- I am an Associate Professor in the Department of Psychiatry and Behavioral Sciences at the University of Washington. ... moreI am an Associate Professor in the Department of Psychiatry and Behavioral Sciences at the University of Washington. I am an enrolled member of the Mandan and Hidatsa tribes from Fort Berthold, North Dakota. My research focuses on cultural adaptation of evidence-based interventions, research ethics in Indigenous communities, and early childhood development supports.edit
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Despite the growth of research on community-engaged research (CEnR), recent reviews suggest there has been limited development of validated scales to measure key contexts, mechanisms, and outcomes, impairing testing and refinement of... more
Despite the growth of research on community-engaged research (CEnR), recent reviews suggest there has been limited development of validated scales to measure key contexts, mechanisms, and outcomes, impairing testing and refinement of theoretical models. The purpose of this study is to present the psychometric properties of scales from the Engage for Equity (E2) project, stemming from a long-term research partnership examining community-engaged research projects. This study used a three-stage, cross-sectional format: (a) a sampling frame of 413 CEnR projects was identified; (b) 210 principal investigators completed a project-level survey and nominated partners for another survey; (c) 457 investigators and partners completed a survey about project contexts, processes, interventions, and outcomes. Factorial validity was established through confirmatory factor analysis supporting seven scales: contextual capacity, commitment to collective empowerment, relationships, community engagement in research actions, synergy, partner and partnership transformation, and projected outcomes. Convergent validity was established through examining covariances among the scales. This study largely yielded results consistent with a previous psychometric study of related measures, while demonstrating improved ceiling effects of the items and refined conceptualization of core theoretical constructs.
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In a 2010 article, Traci Sylva, Pauline Chinn, and Charles Kinoshita note that Indigenous communities of practice generate solutions to “highly valued, real-world problems'” by connecting “science to culture, place, and community.” To... more
In a 2010 article, Traci Sylva, Pauline Chinn, and Charles Kinoshita note that Indigenous communities of practice generate solutions to “highly valued, real-world problems'” by connecting “science to culture, place, and community.” To provide Native American communities a collaborative space to address COVID-19, we developed Gathering Grounds, an Indigenous community of practice, or I-CP. Over one hundred individuals from Native communities nationwide participated in Gathering Grounds. We started with reviewing existing literature to identify existing approaches that honor Indigenous ways of building and maintaining relationships as well as best practices. This article discusses the I-CP’s development, shares community responses to COVID-19, and describes how the I-CP facilitates resource-sharing and growth opportunities.
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We developed a set of four community-based participatory research (CBPR) partnership tools aimed at supporting community–academic research partnerships in strengthening their research processes, with the ultimate goal of improving... more
We developed a set of four community-based participatory research (CBPR) partnership tools aimed at supporting community–academic research partnerships in strengthening their research processes, with the ultimate goal of improving research outcomes. The aim of this article is to describe the tools we developed to accomplish this goal: (1) the River of Life Exercise; (2) a Partnership Visioning Exercise; (3) a personalized Partnership Data Report of data from academic and community research partners; and (4) a Promising Practices Guide with aggregated survey data analyses on promising CBPR practices associated with CBPR and health outcomes from two national samples of CBPR projects that completed a series of two online surveys. Relying on Paulo Freire’s philosophy of praxis, or the cycles of collective reflection and action, we developed a set of tools designed to support research teams in holding discussions aimed at strengthening research partnership capacity, aligning research par...
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Community-based participatory research (CBPR) and community-engaged research have been established in the past 25 years as valued research approaches within health education, public health, and other health and social sciences for their... more
Community-based participatory research (CBPR) and community-engaged research have been established in the past 25 years as valued research approaches within health education, public health, and other health and social sciences for their effectiveness in reducing inequities. While early literature focused on partnering principles and processes, within the past decade, individual studies, as well as systematic reviews, have increasingly documented outcomes in community support and empowerment, sustained partnerships, healthier behaviors, policy changes, and health improvements. Despite enhanced focus on research and health outcomes, the science lags behind the practice. CBPR partnering pathways that result in outcomes remain little understood, with few studies documenting best practices. Since 2006, the University of New Mexico Center for Participatory Research with the University of Washington’s Indigenous Wellness Research Institute and partners across the country has engaged in tar...
