- Participation, Social Participation, Family Quality of Life, Disability Family Quality of Life, Family Functioning and Quality of Life, Disability Studies, and 190 moreDisability, Early Childhood Special Education, Special education (Psychology), Special Education, Gross Motor Development, Motor skills development, Child Motor Development, Prikaz Knjige, Book Reviews, Osuđeni, Family, Cerebral Palsy, Parents, Porodica, Porodični Kvalitet Života, Cerebralna Paraliza, Roditelji, Rehabilitation, Elderly People, Social Integration, Rehabilitacija, Stari, Socijalna Integracija, Somatopedija, Stare Osobe, Somatopedy, Disability Theory, Socijalna Participacija, Multipla Skleroza, Osobe sa invaliditetom, Invaliditet, Children With Special Educational Needs, Challenging Behaviour, Child Behavior Problems, Family Environment, Home Environment, Child’s Challenging Behaviour, Problemi U Ponašanju, Deca Sa Cerebralnom Paralizom, Participacija, Porodično Okruženje, Kućno Okruženje, Majke, HRQoL Health Related Quality of Life, Health-related Quality of Life, Children With Cerebral Palsy, Mothers of Children with Cerebral Palsy, Majke Dece S Cerebralnom Paralizom, Adolescents with Cerebral Palsy, Questionnaire for Parents, Parents of Children with Cerebral Palsy, Hrqol, Deca S Cerebralnom Paralizom, Adolescenti S Cerebralnom Paralizom, Kvalitet Života U Vezi Sa Zdravljem, Upitnik Za Roditelje, Roditelji Dece S Cerebralnom Paralizom, Literature Review, Literature Reviews, Family Member with a Disability, Fqol, Član Porodice Sa Ometenošću, Pregled Literature, Quality of life, Spinal Cord Injury, Paraplegia, Health Status, Quadriplegia, Tetraplegia, Spinal Cord Injury Rehabilitation, Spinal Cord Injuries, Spinal Cord Injuries/rehabilitation, Students with Cerebral Palsy, Pupils with Cerebral Palsy, Učenici S Cerebralnom Paralizom, Ometenost, Deca S Cerebralnom Paralizon, Deca Sa Cerebralnom Paralizon, Vocational Rehabilitation, Persons With Disability, Profesionalna Rehabilitacija, Zapošljavanje Osoba Sa Invaliditetom, Moral Development, Mentalna Retardacija, Intelektualna Ometenost, Mental Retardation or Intellectually Disability, Moralni Razvoj, Hippotherapy, Physical disability, Disability, Adapted Physical Activity, Cerebral Palsy and Hippotherapy, People with Motor Disorders, Children with Physical Disability, Hipoterapija, Terapijsko Jahanje, Osobe Sa Motoričkim Poremećajima, Telesna Invalidnost, Behavior Problems, Functional Profile, Homework Activities Participation, Homework Activity, Funkcionalni Profil, Schoolchildren with Cerebral Palsy, Domaći Zadaci, Učestvovanje U Aktivnostima Izrade Domaćih Zadataka, Homework, Inclusive Education, Special Education Needs and Inclusive Practice, Special and inclusive education, Environmental Barriers, Parents’ Perspective on Iclusion, Parents’ Perspective on Inclusion, Inclusion of Children with Cerebral Palsy in Regular Schools, Improving Inclusive Education Practice, Inkluzivno Obrazovanje, Sredinske Barijere, Perspektiva Roditelja, Uključivanje Dece Sa Cerebralnom Paralizom U Redovne Škole, Unapređivanje Inkluzivne Obrazovne Prakse, Inkluzivna Praksa, Specijalno Obrazovanje, Assessment, Health related Quality of Life, Rehabilitation outcomes measurement, Rehabilitation outcomes, Parental report, Self-report, Evaluacija, Parent Report, Quality of Life Evaluation, Children with Developmental Disorders, Children with Developmental Disorder, Children with Developmental Disabilities, Children with Chronic Disease, Parent Proxy-Report, Evaluation, Self Assessment, Self-Reported Quality of Life, Kvalitet Života, Deca S Teškoćama U Razvoju, Deca Sa Razvojnom Ometenošću, Razvojni Poremećaji, Deca S Hroničnim Bolestima, Procena, Samostalni Izveštaj O Kvalitetu Života, Ishodi Rehabilitacije, Procena Iz Perspektive Dece, Procena Iz Perspektive Roditelja, Samoprocena, Physical handicapped (Cerebral Palsy), Family Activities, Participation in Family Activities, Going on outings together, Porodične Aktivnosti, Participacija U Porodičnim Izlascima, Zajednički Izlasci, Učestalost participacije, Učestalost uključivanja, Participation in Home Environment, Home Environment Participation, Children with disabilities, Music Therapy for Children with Developmental Disabilities, Cultural activities, Leisure Time Activities, Leisure Activities, Leisure and Recreational Activities, Assessment of Life Habits, Life Habits, Kulturne Aktivnosti, Slobodne Aktivnosti, Deca Sa Smetnjama U Razvoju, Skala za procenu životnih navika, Životne Navike, Participacija U Kući, Aktivnosti Pripreme Za Školu, School preparation, Home Participation, Parents involvement at home and participation in school activities, Inclusion, Social Acceptance, Useful for Inclusive Education, Inkluzija, Društvena Prihvaćenost, Factors That Effect the Effectiveness of Inclusive Education, Inclusive education, pedagogy and practice, Contemporary issues in Education, Educational research and school practice, Inkluzivno Školstvo, Savremeno Obrazovanje, and Pedagoška Istraživanja I Školska Praksaedit
- PhD, Research Fellow at the Institute of Criminological and Sociological Research, Belgrade, Serbiaedit
Background Caregivers' reports often serve as a decision-making guide in the treatment and rehabilitation of children with cerebral palsy (CP). This study identified predictors of the caregiver-reported health-related quality of life... more
Background
Caregivers' reports often serve as a decision-making guide in the treatment and rehabilitation of children with cerebral palsy (CP). This study identified predictors of the caregiver-reported health-related quality of life (HRQoL) of school-age children with CP.
Methods
A cross-sectional study was conducted using the convenience sample of 108 children with CP (60 males; aged 7–18 years; mean age 12 years 8 months [SD 3 years 5 months]). Caregivers reported their child's HRQoL using KIDSCREEN-27. Standard multiple regression analyses were conducted to test if the child characteristics (gender, age, Gross Motor Function Classification System–Expanded & Revised [GMFCS–E&R], Manual Ability Classification System [MACS], intellectual disability, health problems, communication, social skills, behavioural difficulties); family characteristics (income, type, home adaptation); physical, social and attitudinal barriers; environmental features; and family-centeredness of service delivery significantly predicted HRQoL.
