Advanced Kidney Disease Patient Portal: Implementation and Evaluation with Haemodialysis Patients
Authors: 
Ramsay Meiklem, Karen Stevenson, Sabine Richarz, David B. Kingsmore, Matt-Mouley Bouamrane, 
Mark Dunlop, Peter ThomsonAuthors Info & Claims
Ramsay Meiklem, Karen Stevenson, Sabine Richarz, David B. Kingsmore, Matt-Mouley Bouamrane, Mark Dunlop, Peter ThomsonAuthors Info & ClaimsPages 175 - 196
Abstract
Patients on haemodialysis face complex care pathways, a high treatment burden and lower quality-of-life. Working with multidisciplinary domain experts, we have conducted several iterative development cycles to design, develop and evaluate a portal for patients on haemodialysis that can help them better understand and navigate their care pathways. A key functionality of the portal is to improve data and information sharing with clinicians, including on key aspects of quality-of-life through Patients Reported Outcome Measures. A case study was conducted with multidisciplinary experts and patients in the NHS Greater Glasgow and Clyde health board (Scotland), using interviews combined with the System Usability Scale (n = 26). Patients’ feedback and system use observations were used to further refine the system design requirements and functionalities. Key lessons include: a wide preference for tablet-based input vs paper, identification of case-specific accessibility issues and situational impairment, benefits of self-completed digital data collection in overcoming such issues and promoting patient independence and privacy, with considerations for maintaining perceived value and engagement with such systems and when to offer alternatives.
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Published In
Aug 2021
688 pages
ISBN:978-3-030-85615-1
DOI:10.1007/978-3-030-85616-8
© IFIP International Federation for Information Processing 2021.
Publisher
Springer-Verlag
Berlin, Heidelberg
Publication History
Published: 30 August 2021
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