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Person-centered/person-centred care: Comparative understandings of best practice in long-term care for older people in the US and UK C4AR International Conference - ‘Ageing: Moving Beyond Boundaries’ Lancaster University, 7 September 2012 Kezia Scales, Sociology and Social Policy Email: kezia.scales@nottingham.ac.uk The research • Ethnographic case studies: • Western New York (Richardson’s) – 82 beds • East Midlands (Forest Lodge) – 63 beds • Methods: • Participant observation as CNA/carer – approximately 500 hours • In-depth interviews with care assistants, nurses, and administrators (16 completed, ongoing) • Document analysis of marketing & training materials, policy docs Person-centered care in the US Eden Alternative = a “principle-based philosophy” aimed at “transforming care environments into habitats for human beings that promote quality of life for all involved” (Eden Alternative 2012). The 10 principles Three plagues: loneliness, helplessness, and boredom 2. A human habitat: where life revolves around close and continuing contact with plants, animals, and children 3. Loving companionship 4. Opportunities to give as well as receive care 5. Variety and spontaneity in daily life 6. Meaningful activity 7. Medical treatment as the servant of genuine human caring 8. Decision-making in the hands of elders or those closest to them 9. Creating an elder-centred community is a never-ending process 10. Leadership is the lifeblood of any struggle against the three plagues 1. Person-centered care: Strengths  Emotive imagery  Non-hierarchical Person-centered care: Gaps  Theoretical foundations  Measurement  Potential for failure  People with dementia? Person-centred care in the UK Personhood = “a standing or status bestowed upon one human being, by others, in the context of relationship and social being” that “implies recognition, respect, and trust” (Kitwood 1997: 8). Person-centred care: Kitwood (1997) comfort LOVE Person-centred care: Strengths (1)  Specific, specialised skills “If person-centred care is seen only as a value base, then it can quickly become seen as a group of empty words or evangelism without a practical application and body of knowledge. There are some people who can extrapolate very easily from a value base, but many others need the implications to be spelt out in rather more concrete terms” (Brooker 2004: 6). Personal detractors and enhancers Personal detractors Intimidation Outpacing Infantilisation Labeling Treachery Disempowerment Objectification Ignoring Personal enhancers Warmth Relaxed pace Respect Acceptance Genuineness Empowerment Collaboration Including Person-centred care: Gaps  Accessibility of content/framing  Focus on individual not organisation  People without dementia? Conclusion: Does it matter?  Knowledge translation  Developing the evidence base  Policy imperatives “It is hard work, as you know, it is hard work – but you also have to meet the residents’ … all their needs, not just their physical needs.You have to take the time to talk to them, you have to take the time to get to know them, I feel.That’s my feeling. And I find that’s not the case with a lot of people.” - Interview, Richardson’s (carer) Acknowledgements  Dr. Davina Porock, University at Buffalo School of Nursing  Professor Justine Schneider, School of Sociology and Social Policy, and Professor Ruth McDonald, School of Business, University of Nottingham  The CLAHRC for Nottinghamshire, Derbyshire, and Lincolnshire  School of Sociology and Social Policy, University of Nottingham