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Tribal Institutional Review Boards (TIRBs) in the United States assert their rights within sovereign nations by developing ethical research processes that align with tribal values to protect indigenous knowledge systems and their... more
Tribal Institutional Review Boards (TIRBs) in the United States assert their rights within sovereign nations by developing ethical research processes that align with tribal values to protect indigenous knowledge systems and their community from cultural appropriation, exploitation, misuse, and harm. We reviewed six TIRB applications and processes to gain a better understanding about their requirements and research ethics. We located 48 activated and deactivated TIRBs in a database, mapped them in relation to tribal reservation lands, and then conducted in-depth content analysis. Our analysis demonstrates the importance of building relationships, becoming fully acquainted with the TIRB’s operating environment before seeking research approval, and issues related to tribal data management practices.
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Lesbian, gay, bisexual, transgender, two-spirit, and American Indian and Alaska Native community members share long histories of discrimination and poorer health status as compared to mainstream Americans. In particular, these groups... more
Lesbian, gay, bisexual, transgender, two-spirit, and American Indian and Alaska Native community members share long histories of discrimination and poorer health status as compared to mainstream Americans. In particular, these groups experience bias-related victimization, a type of discrimination based on inherent traits such as race or ethnicity and sexual orientation. This cross-sectional study (N = 334) used a revised bias-related victimization measure and examined the relationship between self-reported bias-related victimization and generalized anxiety disorder, depression, and substance abuse among lesbian, gay, bisexual, transgender, and two-spirit American Indians and Alaska Natives. The results showed that 84.4% reported experiencing bias-related victimization. Those with the highest levels of bias-related victimization had 2.79 times (p = .009; 95% CI [1.30, 6.02]) the risk of reporting symptoms of generalized anxiety disorder as compared to those with no bias-related victi...
Research Interests: Psychology, Clinical Psychology, Indigenous Health, LGBT Issues, Discrimination, and 12 moreHealth Disparities, Public Health, American Indian & Alaska Native, Transgender, Sexual Orientation, American Indians, Substance Abuse, Generalized Anxiety Disorder, LGBT, Lesbian, Two Spirit, and Sexual Minority
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The Tribal Maternal, Infant, and Early Childhood Home Visiting (Tribal MIECHV) Program provides federal grants to tribes, tribal consortia, tribal organizations, and urban Indian organizations to implement evidence-based home-visiting... more
The Tribal Maternal, Infant, and Early Childhood Home Visiting (Tribal MIECHV) Program provides federal grants to tribes, tribal consortia, tribal organizations, and urban Indian organizations to implement evidence-based home-visiting services for American Indian and Alaska Native (AI/AN) families. To date, only one evidence-based home-visiting program has been developed for use in AI/AN communities. The purpose of this article is to describe the steps that four Tribal MIECHV Programs took to assess community needs, select a home-visiting model, and culturally adapt the model for use in AI/AN communities. In these four unique Tribal MIECHV Program settings, each program employed a rigorous needs-assessment process and developed cultural modifications in accordance with community strengths and needs. Adaptations occurred in consultation with model developers, with consideration of the conceptual rationale for the program, while grounding new content in indigenous cultures. Research i...
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A comprehensive charting of CBPR has been conducted through an NIH-funded study (2009-2013) to identify variation nationally across CBPR characteristics of research contexts and partnership processes that impact research decisions and... more
A comprehensive charting of CBPR has been conducted through an NIH-funded study (2009-2013) to identify variation nationally across CBPR characteristics of research contexts and partnership processes that impact research decisions and health and social justice outcomes. Our research team, from the National Congress of American Indians Policy Research Center and the Universities of New Mexico and Washington, has developed a CBPR Logic Model, with other CBPR national experts, to explain how partnering contributes to CBPR outcomes among American Indian/Alaska Native, other communities of color and vulnerable populations. This presentation describes the study purpose and specific aims: to identify CBPR diversity, test the explanatory power of the Model; probe similarities and differences across key model dimensions, i.e., historical-socio-cultural contexts, including governance, trust/mistrust; culturally-centered intervention or policy development; motivations related to participation;...
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The data-sharing policies of the National Institutes of Health aim to maximize public benefit derived from genetic studies by increasing research efficiency and use of a pooled data resource for future studies. Although broad access to... more
The data-sharing policies of the National Institutes of Health aim to maximize public benefit derived from genetic studies by increasing research efficiency and use of a pooled data resource for future studies. Although broad access to data may lead to benefits for populations underrepresented in genetic studies, such as indigenous groups, tribes have ownership interest in their data. The Northwest-Alaska Pharmacogenetic Research Network, a partnership involving tribal organizations and universities conducting basic and translational pharmacogenetic research, convened a meeting to discuss the collection, management, and secondary use of research data, and of the processes surrounding access to data stored in federal repositories. This article reports the tribal perspectives that emerged from the dialogue and discusses the implications of tribal government sovereign status on research agreements and data-sharing negotiations. There is strong tribal support for efficient research proc...