Results
Fine manual abilities, home adaptation and the magnitude of barriers predicted physical well-being. The child's challenging behaviour, the magnitude of barriers and the barriers related to different policies predicted psychological well-being. The home adaptation level and provision of general information about the child's disability and available types of services predicted HRQoL domain related to interactions and relationships with parents. Children with behavioural difficulties and more severe limitations in communication had less social support from friends and peers. The social skills and intellectual functioning combined with the parental ratings of the child's behaviour, other people's attitudes towards the child and the lack of support predicted HRQoL in the School Environment domain. The magnitude and frequency of barriers were the strongest predictors of general HRQoL.
Conclusion
From the caregivers' perspective, home adaptation, supportive laws and policies and family-centred rehabilitation care that meets the family needs may promote children's HRQoL. Specific interventions addressing modifiable environmental features and continuous support to children in improving their fine motor abilities, communication and social skills and families in managing behavioural difficulties may be relevant for HRQoL of school-age children with CP.
Caregivers' reports often serve as a decision-making guide in the treatment and rehabilitation of children with cerebral palsy (CP). This study identified predictors of the caregiver-reported health-related quality of life (HRQoL) of school-age children with CP.
Methods
A cross-sectional study was conducted using the convenience sample of 108 children with CP (60 males; aged 7–18 years; mean age 12 years 8 months [SD 3 years 5 months]). Caregivers reported their child's HRQoL using KIDSCREEN-27. Standard multiple regression analyses were conducted to test if the child characteristics (gender, age, Gross Motor Function Classification System–Expanded & Revised [GMFCS–E&R], Manual Ability Classification System [MACS], intellectual disability, health problems, communication, social skills, behavioural difficulties); family characteristics (income, type, home adaptation); physical, social and attitudinal barriers; environmental features; and family-centeredness of service delivery significantly predicted HRQoL.
Results
Fine manual abilities, home adaptation and the magnitude of barriers predicted physical well-being. The child's challenging behaviour, the magnitude of barriers and the barriers related to different policies predicted psychological well-being. The home adaptation level and provision of general information about the child's disability and available types of services predicted HRQoL domain related to interactions and relationships with parents. Children with behavioural difficulties and more severe limitations in communication had less social support from friends and peers. The social skills and intellectual functioning combined with the parental ratings of the child's behaviour, other people's attitudes towards the child and the lack of support predicted HRQoL in the School Environment domain. The magnitude and frequency of barriers were the strongest predictors of general HRQoL.
Conclusion
From the caregivers' perspective, home adaptation, supportive laws and policies and family-centred rehabilitation care that meets the family needs may promote children's HRQoL. Specific interventions addressing modifiable environmental features and continuous support to children in improving their fine motor abilities, communication and social skills and families in managing behavioural difficulties may be relevant for HRQoL of school-age children with CP.
Research Interests:
Potić, S., Milićević, M., & Šćepanović, M. (2012). Barijere i teškoće pri zapošljavanju osoba sa invaliditetom. U G. Nedović, S. Banković i S. Trgovčević (Ur.), Zbornik rezimea I stručno-naučnog skupa sa međunarodnim učešćem... more
Potić, S., Milićević, M., & Šćepanović, M. (2012). Barijere i teškoće pri zapošljavanju osoba sa invaliditetom. U G. Nedović, S. Banković i S. Trgovčević (Ur.), Zbornik rezimea I stručno-naučnog skupa sa međunarodnim učešćem „Aktuelnosti u edukaciji i rehabilitaciji osoba sa smetnjama u razvoju“, Šabac, 14-15. decembar 2012. (145). Novi Sad: Društvo defektologa Vojvodine. ISBN: 978-86-913605-3-5
Usled sve većeg prepoznavanja opasnosti povezanih sa sajber viktimizacijom i sajber vršnjačkim nasiljem usmerenim protiv osoba sa ometenošću, uočljiv je porast interesovanja za ovu pojavu. Oslanjajući se na nalaze studija ometenosti, cilj... more
Usled sve većeg prepoznavanja opasnosti povezanih sa sajber viktimizacijom i sajber vršnjačkim nasiljem usmerenim protiv osoba sa ometenošću, uočljiv je porast interesovanja za ovu pojavu. Oslanjajući se na nalaze studija ometenosti, cilj rada je da ukaže na osnovne karakteristike sajber vršnjačkog nasilja i sajber viktimizacije osoba sa ometenošću ili smetnjama u razvoju, prvenstveno dece i adolescenata. Najpre je približeno pojmovno određenje sajber viktimizacije i sajber vršnjačkog nasilja, uporedo sa viktimizacijom tradicionalnim vršnjačkim nasiljem. Nakon toga, izdvojeni su podaci o rasprostranjenosti ove pojave, kao i posledice, odnosno konsekvele koje obuhvataju funkcionalne i fenomenološke karakteristike, neželjene ishode i potencijalne protektivne faktore i faktore rizika. Analiza rezultata izdvojenih istraživanja o sajber viktimizaciji i sajber vršnjačkom nasilju u navedenoj populaciji je sprovedena kako bi se otvorila nova istraživačka pitanja i ukazalo na potrebu aktuali...
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PURPOSE This study aimed to characterize the participation in family activities in two groups of children: children with cerebral palsy (CP group) and children with typical development (TD group), with regard to diversity, frequency,... more
PURPOSE This study aimed to characterize the participation in family activities in two groups of children: children with cerebral palsy (CP group) and children with typical development (TD group), with regard to diversity, frequency, children's presence, and engagement. METHOD The convenience sample of this descriptive and comparative cross-sectional study conducted in Serbia included 48 children with CP and 74 children with TD, aged 7-12 years. Parents completed the Child Participation in Family Activities (Child-PFA) questionnaire. Mann-Whitney U test was used for data analysing. RESULTS Children with CP experienced less diverse and less frequent family activities compared to children with TD, with more pronounced differences in the diversity of family activities than in their frequency. In the occurring family activities, children with CP were present in a comparable proportion as children with TD. Once in an activity, children with CP were less engaged. CONCLUSIONS Our resul...
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Drawings are a significant determinant of children’s maturation and can be considered a reflection of the achieved level of a child’s intellectual abilities, but also an indicator of a child’s maturity and his or her emotional adaptation.... more
Drawings are a significant determinant of children’s maturation and can be considered a reflection of the achieved level of a child’s intellectual abilities, but also an indicator of a child’s maturity and his or her emotional adaptation. The aim of this study was to determine the developmental level of artistic expression in students with cerebral palsy through the estimation of developmental stage by interpreting human figure drawings, and through defining the characteristics of artistic expression in relation to gender, age, type of school, grade, and upper limbs laterality of students with cerebral palsy. The study was conducted on the sample of 37 elementary school students, of both genders, aged 8–19, and diagnosed with cerebral palsy. The developmental level of artistic expression was determined on the basis of the stages determined as the criteria for human figure drawings. The results show that in the population of students with cerebral palsy the most frequent developmenta...
