research-article

Care and Design: An Ethnography of Mutual Recognition in the Context of Advanced Dementia

Authors:

John McCarthyAuthors Info & Claims

CHI '19: Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems

Paper No.: 610, Pages 1 - 15

https://doi.org/10.1145/3290605.3300840

Published: 02 May 2019 Publication History

Abstract

While there have been considerable developments in designing for dementia within HCI, there is still a lack of empirical understanding of the experience of people with advanced dementia and the ways in which design can support and enrich their lives. In this paper, we present our findings from a long-term ethnographic study, which aimed to gain an understanding of their lived experience and inform design practices for and with people with advanced dementia in residential care. We present our findings using the social theory of recognition as an analytic lens to account for recognition in practice and its challenges in care and research. We discuss how we, as the HCI community, can pragmatically engage with people with advanced dementia and propose a set of considerations for those who wish to design for and with the values of recognition theory to promote collaboration, agency and social identity in advanced dementia care.

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Cited By

Noh YHong JKostakos VKay JHoang T(2024)Know Me Inside-Out: Conversational and Quiz-Based System for Reminiscence Therapy for People with DementiaCompanion of the 2024 on ACM International Joint Conference on Pervasive and Ubiquitous Computing10.1145/3675094.3678377(809-815)Online publication date: 5-Oct-2024
https://dl.acm.org/doi/10.1145/3675094.3678377
Collingham HWallace JCrawshaw PHunt L(2024)Mariana's Song: Materializing Personhood through Non-Linear Multisensory Experiences Designed for People Living with Advanced DementiaProceedings of the 2024 ACM Designing Interactive Systems Conference10.1145/3643834.3660724(819-843)Online publication date: 1-Jul-2024
https://dl.acm.org/doi/10.1145/3643834.3660724
Smriti DWang LHuh-Yoo J(2024)Emotion Work in Caregiving: The Role of Technology to Support Informal Caregivers of Persons Living With DementiaProceedings of the ACM on Human-Computer Interaction10.1145/36373258:CSCW1(1-34)Online publication date: 26-Apr-2024
https://dl.acm.org/doi/10.1145/3637325
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Index Terms

Care and Design: An Ethnography of Mutual Recognition in the Context of Advanced Dementia
1. Human-centered computing
  1. Human computer interaction (HCI)

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cover image ACM Conferences

CHI '19: Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems

May 2019

9077 pages

ISBN:9781450359702

DOI:10.1145/3290605

General Chairs:
Stephen Brewster
University of Glasgow, Scotland, UK
,
Geraldine Fitzpatrick
TU Wien, Austria
,
Program Chairs:
Anna Cox
University College London, UK
,
Vassilis Kostakos
University of Melbourne, Australia

Copyright © 2019 ACM.

Permission to make digital or hard copies of all or part of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for components of this work owned by others than ACM must be honored. Abstracting with credit is permitted. To copy otherwise, or republish, to post on servers or to redistribute to lists, requires prior specific permission and/or a fee. Request permissions from [email protected]

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Published: 02 May 2019

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CHI '19: CHI Conference on Human Factors in Computing Systems

May 4 - 9, 2019

Glasgow, Scotland Uk

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Cited By

Noh YHong JKostakos VKay JHoang T(2024)Know Me Inside-Out: Conversational and Quiz-Based System for Reminiscence Therapy for People with DementiaCompanion of the 2024 on ACM International Joint Conference on Pervasive and Ubiquitous Computing10.1145/3675094.3678377(809-815)Online publication date: 5-Oct-2024
https://dl.acm.org/doi/10.1145/3675094.3678377
Collingham HWallace JCrawshaw PHunt L(2024)Mariana's Song: Materializing Personhood through Non-Linear Multisensory Experiences Designed for People Living with Advanced DementiaProceedings of the 2024 ACM Designing Interactive Systems Conference10.1145/3643834.3660724(819-843)Online publication date: 1-Jul-2024
https://dl.acm.org/doi/10.1145/3643834.3660724
Smriti DWang LHuh-Yoo J(2024)Emotion Work in Caregiving: The Role of Technology to Support Informal Caregivers of Persons Living With DementiaProceedings of the ACM on Human-Computer Interaction10.1145/36373258:CSCW1(1-34)Online publication date: 26-Apr-2024
https://dl.acm.org/doi/10.1145/3637325
Afuro Egbe DBrereton MPloderer B(2023)Using Online Discussions to Understand Challenges and Design Opportunities in Dementia CareProceedings of the 35th Australian Computer-Human Interaction Conference10.1145/3638380.3638394(211-220)Online publication date: 2-Dec-2023
https://dl.acm.org/doi/10.1145/3638380.3638394
Raß EUnbehaun DWulf VLüssem JEilers HLenz GTandler JAfzali SEroglu B(2023)Investigating the Potential and Impacts of Social Robots to Engage People with Advanced Dementia and their Caregivers: Early Insights from an Exploratory Ethnographic Study within a Protected Care EnvironmentProceedings of the 16th International Conference on PErvasive Technologies Related to Assistive Environments10.1145/3594806.3594826(272-278)Online publication date: 5-Jul-2023
https://dl.acm.org/doi/10.1145/3594806.3594826
Hodge JFoley SLambton-Howard DBooi LMontague KCoulter SKirk DMorrissey K(2023)Exploring Participants’ Representations and Shifting Sensitivities in a Hackathon for DementiaACM Transactions on Computer-Human Interaction10.1145/357181430:3(1-35)Online publication date: 10-Jun-2023
https://dl.acm.org/doi/10.1145/3571814
Thach KLederman RWaycott J(2023)Key Considerations for The Design of Technology for Enrichment in Residential Aged Care: An Ethnographic StudyProceedings of the 2023 CHI Conference on Human Factors in Computing Systems10.1145/3544548.3581176(1-16)Online publication date: 19-Apr-2023
https://dl.acm.org/doi/10.1145/3544548.3581176
Bennett DMetatla ORoudaut AMekler E(2023)How does HCI Understand Human Agency and Autonomy?Proceedings of the 2023 CHI Conference on Human Factors in Computing Systems10.1145/3544548.3580651(1-18)Online publication date: 19-Apr-2023
https://dl.acm.org/doi/10.1145/3544548.3580651
Thoolen MToso FT.M. Peek SLu YBrankaert R(2022)LivingMoments: Bespoke Social Communication for People living with Dementia and their RelativesProceedings of the 2022 CHI Conference on Human Factors in Computing Systems10.1145/3491102.3517430(1-18)Online publication date: 29-Apr-2022
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Waycott JKelly RBaker SBarbosa Neves BThach KLederman R(2022)The Role of Staff in Facilitating Immersive Virtual Reality for Enrichment in Aged Care: An Ethic of Care PerspectiveProceedings of the 2022 CHI Conference on Human Factors in Computing Systems10.1145/3491102.3501956(1-17)Online publication date: 29-Apr-2022
https://dl.acm.org/doi/10.1145/3491102.3501956
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