research-article

Designing Post-Trauma Self-Regulation Apps for People with Intellectual and Developmental Disabilities

Authors:

Krishna Venkatasubramanian,

Tina-Marie RanalliAuthors Info & Claims

ASSETS '22: Proceedings of the 24th International ACM SIGACCESS Conference on Computers and Accessibility

Article No.: 43, Pages 1 - 14

https://doi.org/10.1145/3517428.3544798

Published: 22 October 2022 Publication History

Abstract

In the US people with intellectual and developmental disabilities (I/DD) comprise one of the most likely groups to experience traumatic life events. These experiences often produce negative effects (e.g., stress, anxiety, grief, numbing, etc.) that need to be managed. Methods such as emotional self-regulation are often used to help people cope when these effects present themselves post-trauma. In recent years mobile-computing-devices-based apps have been increasingly used to help the general population with autonomous self-regulation. However, none of these is designed for people with I/DD or is cognizant of the trauma they experience in their lives. We interviewed eight (8) practitioners at a trauma services organization that, among other things, helps people with I/DD learn and practice post-trauma self-regulation. The goal of the interviews is to understand what it would take to build post-trauma self-regulation apps for people with I/DD. Based on the interview responses we argue for a set of guidelines, based on the social work practice of trauma-informed care, to design post-trauma self-regulation apps for people with I/DD.

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Cited By

Razi ASeberger JAlsoubai ANaher NDe Choudhury MWisniewski P(2024)Toward Trauma-Informed Research Practices with Youth in HCI: Caring for Participants and Research Assistants When Studying Sensitive TopicsProceedings of the ACM on Human-Computer Interaction10.1145/36374118:CSCW1(1-31)Online publication date: 26-Apr-2024
https://dl.acm.org/doi/10.1145/3637411
Zheng WWalquist EDatey IZhou XBerishaj KMcdonald MParkhill MZhu DZytko D(2024)“It’s Not What We Were Trying to Get At, but I Think Maybe It Should Be”: Learning How to Do Trauma-Informed Design with a Data Donation Platform for Online Dating Sexual ViolenceProceedings of the CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642045(1-15)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3613904.3642045
Abdulai ANaghdali HTekie Ghirmay EAdam FBawafaa E(2023)Trauma-Informed Care in Digital Health Technologies: Protocol for a Scoping ReviewJMIR Research Protocols10.2196/4684212(e46842)Online publication date: 23-Jun-2023
https://doi.org/10.2196/46842

Index Terms

Designing Post-Trauma Self-Regulation Apps for People with Intellectual and Developmental Disabilities
1. Human-centered computing
  1. Accessibility
    1. Accessibility technologies

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In the United States, the abuse of individuals with intellectual and developmental disabilities (I/DD) is at epidemic proportions. However, the reporting of such abuse has been severely lacking. It has been found that individuals with I/DD are more aware ...
Exploring the Requirements of Abuse Reporting for Persons with Intellectual and Developmental Disabilities
ASSETS '21: Proceedings of the 23rd International ACM SIGACCESS Conference on Computers and Accessibility

Incidents of abuse committed against persons with intellectual and developmental disabilities (I/DD) are woefully under-reported. One way of helping change this situation is to empower persons with I/DD with tools to self-report abuse. During abuse ...

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cover image ACM Conferences

ASSETS '22: Proceedings of the 24th International ACM SIGACCESS Conference on Computers and Accessibility

October 2022

902 pages

ISBN:9781450392587

DOI:10.1145/3517428

Editors:
Jon Froehlich
University of Washington, USA
,
Kristen Shinohara
Rochester Institute of Technology, USA
,
Stephanie Ludi
University of North Texas, USA

Copyright © 2022 ACM.

Permission to make digital or hard copies of all or part of this work for personal or classroom use is granted without fee provided that copies are not made or distributed for profit or commercial advantage and that copies bear this notice and the full citation on the first page. Copyrights for components of this work owned by others than the author(s) must be honored. Abstracting with credit is permitted. To copy otherwise, or republish, to post on servers or to redistribute to lists, requires prior specific permission and/or a fee. Request permissions from [email protected].

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SIGACCESS: ACM Special Interest Group on Accessible Computing

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Association for Computing Machinery

New York, NY, United States

Publication History

Published: 22 October 2022

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Research-article
Research
Refereed limited

Funding Sources

Massachusetts Disabled Persons Protection Commission

Conference

ASSETS '22

Sponsor:

SIGACCESS

ASSETS '22: The 24th International ACM SIGACCESS Conference on Computers and Accessibility

October 23 - 26, 2022

Athens, Greece

Acceptance Rates

ASSETS '22 Paper Acceptance Rate 35 of 132 submissions, 27%;

Overall Acceptance Rate 436 of 1,556 submissions, 28%

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Cited By

Razi ASeberger JAlsoubai ANaher NDe Choudhury MWisniewski P(2024)Toward Trauma-Informed Research Practices with Youth in HCI: Caring for Participants and Research Assistants When Studying Sensitive TopicsProceedings of the ACM on Human-Computer Interaction10.1145/36374118:CSCW1(1-31)Online publication date: 26-Apr-2024
https://dl.acm.org/doi/10.1145/3637411
Zheng WWalquist EDatey IZhou XBerishaj KMcdonald MParkhill MZhu DZytko D(2024)“It’s Not What We Were Trying to Get At, but I Think Maybe It Should Be”: Learning How to Do Trauma-Informed Design with a Data Donation Platform for Online Dating Sexual ViolenceProceedings of the CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642045(1-15)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3613904.3642045
Abdulai ANaghdali HTekie Ghirmay EAdam FBawafaa E(2023)Trauma-Informed Care in Digital Health Technologies: Protocol for a Scoping ReviewJMIR Research Protocols10.2196/4684212(e46842)Online publication date: 23-Jun-2023
https://doi.org/10.2196/46842

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