Research Interests: Genetics, Native American Studies, Bioethics, Accountability, Public Relations, and 14 moreNegotiation, Medicine, Humans, United States, Biomedical Sciences, Data Sharing, Universities, Clinical Sciences, Information Dissemination, Community Networks, North American Indians, Genetic Data, Indigenous, and Translational Medical Research
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Lesbian, gay, bisexual, transgender, two-spirit, and American Indian and Alaska Native community members share long histories of discrimination and poorer health status as compared to mainstream Americans. In particular, these groups... more
Lesbian, gay, bisexual, transgender, two-spirit, and American Indian and Alaska Native community members share long histories of discrimination and poorer health status as compared to mainstream Americans. In particular, these groups experience bias-related victimization, a type of discrimination based on inherent traits such as race or ethnicity and sexual orientation. This cross-sectional study (N = 334) used a revised bias-related victimization measure and examined the relationship between self-reported bias-related victimization and generalized anxiety disorder, depression, and substance abuse among lesbian, gay, bisexual, transgender, and two-spirit American Indians and Alaska Natives. The results showed that 84.4% reported experiencing bias-related victimization. Those with the highest levels of bias-related victimization had 2.79 times (p = .009; 95% CI [1.30, 6.02]) the risk of reporting symptoms of generalized anxiety disorder as compared to those with no bias-related victimization, controlling for income, education, sex, age, sexual orientation, and chronic disease. There was no significant relationship between bias-related victimization and major depression or substance dependence/abuse. Our results support a potential relationship between bias-related victimization and generalized anxiety disorder for lesbian, gay, bisexual, transgender, and two-spirit American Indians and Alaska Natives. Including diverse populations in research is essential to a better understanding of the impact on health outcomes. Inclusion of bias-related victimization questions in clinical treatment may help identify at-risk patients.
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The Indian Health Service (IHS), an agency within the U.S. Department of Health and Human Services, was responsible for providing federal health services to 1.51 million American Indian and Alaska Natives in 2000. Several opportunities... more
The Indian Health Service (IHS), an agency within the U.S. Department of Health and Human Services, was responsible for providing federal health services to 1.51 million American Indian and Alaska Natives in 2000. Several opportunities related to health care exist for the IHS: potential public and private collaborations, continuation of the Clinton Administration's legacy of meaningful tribal consultation, and increasing the numbers of American Indian physicians, nurses, and other health related professionals. Modifications in federal programs such as Medicare and Medicaid pose a serious threat to the IHS because the IHS relies on these programs to offset the overall lack of funding. This article provides a framework for identifying the ways in which the external environment affects and determines the IHS' strategic responses to ensure competitiveness within the U.S. health care market. Value chain analysis will be used to evaluate the competitive advantages and disadvantages of the current IHS internal environment.
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Research Interests: Applied Ethics, Educational Measurement, Culture, Consumer Behavior, Capacity Building, and 16 moreCommunity Based Participatory Research, Curriculum, Self Efficacy, Humans, Comprehension, United States, Female, Male, Young Adult, Middle Aged, Certification, Adult, Consumer Participation, Ethics Research, Cooperative Behavior, and Alaska
The data-sharing policies of the National Institutes of Health aim to maximize public benefit derived from genetic studies by increasing research efficiency and use of a pooled data resource for future studies. Although broad access to... more
The data-sharing policies of the National Institutes of Health aim to maximize public benefit derived from genetic studies by increasing research efficiency and use of a pooled data resource for future studies. Although broad access to data may lead to benefits for populations underrepresented in genetic studies, such as indigenous groups, tribes have ownership interest in their data. The Northwest-Alaska Pharmacogenetic Research Network, a partnership involving tribal organizations and universities conducting basic and translational pharmacogenetic research, convened a meeting to discuss the collection, management, and secondary use of research data, and of the processes surrounding access to data stored in federal repositories. This article reports the tribal perspectives that emerged from the dialogue and discusses the implications of tribal government sovereign status on research agreements and data-sharing negotiations. There is strong tribal support for efficient research proc...