research-article

"It’s like With the Pregnancy Tests": Co-design of Speculative Technology for Public HIV-related Stigma and its Implications for Social Media

Authors: Juan F. Maestre, Daria V. Groves, Megan Furness, Patrick C. ShihAuthors Info & Claims

CHI '23: Proceedings of the 2023 CHI Conference on Human Factors in Computing Systems

Article No.: 337, Pages 1 - 21

https://doi.org/10.1145/3544548.3581033

Published: 19 April 2023 Publication History

Abstract

Public stigma on the Human Immunodeficiency Virus (HIV) affects the physical and psychological wellbeing of those living with the condition in a severe way. There is work around the design of technology for medication adherence and HIV treatment. Yet, there is still a lack of empirical research that investigates how people could cope with stigma more effectively using technology. Thus, we obtained data from co-design workshops conducted remotely from the U.S. with 25 people living with HIV. Our findings foreground key needs and values via the discussion of features and functionality of speculative co-designed technologies that would allow people to leverage key stigma coping strategies. Based on these insights, we forward design implications for social media, which is the most common type of technology that people living with HIV currently use to cope with public stigma.

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Cited By

Ibrahim Z(2024)Expanding Personal Informatics: Menstruation and Pregnancy Healthcare Journey For Practising Muslim WomenExtended Abstracts of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613905.3638178(1-6)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3613905.3638178
Kokorelias KWasilewski MFlanagan AZhabokritsky ASingh HDove EEaton AValentine DSheppard CAbdelhalim RParpia RZewude RJamieson LGrosse AWalmsley SBrown PSirisegaram L(2023)Co-Creating Socio-Culturally-Appropriate Virtual Geriatric Care for Older Adults Living With HIV: A Community-Based Participatory, Intersectional ProtocolInternational Journal of Qualitative Methods10.1177/1609406923120518922Online publication date: 6-Oct-2023
https://doi.org/10.1177/16094069231205189

Index Terms

"It’s like With the Pregnancy Tests": Co-design of Speculative Technology for Public HIV-related Stigma and its Implications for Social Media
1. Human-centered computing
  1. Human computer interaction (HCI)
    1. Empirical studies in HCI

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cover image ACM Conferences

CHI '23: Proceedings of the 2023 CHI Conference on Human Factors in Computing Systems

April 2023

14911 pages

ISBN:9781450394215

DOI:10.1145/3544548

Editors:
Albrecht Schmidt
LMU Munich, Germany60028717
,
Kaisa Väänänen
Tampere University, Finland60011170
,
Tesh Goyal
Google Research, USA60006191
,
Per Ola Kristensson
University of Cambridge, UK60031101
,
Anicia Peters
University of Namibia, Namibia60072704
,
Stefanie Mueller
Massachusetts Institute of Technology, USA60022195
,
Julie R. Williamson
University of Glasgow, UK60001490
,
Max L. Wilson
University of Nottingham, UK60015138

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Published: 19 April 2023

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Cited By

Ibrahim Z(2024)Expanding Personal Informatics: Menstruation and Pregnancy Healthcare Journey For Practising Muslim WomenExtended Abstracts of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613905.3638178(1-6)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3613905.3638178
Kokorelias KWasilewski MFlanagan AZhabokritsky ASingh HDove EEaton AValentine DSheppard CAbdelhalim RParpia RZewude RJamieson LGrosse AWalmsley SBrown PSirisegaram L(2023)Co-Creating Socio-Culturally-Appropriate Virtual Geriatric Care for Older Adults Living With HIV: A Community-Based Participatory, Intersectional ProtocolInternational Journal of Qualitative Methods10.1177/1609406923120518922Online publication date: 6-Oct-2023
https://doi.org/10.1177/16094069231205189

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