research-article

Social, Cultural and Systematic Frustrations Motivating the Formation of a DIY Hearing Loss Hacking Community

Authors:

Aisling Ann O'Kane,

Abdinasir Aliomar,

Britta Schulte,

Gianluca TrombettaAuthors Info & Claims

CHI '19: Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems

Paper No.: 301, Pages 1 - 14

https://doi.org/10.1145/3290605.3300531

Published: 02 May 2019 Publication History

Abstract

Research on attitudes to assistive technology (AT) has shown both the positive and negative impact of these technologies on quality of life. Building on this research, we examine the sociocultural and technological frustrations with hearing loss (HL) technologies that motivate personal approaches to solving these issues. Drawing on meet-up observations and contextual interview data, we detail participants' experiences of and attitudes towards hearing AT that influences hacking hearing loss. Hearing AT is misunderstood as a solution to the impairment, influencing one-to-one interactions, cultural norms, and systematic frustrations. Participants' exasperation with the slow development of top-down solutions has led some members to design and develop their own personalised solutions. Beyond capturing a segment of the growing DIY health and wellbeing phenomenon, our findings extend beyond implications for design to present recommendations for the hearing loss industry, policy makers, and importantly, for researchers engaging with grassroots DIY health movements.

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https://dl.acm.org/doi/10.1145/3613905.3650871
Jansky B(2023)Digitized Patients: Elaborative Tinkering and Knowledge Practices in the Open-source Type 1 Diabetes “Looper Community”Science, Technology, & Human Values10.1177/0162243923117044349:1(53-77)Online publication date: 1-May-2023
https://doi.org/10.1177/01622439231170443
Soubutts ECzech EAyobi AEardley RCater KO'Kane A(2023)The Shifting Sands of Labour: Changes in Shared Care Work with a Smart Home Health SystemProceedings of the 2023 CHI Conference on Human Factors in Computing Systems10.1145/3544548.3581546(1-16)Online publication date: 19-Apr-2023
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Index Terms

Social, Cultural and Systematic Frustrations Motivating the Formation of a DIY Hearing Loss Hacking Community
1. Human-centered computing

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cover image ACM Conferences

CHI '19: Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems

May 2019

9077 pages

ISBN:9781450359702

DOI:10.1145/3290605

General Chairs:
Stephen Brewster
University of Glasgow, Scotland, UK
,
Geraldine Fitzpatrick
TU Wien, Austria
,
Program Chairs:
Anna Cox
University College London, UK
,
Vassilis Kostakos
University of Melbourne, Australia

Copyright © 2019 ACM.

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Published: 02 May 2019

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Cited By

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https://dl.acm.org/doi/10.1145/3613905.3650871
Jansky B(2023)Digitized Patients: Elaborative Tinkering and Knowledge Practices in the Open-source Type 1 Diabetes “Looper Community”Science, Technology, & Human Values10.1177/0162243923117044349:1(53-77)Online publication date: 1-May-2023
https://doi.org/10.1177/01622439231170443
Soubutts ECzech EAyobi AEardley RCater KO'Kane A(2023)The Shifting Sands of Labour: Changes in Shared Care Work with a Smart Home Health SystemProceedings of the 2023 CHI Conference on Human Factors in Computing Systems10.1145/3544548.3581546(1-16)Online publication date: 19-Apr-2023
https://dl.acm.org/doi/10.1145/3544548.3581546
Bowman RNadal CMorrissey KThieme ADoherty G(2023)Using Thematic Analysis in Healthcare HCI at CHI: A Scoping ReviewProceedings of the 2023 CHI Conference on Human Factors in Computing Systems10.1145/3544548.3581203(1-18)Online publication date: 19-Apr-2023
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Jansky BLangstrup H(2022)Device activism and material participation in healthcare: retracing forms of engagement in the #WeAreNotWaiting movement for open-source closed-loop systems in type 1 diabetes self-careBioSocieties10.1057/s41292-022-00278-418:3(498-522)Online publication date: 22-Apr-2022
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Nunes FAlmeida JChung CVerdezoto NKitamura YQuigley AIsbister KIgarashi TBjørn PDrucker S(2021)Avoiding Reactions Outside the Home: Challenges, Strategies, and Opportunities to Enhance Dining Out Experiences of People with Food HypersensitivitiesProceedings of the 2021 CHI Conference on Human Factors in Computing Systems10.1145/3411764.3445662(1-16)Online publication date: 6-May-2021
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Barbareschi GDaymond SHoneywill JSingh ANoble DN. Mbugua NHarris IAustin VHolloway C(2020)Value beyond function: analyzing the perception of wheelchair innovations in KenyaProceedings of the 22nd International ACM SIGACCESS Conference on Computers and Accessibility10.1145/3373625.3417017(1-14)Online publication date: 26-Oct-2020
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