Sage.

[102]

Sue Wilkinson. 1998. Focus groups in feminist research: Power, interaction, and the co-construction of meaning. Women's Studies International Forum, Vol. 21, 1 (Jan. 1998), 111--125.

[103]

Stefan Wuchty, Benjamin F Jones, and Brian Uzzi. 2007. The increasing dominance of teams in production of knowledge. Science, Vol. 316, 5827 (2007), 1036--1039.

[104]

Haining Zhu, Joanna Colgan, Madhu Reddy, and Eun Kyoung Choe. 2016. Sharing patient-generated data in clinical practices: an interview study. In AMIA Annual Symposium Proceedings, Vol. 2016. 1303.

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Index Terms

Personal Informatics in Interpersonal Contexts: Towards the Design of Technology that Supports the Social Ecologies of Long-Term Mental Health Management
1. Human-centered computing
  1. Collaborative and social computing
  2. Human computer interaction (HCI)

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cover image Proceedings of the ACM on Human-Computer Interaction

Proceedings of the ACM on Human-Computer Interaction Volume 2, Issue CSCW

November 2018

4104 pages

EISSN:2573-0142

DOI:10.1145/3290265

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Karrie Karahalios
University of Illinois & Adobe
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Snap Inc.
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Airi Lampinen
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Geraldine Fitzpatrick
Vienna University of Technology

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