research-article

Parallel Journeys of Patients with Cancer and Depression: Challenges and Opportunities for Technology-Enabled Collaborative Care

Authors:

Spencer Williams,

Amy M. Bauer, and

Gary HsiehAuthors Info & Claims

Proceedings of the ACM on Human-Computer Interaction, Volume 4, Issue CSCW1

Article No.: 38, Pages 1 - 36

https://doi.org/10.1145/3392843

Published: 29 May 2020 Publication History

Abstract

Depression is common but under-treated in patients with cancer, despite being a major modifiable contributor to morbidity and early mortality. Integrating psychosocial care into cancer services through the team-based Collaborative Care Management (CoCM) model has been proven to be effective in improving patient outcomes in cancer centers. However, there is currently a gap in understanding the challenges that patients and their care team encounter in managing co-morbid cancer and depression in integrated psycho-oncology care settings. Our formative study examines the challenges and needs of CoCM in cancer settings with perspectives from patients, care managers, oncologists, psychiatrists, and administrators, with a focus on technology opportunities to support CoCM. We find that: (1) patients with co-morbid cancer and depression struggle to navigate between their cancer and psychosocial care journeys, and (2) conceptualizing co-morbidities as separate and independent care journeys is insufficient for characterizing this complex care context. We then propose the parallel journeys framework as a conceptual design framework for characterizing challenges that patients and their care team encounter when cancer and psychosocial care journeys interact. We use the challenges discovered through the lens of this framework to highlight and prioritize technology design opportunities for supporting whole-person care for patients with co-morbid cancer and depression.

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Index Terms

Parallel Journeys of Patients with Cancer and Depression: Challenges and Opportunities for Technology-Enabled Collaborative Care
1. Applied computing
  1. Life and medical sciences
    1. Health care information systems
2. Human-centered computing
  1. Collaborative and social computing
    1. Empirical studies in collaborative and social computing
  2. Human computer interaction (HCI)
    1. Empirical studies in HCI

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cover image Proceedings of the ACM on Human-Computer Interaction

Proceedings of the ACM on Human-Computer Interaction Volume 4, Issue CSCW1

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May 2020

1285 pages

EISSN:2573-0142

DOI:10.1145/3403424

Editors:
Cliff Lampe
University of Michigan
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Jeff Nichols
Google
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Karrie Karahalios
University of Illinois Urbana-Champaign
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Geraldine Fitzpatrick
Vienna University of Technology
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Uichin Lee
KAIST
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Andres Monroy-Hernandez
Microsoft Research
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Wolfgang Stuerzlinger
Simon Fraser University, Canada

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https://dl.acm.org/doi/10.1145/3613904.3642882
Varanasi RDell NVashistha A(2024)Saharaline: A Collective Social Support Intervention for Teachers in Low-Income Indian SchoolsProceedings of the CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642617(1-20)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3613904.3642617
Ha LVan Tuan NHung PThien LHue DHoa NHa TVan San BTai LThang PThanh N(2024)Utilization of hospital anxiety and depression scale to measure mental disorders of patients with lung cancer in Vietnam: A cross-sectional studyInternational Journal of Healthcare Management10.1080/20479700.2024.2331914(1-8)Online publication date: 20-Mar-2024
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