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The aim of this paper is to allocate studies dealing with the identification of predictors and the definition of the importance, nature and extent of social participation of children with cerebral palsy in the school environment. A review... more
The aim of this paper is to allocate studies dealing with the identification of predictors and the definition of the importance, nature and extent of social participation of children with cerebral palsy in the school environment. A review of literature dealing with the subject will be carried out and the knowledge of the field systematized. The selected studies will be analyzed and the predictors and determinants of participation defined. Based on the analysis guidelines for the upgrade of social participation of children with cerebral palsy will be outlined and suggestions for the implementation of this knowledge in the practical work in inclusive terms given. The results suggest that there is a complex relation between disability, participation and school environment and that the predictors cannot be viewed as isolated entities but only as combined models of the interactive physical and cognitive-behavioral variables. The key steps in the professional intervention comprise the dev...
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Children with cerebral palsy (CP) are at increased risk of reduced participation. Parental evaluation of child's participation is often the decision-making factor in the process of special education and/or rehabilitation. Examine and... more
Children with cerebral palsy (CP) are at increased risk of reduced participation. Parental evaluation of child's participation is often the decision-making factor in the process of special education and/or rehabilitation. Examine and compare home and community participation of children with CP and typical development (TD) and the associations between their parents' desire for change and participation dimensions in both settings. This cross-sectional study included a convenience sample of 110 children with CP (55% males; mean age 12.7 years) and 134 children with TD (49% males; mean age 12.1 years). The Participation and Environment Measure for Children and Youth (PEM-CY) was used. Home and community participation and environmental supportiveness of children with CP were lower compared to children with TD (p < .001, family income controlled). The effect sizes indicated that there may be no clinically important difference in participation frequency. Parents of children with...
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During the last few decades, focus of rehabilitation outcome has been redirected to the lifetime monitoring of quality of life. The purpose of this study was to investigate the differences in quality of life perceptions between... more
During the last few decades, focus of rehabilitation outcome has been redirected to the lifetime monitoring of quality of life. The purpose of this study was to investigate the differences in quality of life perceptions between participants with spinal cord injury and participants of typical population. This cross-sectional controlled study of 100 adults aged 18-65 years was based on two questionnaires, Short Form-36 Health Survey (SF-36) and Spinal Cord Injury Quality of Life Questionnaire (QL-23), completed by 23 participants with paraplegia, 21 participants with tetraplegia, and 56 participants of typical population. Mann-Whitney U-test for planned comparison between groups and χ(2) test were used to analyze the differences between research groups. Participants from control group perceived their general quality of life at higher level in comparison to participants with spinal cord injury (U=415.000, z=-5.804, P<0.000). Negative influence of spinal cord injury was detected in s...
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SUMMARYFor more than three decades, assisted reproductive techniques (ART) have been used as effective treatments to overcome infertility. Since then, numerous studies have been focused on different aspects of long-term health and... more
SUMMARYFor more than three decades, assisted reproductive techniques (ART) have been used as effective treatments to overcome infertility. Since then, numerous studies have been focused on different aspects of long-term health and development of children born after assisted conception. The aim of this paper is to summarize new data on multiple pregnancy and preterm delivery as one of the risk factors which might increase the risk of developing cerebral palsy (CP) in children born after assisted conception.A comprehensive search of eight databases retrieved 108 papers, 10 of which met inclusion criteria and were relevant for this review.Despite the dissimilarities in methodological and analytic approaches in the selected studies, in vitro fertilization (IVF) and intracytoplasmic sperm injection (ICSI) are generally considered safe, still there is an ongoing discussion whether multiple pregnancy and preterm delivery increase or do not increase the risk of CP in children born after ass...
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Abstract This study was designed to identify the major obstacles in implementing inclusive principles in mainstream schools and to analyze different aspects of the teachers’ attitude towards inclusive education. A total of 112 teachers... more
Abstract This study was designed to identify the major obstacles in implementing inclusive principles in mainstream schools and to analyze different aspects of the teachers’ attitude towards inclusive education. A total of 112 teachers completed a questionnaire which contained 8 categories of items regarding knowledge of specific terminology, practice of inclusive education and prejudices towards children with special needs. The study revealed significant differences between teachers of different ages regarding the knowledge of main concepts of inclusion. There are also major confusions regarding the difference between inclusive education and integrated education.
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The benefits of having a database or registry of people with disabilities, methodological obstacles and their overcoming strategies are identified in this current topic. Benefits include a summarization of the clinical and demographic... more
The benefits of having a database or registry of people with disabilities, methodological obstacles and their overcoming strategies are identified in this current topic. Benefits include a summarization of the clinical and demographic profile of disabilities at a particular geographic region, providing support for overcoming systemic barriers, improvement of health policy, special services recognition and rendering, customized programs and regulated management of available resources. Methodological barriers refer to the lack of standardization in case-by-case assessments and the consequently questionable accuracy of diagnostic and anamnestic data. Attention should be paid to the use of various definitions, classifications and coding algorithms. The quality of data obtained from systems that were primarily founded for administrative and financial purposes may differ significantly from the data collected by analysing internal databases of health and educational or social welfare institutions. As a conclusion, important steps for the initiation process of founding a national or regional database or registry of people with disabilities are introduced and listed. They should incorporate an analysis of the implementation of various founding models, appropriate strategies selection, an examination of available data sources and information systems, verification of data standards, and methodology of collecting data, including an electronic exchange of health-related data.
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In Serbia, there is a paucity of research on characteristics of the population of imprisoned persons with compulsory drug addiction treatment imposed as a security measure. This study was aimed to analyze and report the characteristics of... more
In Serbia, there is a paucity of research on characteristics of the population of imprisoned persons with compulsory drug addiction treatment imposed as a security measure. This study was aimed to analyze and report the characteristics of the population of persons with this security measure imposed in different regions of Serbia, and a population of 1,638 offenders (91.5% males, mean age 36.6 years) was included. The most important similarities were in the prison sentence length and recidivism rate. Among differences, those related to gender, marital status, prison or other sentences, previous convictions, and the age of offenders at the time of study and when the sentence began, and the type of criminal offence were confirmed. The identification of the sociodemographic profile of offenders with compulsory drug addiction treatment in different regions of the Republic of Serbia could allow the target population detection, and development and implementation of appropriate preventive measures.
