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Marginalization and the Construction of Mental Illness Narratives Online: Foregrounding Institutions in Technology-Mediated Care

Authors:

Sachin R. Pendse,

Munmun De ChoudhuryAuthors Info & Claims

Proceedings of the ACM on Human-Computer Interaction, Volume 7, Issue CSCW2

Article No.: 346, Pages 1 - 30

https://doi.org/10.1145/3610195

Published: 04 October 2023 Publication History

Abstract

People experiencing mental illness are often forced into a system in which their chances of finding relief are largely determined by institutions that evaluate whether their distress deserves treatment. These governing institutions can be offline, such as the American healthcare system, and can also be online, such as online social platforms. As work in Human-Computer Interaction (HCI) and Computer Supported Cooperative Work (CSCW) frames technology-mediated support as one method to fill structural gaps in care, in this study, we ask the question: how do online and offline institutions influence how people in resource-scarce areas understand and express their distress online? We situate our work in U.S. Mental Health Professional Shortage Areas (MHPSAs), or areas in which there are too few mental health professionals to meet expected needs. We use an analysis of illness narratives to answer this question, conducting a large scale linguistic analysis of social media posts to understand broader trends in expressions of distress online. We then build on these analyses via in-depth interviews with 18 participants with lived experience of mental illness, analyzing the role of online and offline institutions in how participants express distress online. Through our findings, we argue that a consideration of institutions is crucial in designing effective technology-mediated support, and discuss the implications of considering institutions in mental health support for platform designers.

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Cited By

Ajmani LForiest JTaylor JPittman KGilbert SDeVito M(2024)Whose Knowledge is Valued? Epistemic Injustice in CSCW ApplicationsProceedings of the ACM on Human-Computer Interaction10.1145/36870628:CSCW2(1-28)Online publication date: 8-Nov-2024
https://dl.acm.org/doi/10.1145/3687062
Su ZKamath STirakitsoontorn PChen Y(2024)The Hidden Burden: Encountering and Managing (Unintended) Stigma in Children with Serious IllnessesProceedings of the ACM on Human-Computer Interaction10.1145/36410218:CSCW1(1-35)Online publication date: 26-Apr-2024
https://dl.acm.org/doi/10.1145/3641021

Index Terms

Marginalization and the Construction of Mental Illness Narratives Online: Foregrounding Institutions in Technology-Mediated Care
1. Information systems
  1. Information systems applications
    1. Collaborative and social computing systems and tools

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cover image Proceedings of the ACM on Human-Computer Interaction

Proceedings of the ACM on Human-Computer Interaction Volume 7, Issue CSCW2

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October 2023

4055 pages

EISSN:2573-0142

DOI:10.1145/3626953

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Jeff Nichols
Apple Inc., United States

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Ajmani LForiest JTaylor JPittman KGilbert SDeVito M(2024)Whose Knowledge is Valued? Epistemic Injustice in CSCW ApplicationsProceedings of the ACM on Human-Computer Interaction10.1145/36870628:CSCW2(1-28)Online publication date: 8-Nov-2024
https://dl.acm.org/doi/10.1145/3687062
Su ZKamath STirakitsoontorn PChen Y(2024)The Hidden Burden: Encountering and Managing (Unintended) Stigma in Children with Serious IllnessesProceedings of the ACM on Human-Computer Interaction10.1145/36410218:CSCW1(1-35)Online publication date: 26-Apr-2024
https://dl.acm.org/doi/10.1145/3641021

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