research-article

The Struggle for Recognition in Advanced Dementia: Implications for Experience-Centered Design

Authors:

Nadia PantidiAuthors Info & Claims

ACM Transactions on Computer-Human Interaction (TOCHI), Volume 26, Issue 6

Article No.: 40, Pages 1 - 29

https://doi.org/10.1145/3359594

Published: 14 November 2019 Publication History

Abstract

Focusing on the person with advanced dementia as a social being presents a new opportunity for Experience-Centered Design (ECD), opening design to appreciate the agency and intentional actions of the person with advanced dementia. If Human-Computer Interaction is to shift from the predominantly assistive approach to a focus on experience, a theoretical framing that emphasizes the relational nature of selfhood is needed. In this article, we present Recognition Theory—a social theory based on an inter-subjectivist account of the struggle for recognition—to extend ECD approaches for advanced dementia. Focusing on people with advanced dementia, we examine recognition as a social and ethical perspective for establishing and maintaining self. We present a framework for design based on research with people with advanced dementia, experience-centered engagement and social identity, that will support designers to craft opportunities for mutual recognition in the design process and the practice of making.

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Cited By

Collingham HWallace JCrawshaw PHunt L(2024)Mariana's Song: Materializing Personhood through Non-Linear Multisensory Experiences Designed for People Living with Advanced DementiaProceedings of the 2024 ACM Designing Interactive Systems Conference10.1145/3643834.3660724(819-843)Online publication date: 1-Jul-2024
https://dl.acm.org/doi/10.1145/3643834.3660724
Vidas DThompson ZKelly RWaycott JTamplin JVieira Sousa TKulik LLampit ALautenschlager NBaker F(2024)Family Caregiver Experiences of Using a Mobile App for Music-based Training to Support Dementia CareProceedings of the CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642308(1-16)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3613904.3642308
Sun YYi ZMa XMao JTong X(2024)Technology-Mediated Non-pharmacological Interventions for Dementia: Needs for and Challenges in Professional, Personalized and Multi-Stakeholder Collaborative InterventionsProceedings of the CHI Conference on Human Factors in Computing Systems10.1145/3613904.3641977(1-19)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3613904.3641977
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Index Terms

The Struggle for Recognition in Advanced Dementia: Implications for Experience-Centered Design
1. Human-centered computing
  1. Human computer interaction (HCI)
    1. HCI design and evaluation methods

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cover image ACM Transactions on Computer-Human Interaction

ACM Transactions on Computer-Human Interaction Volume 26, Issue 6

December 2019

230 pages

ISSN:1073-0516

EISSN:1557-7325

DOI:10.1145/3371148

Editor:
Kristina Höök
KTH Royal Institute of Technology, Sweden

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Publication History

Published: 14 November 2019

Accepted: 01 August 2019

Revised: 01 August 2019

Received: 01 July 2018

Published in TOCHI Volume 26, Issue 6

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https://dl.acm.org/doi/10.1145/3643834.3660724
Vidas DThompson ZKelly RWaycott JTamplin JVieira Sousa TKulik LLampit ALautenschlager NBaker F(2024)Family Caregiver Experiences of Using a Mobile App for Music-based Training to Support Dementia CareProceedings of the CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642308(1-16)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3613904.3642308
Sun YYi ZMa XMao JTong X(2024)Technology-Mediated Non-pharmacological Interventions for Dementia: Needs for and Challenges in Professional, Personalized and Multi-Stakeholder Collaborative InterventionsProceedings of the CHI Conference on Human Factors in Computing Systems10.1145/3613904.3641977(1-19)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3613904.3641977
Czech E(2023)Applying Technology in a Hybrid-Fashion to Create Dementia-Inclusive Community SpacesACM SIGACCESS Accessibility and Computing10.1145/3584732.3584733(1-1)Online publication date: 15-Feb-2023
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Thach KLederman RWaycott J(2023)Key Considerations for The Design of Technology for Enrichment in Residential Aged Care: An Ethnographic StudyProceedings of the 2023 CHI Conference on Human Factors in Computing Systems10.1145/3544548.3581176(1-16)Online publication date: 19-Apr-2023
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Bennett DMetatla ORoudaut AMekler E(2023)How does HCI Understand Human Agency and Autonomy?Proceedings of the 2023 CHI Conference on Human Factors in Computing Systems10.1145/3544548.3580651(1-18)Online publication date: 19-Apr-2023
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de Oliveira Cruz DChechetti CBrucki STakada LNunes F(2023)A comprehensive systematic review on mobile applications to support dementia patientsPervasive and Mobile Computing10.1016/j.pmcj.2023.10175790:COnline publication date: 1-Mar-2023
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Czech E(2022)Applying Technology in a Hybrid-Fashion to Create Dementia-Inclusive Community SpacesProceedings of the 24th International ACM SIGACCESS Conference on Computers and Accessibility10.1145/3517428.3550412(1-6)Online publication date: 23-Oct-2022
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Czech EMarshall PMetatla O(2022)“Just like meeting in person” - Examination of interdependencies in dementia-friendly virtual activities.Proceedings of the 24th International ACM SIGACCESS Conference on Computers and Accessibility10.1145/3517428.3544815(1-15)Online publication date: 23-Oct-2022
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Muñoz DPedell SSterling L(2022)Evaluating Engagement in Technology-Supported Social Interaction by People Living with Dementia in Residential CareACM Transactions on Computer-Human Interaction10.1145/351449729:5(1-31)Online publication date: 20-Oct-2022
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