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One of the most important topics in contemporary criminology refers to the functioning of penitentiary systems. Special emphasis is on the role of environment and the impact that environmental factors have on the behaviour of convicts and... more
One of the most important topics in contemporary criminology refers to the functioning of penitentiary systems. Special emphasis is on the role of environment and the impact that environmental factors have on the behaviour of convicts and successfulness of their social reintegration, as the imprisonment purpose. Within life, as a multidimensional construct, and the effect of social and moral climate on the overall and future these concepts was conducted through a review of available literature. This study might prison life, it would be possible to improve both prisoner treatment and superintendence. social climate, crime, prison conditions,
The novel coronavirus disease (COVID-19) pandemic crisis presents a considerable challenge to the population of people living with disabilities. The main purpose of this paper was to identify the emerging research areas in disability... more
The novel coronavirus disease (COVID-19) pandemic crisis presents a considerable challenge to the population of people living with disabilities. The main purpose of this paper was to identify the emerging research areas in disability studies related to COVID-19 in order to set out the immediate priorities and longer-term strategies for science research and evidence-based practises. Prioritized topics in public health and general health-related topics were discussed, including cognitive sequelae and various neurological manifestations in COVID-19 survivors with disabilities, new surveillance or data collection systems, strategies of improving the health protection measures for people living with disabilities, and the question of equity in access to medical care. Service disruptions have highlighted the importance of implementation of the biopsychosocial model and evidence-based service decisions and that future research should be directed towards the problems of adaptation and management of outpatient and inpatient clinical work, pandemic-specific information needs and standardization of the best-practice rehabilitation protocols. Geographic information system methods or a spatial analysis was recommended. Particular attention was called to the research and innovative approaches to telehealth or telemedicine in therapeutic, rehabilitation, assessment and follow-up purposes, as well as the raising ethical issues related to using disability as a factor in denying life-saving treatment. High-quality research standards, multidisciplinary and intersectoral approach with a global perspective and international research results comparisons were suggested. The upcoming findings of disability studies would certainly improve the society's ability to adjust and prepare for a re-emergence of COVID-19.
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This descriptive and exploratory study aimed to examine the relationship between family-centeredness of service delivery and home and community participation of children with cerebral palsy. It was hypothesized that there would be a... more
This descriptive and exploratory study aimed to examine the relationship between family-centeredness of service delivery and home and community participation of children with cerebral palsy. It was hypothesized that there would be a significant association between family-centeredness of service delivery and parental satisfaction with home and community participation in the group of school-aged children with cerebral palsy. A convenience sample included 110 children with cerebral palsy, aged 7-18 years (55% males; M age = 12.7 years, SD = 3.41). The Measure of Processes of Care (MPOC-20) was used to assess the extent to which parents of children with cerebral palsy perceived health and rehabilitation services they had been receiving as being family-centred. Overall parental satisfaction with their child's home and community participation was evaluated by The Participation and Environment Measure for Children and Youth (PEM-CY). Analyses were performed using Spearman's rank correlation test. Only two out of 10 tested correlations reached the level of statistical significance, both in home environment. Parents who had higher overall satisfaction with their child's current home and community participation perceived certain aspects of health and rehabilitation services as being family-centred to a greater extent (general and specific information). The fulfilment of parents' needs by presenting them general and child-related information could have a positive effect on their satisfaction with their child's home participation. The findings suggest insufficient representation of the concept of participation and family-centred work principles in service planning and the evaluation of outcomes of the applied programs.
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U ovom tekstu prikazane su aktuelne teorijske rasprave o participaciji. Smatra se da je participacija dokaz promena koje su načinjene prelaskom sa medicinskog na socijalni, a potom i biopsihosocijalni model sagledavanja ometenosti,... more
U ovom tekstu prikazane su aktuelne teorijske rasprave o participaciji. Smatra se da je participacija dokaz promena koje su načinjene prelaskom sa medicinskog na socijalni, a potom i biopsihosocijalni model sagledavanja ometenosti, odnosno različitih zdravstvenih stanja, te da govori u prilog opravdanosti promena koje su započele u poslednjim decenijama XX veka. Polazeći od postojeće definicije i biopsihosocijalnog modela na kome se temelji, ovaj pojam se razgraničava od pojmova sa kojima se najčešće dovodi u vezu. Takođe, traga se za odgovorom na pitanje o razlozima rasprostranjenosti interesovanja za participaciju u studijama ometenosti. Nakon osvrta na prirodu participacije, a posebno na njeno mesto u modelu Međunarodne klasifikacije funkcionisanja, invalidnosti i zdravlja, ukazano je da su mogućnosti operacionalizacije, merenja i optimalizacije jedno od mogućih objašnjenja. Razmatra se paralelna subjektivna i objektivna priroda participacije uz težnju da se izdvoje i ustanove promene i savremeni tokovi u načinu sagledavanja ovog koncepta. Izdvojena je kritika koja se odnosi na nedovoljno jasnu distinkciju između aktivnosti i participacije. Novije rasprave o kriterijumima za njihovo razdvajanje su rezultirale iniciranjem uvođenja subjektivng doživljaja uključenosti kao trećeg kvalifikatora. Rezultati ove studije ilustruju da je potrebno dalje ispitivati, teorijski i empirijski, opravdanost ovog predloga.
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In this article, the authors try to present and analyze the benefits of establishing a national and/or regional database or a register of persons with developmental disabilities, disability or chronic illness. Starting from the basic... more
In this article, the authors try to present and analyze the benefits of establishing a national and/or regional database or a register of persons with developmental disabilities, disability or chronic illness. Starting from the basic assumptions and justification of the formation national database, possible methodological barriers and possible approaches to overcoming them are presented, as well as alternative solutions for the first steps towards the establishment of a national register. In conclusion, it is suggested to first examine the feasibility of implementing various models of the establishing a national and/or regional database or register, with an emphasis on selecting appropriate strategies. Increasing the quality of data and improving the methodology for their collecting is one of the expected outcomes of inter-institutional cooperation between the health system, the education system and the social protection system.
U ovom tekstu autori nastoje da prikažu i analiziraju prednosti osnivanja nacionalne i/ili regionalne baze podataka ili registra osoba sa razvojnim smetnjama, invaliditetom ili hroničnom bolešću. Polazeći od osnovnih postavki i opravdanosti formiranja nacionalne baze podataka, izložene su moguće prepreke metodološke prirode i ponuđeni mogući pristupi u njihovom prevazilaženju, kao i alternativna rešenja za prve korake ka osnivanje nacionalnog registra. U zaključku, predloženo je da se najpre ispita izvodljivost implementacije različitih modela osnivanja nacionalne i/ili regionalne baze podataka ili registra, sa akcentom na odabiru odgovarajućih strategija. Podizanje kvaliteta podataka i unapređivanje metodologije njihovog prikupljanja je jedan od očekivanih ishoda međuinstitucionalne saradnje zdravstvenog sistema, obrazovnog sistema i sistema socijalne zaštite.
