research-article

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Barriers to Online Dementia Information and Mitigation

Authors:

Jesse Anderson,

Diana Blackwelder,

Mary L. Radnofsky,

Amanda LazarAuthors Info & Claims

CHI '22: Proceedings of the 2022 CHI Conference on Human Factors in Computing Systems

Article No.: 513, Pages 1 - 14

https://doi.org/10.1145/3491102.3517554

Published: 29 April 2022 Publication History

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Abstract

There is growing interest in HCI to study ways to support access to accurate, accessible, relevant online health information for different populations. Yet, there remains a need to understand the barriers that are posed by the way our platforms are designed as well as how we might overcome these barriers for people with dementia. To address this, we conducted sixteen interviews and observation sessions with people with mild to moderate dementia. Our analysis uncovered four barriers to online health information and corresponding mitigation strategies that participants employed. We discuss how HCI researchers may apply these findings towards new technical approaches and standards concerning information accessibility and credibility for neurodiverse populations. Finally, we broaden the scope of HCI research to include investigations of the accessibility and credibility of online information for people with age-related cognitive impairment independent of proxies.

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Cited By

Weidinger FDietzel NGraessel EProkosch HKolominsky-Rabas P(2025)Using Health Information Resources for People With Cognitive Impairment (digiDEM Bayern): Registry-Based Cohort StudyJMIR Formative Research10.2196/544609(e54460-e54460)Online publication date: 15-Jan-2025
https://doi.org/10.2196/54460
Saha KJain YLiu CKaliappan SKarkar R(2025)AI vs. Humans for Online Support: Comparing the Language of Responses from LLMs and Online Communities of Alzheimer’s DiseaseACM Transactions on Computing for Healthcare10.1145/3709366Online publication date: 3-Jan-2025
https://dl.acm.org/doi/10.1145/3709366
Kim TKim HRoberts AJacobs MKay M(2024)Opportunities in Mental Health Support for Informal Dementia Caregivers Suffering from Verbal AgitationProceedings of the ACM on Human-Computer Interaction10.1145/36373818:CSCW1(1-26)Online publication date: 26-Apr-2024
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Index Terms

Barriers to Online Dementia Information and Mitigation
1. Human-centered computing
  1. Accessibility
    1. Accessibility theory, concepts and paradigms
2. Security and privacy
  1. Human and societal aspects of security and privacy
    1. Social aspects of security and privacy

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cover image ACM Conferences

CHI '22: Proceedings of the 2022 CHI Conference on Human Factors in Computing Systems

April 2022

10459 pages

ISBN:9781450391573

DOI:10.1145/3491102

Editors:
Simone Barbosa
PUC-Rio, Brazil
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Cliff Lampe
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Caroline Appert
Université Paris-Saclay, France
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David A. Shamma
Toyota Research Institute, USA
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Steven Drucker
Microsoft Research, USA
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Julie Williamson
University of Glasgow, UK
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Koji Yatani
University of Tokyo, Japan

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Cited By

Weidinger FDietzel NGraessel EProkosch HKolominsky-Rabas P(2025)Using Health Information Resources for People With Cognitive Impairment (digiDEM Bayern): Registry-Based Cohort StudyJMIR Formative Research10.2196/544609(e54460-e54460)Online publication date: 15-Jan-2025
https://doi.org/10.2196/54460
Saha KJain YLiu CKaliappan SKarkar R(2025)AI vs. Humans for Online Support: Comparing the Language of Responses from LLMs and Online Communities of Alzheimer’s DiseaseACM Transactions on Computing for Healthcare10.1145/3709366Online publication date: 3-Jan-2025
https://dl.acm.org/doi/10.1145/3709366
Kim TKim HRoberts AJacobs MKay M(2024)Opportunities in Mental Health Support for Informal Dementia Caregivers Suffering from Verbal AgitationProceedings of the ACM on Human-Computer Interaction10.1145/36373818:CSCW1(1-26)Online publication date: 26-Apr-2024
https://dl.acm.org/doi/10.1145/3637381
Qiu LBlair JAbdullah S(2024)Managing Finances for Persons Living with Dementia: Current Practices and Challenges for Care PartnersExtended Abstracts of the CHI Conference on Human Factors in Computing Systems10.1145/3613905.3650809(1-7)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3613905.3650809
Houben MBrankaert RGosen Mvan Overloop VIJsselsteijn W(2024)Design Opportunities for Care Transitions in Dementia: Understanding Informal Caregivers’ Experiences Through a Practice-Informed ApproachProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642556(1-13)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3613904.3642556
Yoo DWoo HNguyen VBirnbaum MKruzan KKim JAbowd GDe Choudhury M(2024)Patient Perspectives on AI-Driven Predictions of Schizophrenia Relapses: Understanding Concerns and Opportunities for Self-Care and TreatmentProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642369(1-20)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3613904.3642369
Hrincu VRoy KRobillard J(2024)Practical social media recommendations for dementia prevention researchersAlzheimer's & Dementia: Translational Research & Clinical Interventions10.1002/trc2.1249610:3Online publication date: 13-Aug-2024
https://doi.org/10.1002/trc2.12496
Hristidis VRuggiano NBrown EGanta SStewart S(2023)ChatGPT vs Google for Queries Related to Dementia and Other Cognitive Decline: Comparison of ResultsJournal of Medical Internet Research10.2196/4896625(e48966)Online publication date: 25-Jul-2023
https://doi.org/10.2196/48966
Engineer MKot SDixon E(2023)Investigating the Readability and Linguistic, Psychological, and Emotional Characteristics of Digital Dementia Information Written in the English Language: Multitrait-Multimethod Text AnalysisJMIR Formative Research10.2196/481437(e48143)Online publication date: 25-Oct-2023
https://doi.org/10.2196/48143
Dai JMiedema JHernandez SSutton-Lalani AMoffatt K(2023)Cognitive Accessibility of Digital Payments: A Literature ReviewProceedings of the 20th International Web for All Conference10.1145/3587281.3587294(116-121)Online publication date: 30-Apr-2023
https://dl.acm.org/doi/10.1145/3587281.3587294
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