U ovom tekstu autori nastoje da prikažu i analiziraju prednosti osnivanja nacionalne i/ili regionalne baze podataka ili registra osoba sa razvojnim smetnjama, invaliditetom ili hroničnom bolešću. Polazeći od osnovnih postavki i opravdanosti formiranja nacionalne baze podataka, izložene su moguće prepreke metodološke prirode i ponuđeni mogući pristupi u njihovom prevazilaženju, kao i alternativna rešenja za prve korake ka osnivanje nacionalnog registra. U zaključku, predloženo je da se najpre ispita izvodljivost implementacije različitih modela osnivanja nacionalne i/ili regionalne baze podataka ili registra, sa akcentom na odabiru odgovarajućih strategija. Podizanje kvaliteta podataka i unapređivanje metodologije njihovog prikupljanja je jedan od očekivanih ishoda međuinstitucionalne saradnje zdravstvenog sistema, obrazovnog sistema i sistema socijalne zaštite.
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Two distinct ways of conceptualising disability are the medical and social models of disability. The first one takes disability exclusively as a direct consequence of physical and mental impairment or as a problem that requires medical... more
Two distinct ways of conceptualising disability are the medical and social models of disability. The first one takes disability exclusively as a direct consequence of physical and mental impairment or as a problem that requires medical intervention. The second one sees disability as a socially conditioned phenomenon caused by environmental circumstances. The central theoretical assumption of this paper is that the different positions from which the relationship between impairment and disability is considered will inevitably reflect on the prevailing recognition of child protection. It is necessary to examine the protection process by evaluating several different approaches to disability because the way disability is understood affects the issues that must be addressed regarding the lives of children with disability, including finding the most appropriate way to resolve them. Following key literature, the author attempts to present previous theoretical discussions on the relationship between impairment and disability, as well as its repercussions on the child's position and protection. Starting from the former and contemporary definitions and models of disability on which they are based, the author considers differences between the disability concepts and illustrates the consequences that this could have on the position and protection of a child.
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Introduction/Objective Limitations of mobility and motor deficits are identified as the predominant in the clinical picture of cerebral palsy. This research aimed to describe the profile of motor abilities of children with cerebral palsy,... more
Introduction/Objective Limitations of mobility and motor deficits are identified as the predominant in the clinical picture of cerebral palsy. This research aimed to describe the profile of motor abilities of children with cerebral palsy, which included gross motor, manual and bimanual fine motor functions, and to determine the extent to which their functional independence in self-care and mobility was influenced by the profile of their motor abilities.
Methods A convenience sample of 117 participants with cerebral palsy (56.4% males), aged 7–18 years (M= 13.2, SD = 3.4), was included. The profile of motor abilities consisted of gross motor, manual and bimanual fine motor functions. The Gross Motor Function Classification System – Expanded and Revised, Manual Ability Classification System, Bimanual Fine Motor Function and the Functional Independence Measure – version for Children, were used. Data were analyzed by descriptive statistics and hierarchical multiple regression.
Results More than a half of sample exhibited different levels of gross motor, manual and bimanual function. Lower functional independence in self-care and mobility was associated with higher functional limitations. Manual abilities were the strongest predictor of functional independence in self-care (β = -0.63, p < 0.001), while gross motor functions were the strongest predictor in the mobility domain (β = -0.65, p < 0.001).
Conclusion Improvement of gross motor and manual abilities of children with cerebral palsy is confirmed as one of the basic preconditions for achieving a greater independence and for minimizing or eliminating a need for assistance in mobility and in everyday self-care activities.
Keywords: cerebral palsy; functional performance; mobility; self-care; motor functions
Methods A convenience sample of 117 participants with cerebral palsy (56.4% males), aged 7–18 years (M= 13.2, SD = 3.4), was included. The profile of motor abilities consisted of gross motor, manual and bimanual fine motor functions. The Gross Motor Function Classification System – Expanded and Revised, Manual Ability Classification System, Bimanual Fine Motor Function and the Functional Independence Measure – version for Children, were used. Data were analyzed by descriptive statistics and hierarchical multiple regression.
Results More than a half of sample exhibited different levels of gross motor, manual and bimanual function. Lower functional independence in self-care and mobility was associated with higher functional limitations. Manual abilities were the strongest predictor of functional independence in self-care (β = -0.63, p < 0.001), while gross motor functions were the strongest predictor in the mobility domain (β = -0.65, p < 0.001).
Conclusion Improvement of gross motor and manual abilities of children with cerebral palsy is confirmed as one of the basic preconditions for achieving a greater independence and for minimizing or eliminating a need for assistance in mobility and in everyday self-care activities.
Keywords: cerebral palsy; functional performance; mobility; self-care; motor functions
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Osnovne psihometrijske karakteristike i faktorska struktura Skale procene problematičnog ponašanja deteta (CCBS-2): primenljivost verzije na srpskom jeziku [Basic psychometric characteristics and factor structure of the Child’s Challenging Behaviour Scale, ver.2: Applicability of Serbian version]more
U radu su prikazane osnovne psihometrijske karakteristike srpskog prevo-da Skale procene problematičnog ponašanja deteta (Child's Challenging Behaviour Scale, Version 2-CCBS-2). Istraživanje je sprovedeno na pri-godnom uzorku od 82... more
U radu su prikazane osnovne psihometrijske karakteristike srpskog prevo-da Skale procene problematičnog ponašanja deteta (Child's Challenging Behaviour Scale, Version 2-CCBS-2). Istraživanje je sprovedeno na pri-godnom uzorku od 82 ispitanika s cerebralnom paralizom (57,3% muškog pola), starosti 7-18 godina, prosečno 12 god. 7 mes. (SD = 3 god. 6 mes.). Rezultati upućuju na vrlo dobre psihometrijske karakteristike CCBS-2 ska-le obzirom na sadržajnu i konstruktivnu validnost, kao i unutrašnju konzi-stentnost. Eksplorativnom faktorskom analizom je utvrđena jednofaktorska struktura skale na ispitanom uzorku, čime je potvrđena pretpostavljena faktorska struktura originalnog instrumenta. Rezultati ukazuju da je skala CCBS-2 na srpskom jeziku koristan i kratak instrument koji ispunjava svo-ju primarnu namenu, a to je merenje zastupljenosti problematičnog ponaša-nja kod dece s cerebralnom paralizom iz perspektive detetove majke.
The paper presents the basic psychometric characteristics of the Serbian translation of the Child’s Challenging Behaviour Scale, Version 2 (CCBS–2). The study was conducted on a convenience sample of 82 participants with cerebral palsy (57.3% males), aged 7–18 years (mean age 12y 7mo [SD 3y 6mo]). The results indicated very good psychometric characteristics of CCBS-2 scales due to its both content and constructive validity, as well as its good internal consistency. Exploratory factor analysis supported the unidimensionality of the scale structure, thus confirming the pre-assumed factor structure of the original instrument. The results demonstrate that the Serbian version of CCBS–2scale is valuable and brief instrument that fulfills its primary purpose, which is measuring the prevalence of challenging behaviour in children with cerebral palsy from the perspective of the child's mother.
The paper presents the basic psychometric characteristics of the Serbian translation of the Child’s Challenging Behaviour Scale, Version 2 (CCBS–2). The study was conducted on a convenience sample of 82 participants with cerebral palsy (57.3% males), aged 7–18 years (mean age 12y 7mo [SD 3y 6mo]). The results indicated very good psychometric characteristics of CCBS-2 scales due to its both content and constructive validity, as well as its good internal consistency. Exploratory factor analysis supported the unidimensionality of the scale structure, thus confirming the pre-assumed factor structure of the original instrument. The results demonstrate that the Serbian version of CCBS–2scale is valuable and brief instrument that fulfills its primary purpose, which is measuring the prevalence of challenging behaviour in children with cerebral palsy from the perspective of the child's mother.
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U ovom radu autori su nastojali da prikažu bihejvioralne, emocionalne i socijalne teškoće dece i adolescenata sa disleksijom i smetnjama u razvoju govorno-jezičkih sposobnosti, kroz kratak osvrt na istraživanja njihovog bihejvioralnog... more
U ovom radu autori su nastojali da prikažu bihejvioralne, emocionalne i socijalne teškoće dece i adolescenata sa disleksijom i smetnjama u razvoju govorno-jezičkih sposobnosti, kroz kratak osvrt na istraživanja njihovog bihejvioralnog profila i njihovih psihičkih teškoća, prvenstveno emocionalne i socijalne prirode. Istraživačka literatura je pokazala da su deca sa specifičnim jezičkim poremećajima i poremećajima govora, kao i deca sa poremećajima čitanja, odnosno disleksijom, pod povećanim rizikom od poremećaja ponašanja. Potvrđen je širok dijapazon detektovanih problema, uz razlike koje su nađene u odnosu na informante. Nalazi o dominantnoj zastupljenosti eksternalizovane naspram internalizovane simpotomatologije problema u ponašanju kod dece iz ovih populacije su oprečni. Longitudinalni nalazi ukazuju da se smer uticaja kreće od jezičkih sposobnosti ka ponašanju. Odatle, bihejvioralni profil bi trebalo da bude sastavni deo dijagnostičke procene dece sa poremećajima govora i/ili jezika. Isto, tretman jezičkih sposobnosti mora biti neizostavni deo preventivnih programa i tretmana poremećaja pažnje i eksternalizovanih poremećaja ponašanja.
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Purpose: This cross-sectional study explored home participation of children with and without cerebral palsy aged 7–18 years and the effect of the environment on this participation. Method: A convenience sample of 110 children with... more
Purpose: This cross-sectional study explored home participation of children with and without cerebral palsy aged 7–18 years and the effect of the environment on this participation.
Method: A convenience sample of 110 children with cerebral palsy (55% males; mean age 12.7 years) and 134 children without cerebral palsy (49% males; mean age 12.0 years) was included. Parents completed the Participation and Environment Measure for Children and Youth. Mann–Whitney U-test, χ2 tests and radar plots were used to analyze item-level differences between two groups. Participation of children with cerebral palsy was analyzed subsequently in relation to their functional limitations using the Spearman’s rank correlation.
Results: Children with cerebral palsy participated in home activities less than children without cerebral palsy did, as perceived by their parents. The least differences were observed in activities that typically did not require much physical engagement. Number of activities done at home and the involvement level mostly correlated with fine manual and intellectual functioning. Barriers included physical layout, factors related to the activity (physical and cognitive demands), and limited resources (services, information, money).
Conclusions: It is important to understand the uniqueness of each home environment in order to enhance participation of children with cerebral palsy in home setting.
Method: A convenience sample of 110 children with cerebral palsy (55% males; mean age 12.7 years) and 134 children without cerebral palsy (49% males; mean age 12.0 years) was included. Parents completed the Participation and Environment Measure for Children and Youth. Mann–Whitney U-test, χ2 tests and radar plots were used to analyze item-level differences between two groups. Participation of children with cerebral palsy was analyzed subsequently in relation to their functional limitations using the Spearman’s rank correlation.
Results: Children with cerebral palsy participated in home activities less than children without cerebral palsy did, as perceived by their parents. The least differences were observed in activities that typically did not require much physical engagement. Number of activities done at home and the involvement level mostly correlated with fine manual and intellectual functioning. Barriers included physical layout, factors related to the activity (physical and cognitive demands), and limited resources (services, information, money).
Conclusions: It is important to understand the uniqueness of each home environment in order to enhance participation of children with cerebral palsy in home setting.
Research Interests:
U zdravstvu je proteklih decenija veliki značaj dat dobrim interpersonalnim i komunikacionim veštinama kao jednim od ključnih osobina zdravstvenih radnika. Brojna istraživanja empirijskog karaktera su pratila uticaj koji interpersonalna... more
U zdravstvu je proteklih decenija veliki značaj dat dobrim interpersonalnim i komunikacionim veštinama kao jednim od ključnih osobina zdravstvenih radnika. Brojna istraživanja empirijskog karaktera su pratila uticaj koji interpersonalna komunikacija ima na ponašanje pacijenata, ishod lečenja i zadovoljstvo uslugom. Cilj ovog rada je bio da se prikaže zdravstvena komunikacija, kroz kratak osvrt na istraživanja usmerena na neverbalnu komunikaciju, u interakciji između lekara, kao zdravstvenog radnika i pacijenta, kao korisnika zdravstvenih usluga. Na osnovu uvida u dostupnu literaturu dat je pregled istraživanja usmerenih na neverbalnu komunikaciju u interakciji između lekara i pacijenta. Karakteristike neverbalnog ponašanja u interakciji, kao profesionalnom kontaktu između lekara i pacijenta, sagledane su sa aspekta zdravstvene komunikacije. Rezultati su potvrdili da je interpersonalna komunikacija lekara i pacijenta složena, dinamična i pod višestrukim uticajem čitavog spektra različitih faktora. Veštine neverbalne komunikacije lekara su povezane sa mnoštvom pozitivnih rezultata ishoda, kao što su zadovoljstvo pacijenta i lekara, viši nivoi pridržavanja terapijskih preporuka, poboljšani fiziološki pokazatelji i kontrola bolesti, poboljšanje fizičkog i mentalnog zdravlja i funkcionalnog statusa. Razumevanjem interpersonalne komunikacije u okviru dijade lekar–pacijent stvara se dobra osnova za unapređenje efektivnosti i podizanje kvaliteta zdravstvenih usluga.
Ključne reči: ponašanje; neverbalna komunikacija; medjuljudski odnosi; odnosi lekar-pacijent; zdravstveni radnici.
Ključne reči: ponašanje; neverbalna komunikacija; medjuljudski odnosi; odnosi lekar-pacijent; zdravstveni radnici.
Research Interests:
Background Children with cerebral palsy (CP) are at increased risk of reduced participation. Parental evaluation of child’s participation is often the decision-making factor in the process of special education and/or rehabilitation. Aims... more
Background
Children with cerebral palsy (CP) are at increased risk of reduced participation. Parental evaluation of child’s participation is often the decision-making factor in the process of special education and/or rehabilitation.
Aims
Examine and compare home and community participation of children with CP and typical development (TD) and the associations between their parents’ desire for change and participation dimensions in both settings.
Methods and procedures
This cross-sectional study included a convenience sample of 110 children with CP (55% males; mean age 12.7 years) and 134 children with TD (49% males; mean age 12.1 years). The Participation and Environment Measure for Children and Youth (PEM-CY) was used.
Outcomes and results
Home and community participation and environmental supportiveness of children with CP were lower compared to children with TD (p < .001, family income controlled). The effect sizes indicated that there may be no clinically important difference in participation frequency. Parents of children with CP desired change if participation was less diverse at home, less frequent in the community, or if involvement was lower in both settings (environmental supportiveness and income controlled).
Conclusions and implications
At home, parents expressed a desire for change more intensely through the range of activities, while parents of children with TD emphasized participation frequency. In the community, parents of children with CP equally perceived participation diversity and focused more on frequency and involvement.
Children with cerebral palsy (CP) are at increased risk of reduced participation. Parental evaluation of child’s participation is often the decision-making factor in the process of special education and/or rehabilitation.
Aims
Examine and compare home and community participation of children with CP and typical development (TD) and the associations between their parents’ desire for change and participation dimensions in both settings.
Methods and procedures
This cross-sectional study included a convenience sample of 110 children with CP (55% males; mean age 12.7 years) and 134 children with TD (49% males; mean age 12.1 years). The Participation and Environment Measure for Children and Youth (PEM-CY) was used.
Outcomes and results
Home and community participation and environmental supportiveness of children with CP were lower compared to children with TD (p < .001, family income controlled). The effect sizes indicated that there may be no clinically important difference in participation frequency. Parents of children with CP desired change if participation was less diverse at home, less frequent in the community, or if involvement was lower in both settings (environmental supportiveness and income controlled).
Conclusions and implications
At home, parents expressed a desire for change more intensely through the range of activities, while parents of children with TD emphasized participation frequency. In the community, parents of children with CP equally perceived participation diversity and focused more on frequency and involvement.
Research Interests:
Cilj istraživanja je da se, utvrđivanjem stepena primene pristupa usmerenog na porodicu, ispita kvalitet saradnje i podrške pružene od strane ustanova i stručnjaka. Procena je vršena iz perspektive roditelja dece s cerebralnom paralizom,... more
Cilj istraživanja je da se, utvrđivanjem stepena primene pristupa usmerenog na porodicu, ispita kvalitet saradnje i podrške pružene od strane ustanova i stručnjaka. Procena je vršena iz perspektive roditelja dece s cerebralnom paralizom, kao jednim od najtežih stanja čije se posledice značajno odražavaju i na porodično funkcionisanje. Studija preseka je obuhvatila 111 roditelja dece s cerebralnom paralizom, starosti 7–18 godina. Primenjena je skala Merenje procesa nege (Measure of Processes of Care – MPOC-20). Uočeno je da pristup usmeren na porodicu u najmanjem stepenu dolazi od ustanove (p<0,001). Jake strane saradnje se ogledaju u partnerskom odnosu roditelja i stručnjaka koji odlikuju ravnopravnost, pozitivan i individualan pristup, međusobna saradnja i timski rad. Ukazano je na potrebu da se poboljša kvalitet pruženih usluga uvažavajući pristup usmeren na porodicu. Preporučuje se jasno, otvoreno i objektivno deljenje potpunih informacija koje se tiču deteta i njegovog stanja, ohrabrivanje i upućivanje porodice na korišćenje podrške iz zajednice.
Ključne reči: pristup usmeren na porodicu, cerebralna paraliza, saradnja, usluge, podrška porodicama, roditeljska procena, perspektiva roditelja
The aim of the research was to explore the quality of cooperation and support provided by institutions and professionals by determining the level of implementation of family-centered approach. The assessment was conducted from the perspective of parents of children with cerebral palsy, as one of the most difficult conditions whose consequences were also significantly reflected on family functioning. This cross-sectional study included 111 parents of children with cerebral palsy, aged 7–18 years. The Measure of Processes of Care – MPOC-20 was used. It was noted that the lowest extent of family-centered approach originated from an institution (p<0.001). The strengths of cooperation were reflected in the partnership of parents and professionals, which was characterized by equality, positive and individual approach of experts, as well as by mutual cooperation, compliance, and teamwork. A need to improve the quality of provided services by taking into account the family-centred approach was indicated. Clear, open and objective sharing of complete information, as those related to the child and his condition, and those that would encourage families to make use of support from the community were recommended.
Key words: family-centered approach, cerebral palsy, multiple disabilities, cooperation, services, family support, parental evaluation, perspective of parents
Ključne reči: pristup usmeren na porodicu, cerebralna paraliza, saradnja, usluge, podrška porodicama, roditeljska procena, perspektiva roditelja
The aim of the research was to explore the quality of cooperation and support provided by institutions and professionals by determining the level of implementation of family-centered approach. The assessment was conducted from the perspective of parents of children with cerebral palsy, as one of the most difficult conditions whose consequences were also significantly reflected on family functioning. This cross-sectional study included 111 parents of children with cerebral palsy, aged 7–18 years. The Measure of Processes of Care – MPOC-20 was used. It was noted that the lowest extent of family-centered approach originated from an institution (p<0.001). The strengths of cooperation were reflected in the partnership of parents and professionals, which was characterized by equality, positive and individual approach of experts, as well as by mutual cooperation, compliance, and teamwork. A need to improve the quality of provided services by taking into account the family-centred approach was indicated. Clear, open and objective sharing of complete information, as those related to the child and his condition, and those that would encourage families to make use of support from the community were recommended.
Key words: family-centered approach, cerebral palsy, multiple disabilities, cooperation, services, family support, parental evaluation, perspective of parents
Research Interests:
U radu su ispitana osnovna obeležja strukture sredinskih faktora značajnih za participaciju u kućnom okruženju dece s cerebralnom paralizom u odnosu na decu tipičnog razvoja. Obuhvaćeno je 110 ispitanika s cerebralnom paralizom i 134... more
U radu su ispitana osnovna obeležja strukture sredinskih faktora značajnih za participaciju u kućnom okruženju dece s cerebralnom paralizom u odnosu na decu tipičnog razvoja. Obuhvaćeno je 110 ispitanika s cerebralnom paralizom i 134 ispitanika tipičnog razvoja. Primenjen je Test za procenu participacije i okruženja – Deca i mladi (PEM-CY; Coster, Law & Bedell, 2010), odeljak Kućno okruženje. Poređenjem ovih struktura potvrđeno je da postoji više barijera i manje facilitatora u kućnom okruženju ispitanika s cerebralnom paralizom, da je ono manje podržavajuće, sredinski faktori zbirno manje ocenjeni kao olakšavajući za participaciju, a resursi u kući u manjem procentu dostupni i/ili adekvatni. Svaki deo sredinske strukture ima nezavisan i jedinstven doprinos u objašnjavanju statističkih razlika između grupa, a kao najjači prediktor izdvaja se broj barijera. Umanjenje broja barijera, odnosno uklanjanje otežavajućeg uticaja sredinskih faktora uz istovremeno ojačavanje njihove facilitatorske uloge, moguć je način usklađivanja podrške okruženja i participacionog potencijala dece iz ove populacije.
KLJUČNE REČI: kućno okruženje / barijere / facilitatori / uključivanje / cerebralna paraliza
KLJUČNE REČI: kućno okruženje / barijere / facilitatori / uključivanje / cerebralna paraliza
Research Interests:
The research was conducted in order to examine and compare the association of participation in family activities and family quality of life of children with cerebral palsy and children with typical development. According to the hypothesis... more
The research was conducted in order to examine and compare the association of participation in family activities and family quality of life of children with cerebral palsy and children with typical development. According to the hypothesis set, participation in family activities is positively associated with family quality of life. One hundred and ten participants with cerebral palsy, of both gender, aged from seven to 18 years and 134 participants with typical development were included, with no statistically significant differences in relation to their gender and age. As indicators, the frequency of family activities, presence of participants and level of their involvement were selected, as well as the level of parental satisfaction with certain aspects of family life. The Child Participation in Family Activities Questionnaire (Child-PFA) and the Beach Center Family Quality of Life Scale (Beach FQOL Scale) were used. The relations were different than expected. In the group of participants with cerebral palsy, statistical significance of a smaller number of positive correlations was confirmed than in the group of participants with typical development. Additionally, the difference was observed in the presence of older participants with cerebral palsy (13–18 years) in organized activities through statistically significant negative and low to moderate correlation (p < .05). The family environment is the primary environment of a child. Therefore, a better quality of life at the family level could have a positive effect on certain characteristics of participation of children with cerebral palsy. Although the hypothesis was not confirmed, it was confirmed that changes in participation in family activities of children with cerebral palsy, as multiple disability, were associated with the quality of life of the whole family.
Keywords: participation, cerebral palsy, family, family activities, quality of family life
Istraživanje je sprovedeno sa ciljem da se ispita i uporedi međusobna povezanost participacije u porodičnim aktivnostima i porodičnog kvaliteta života dece s cerebralnom paralizom i dece tipičnog razvoja. Postavljena je hipoteza prema kojoj je participacija u porodičnim aktivnostima pozitivno povezana sa porodičnim kvalitetom života. Obuhvaćeno je 110 ispitanika s cerebralnom paralizom, oba pola, starosti od sedam do 18 godina i 134 ispitanika tipičnog razvoja, bez statističke značajnosti razlike u odnosu na pol i uzrast. Kao indikatori, odabrani su frekventnost porodičnih aktivnosti, učestvovanje ispitanika i stepen njihove uključenosti, uz stepen roditeljskog zadovoljstva pojedinim aspektima porodičnog života. Primenjeni su Upitnik o participaciji deteta u porodičnim aktivnostima (Child Participation in Family Activities Questionnaire – Child-PFA) i Skala porodičnog kvaliteta života (Beach Center Family Quality of Life Scale – Beach FQOL Scale). Rezultati su ukazali na odstupanja od očekivanih relacija. U grupi ispitanika s cerebralnom paralizom je potvrđena statistička značajnost manjeg broja pozitivih korelacija nego u grupi ispitanika tipičnog razvoja. Takođe, odstupanje je uočeno kod prisustvovanja starijih ispitanika s cerebralnom paralizom (13–18 godina) organizovanim aktivnostima kroz statistički značajne negativne i niske do umerene korelacije (p < 0,05). Porodično okruženje je primarno sredinsko okruženje deteta, te bi bolji kvalitet života na nivou porodice mogao imati pozitivan efekat na pojedine karakteristike participacije dece s cerebralnom paralizom. Iako postavljena hipoteza nije potvrđena, zaključeno je da su promene u participaciji u porodičnim aktivnostima dece s cerebralnom paralizom, kao višestrukom ometenošću, povezane sa kvalitetom života cele porodice.
Ključne reči: participacija, cerebralna paraliza, porodica, porodične aktivnosti, kvalitet života porodice
Keywords: participation, cerebral palsy, family, family activities, quality of family life
Istraživanje je sprovedeno sa ciljem da se ispita i uporedi međusobna povezanost participacije u porodičnim aktivnostima i porodičnog kvaliteta života dece s cerebralnom paralizom i dece tipičnog razvoja. Postavljena je hipoteza prema kojoj je participacija u porodičnim aktivnostima pozitivno povezana sa porodičnim kvalitetom života. Obuhvaćeno je 110 ispitanika s cerebralnom paralizom, oba pola, starosti od sedam do 18 godina i 134 ispitanika tipičnog razvoja, bez statističke značajnosti razlike u odnosu na pol i uzrast. Kao indikatori, odabrani su frekventnost porodičnih aktivnosti, učestvovanje ispitanika i stepen njihove uključenosti, uz stepen roditeljskog zadovoljstva pojedinim aspektima porodičnog života. Primenjeni su Upitnik o participaciji deteta u porodičnim aktivnostima (Child Participation in Family Activities Questionnaire – Child-PFA) i Skala porodičnog kvaliteta života (Beach Center Family Quality of Life Scale – Beach FQOL Scale). Rezultati su ukazali na odstupanja od očekivanih relacija. U grupi ispitanika s cerebralnom paralizom je potvrđena statistička značajnost manjeg broja pozitivih korelacija nego u grupi ispitanika tipičnog razvoja. Takođe, odstupanje je uočeno kod prisustvovanja starijih ispitanika s cerebralnom paralizom (13–18 godina) organizovanim aktivnostima kroz statistički značajne negativne i niske do umerene korelacije (p < 0,05). Porodično okruženje je primarno sredinsko okruženje deteta, te bi bolji kvalitet života na nivou porodice mogao imati pozitivan efekat na pojedine karakteristike participacije dece s cerebralnom paralizom. Iako postavljena hipoteza nije potvrđena, zaključeno je da su promene u participaciji u porodičnim aktivnostima dece s cerebralnom paralizom, kao višestrukom ometenošću, povezane sa kvalitetom života cele porodice.
Ključne reči: participacija, cerebralna paraliza, porodica, porodične aktivnosti, kvalitet života porodice
Research Interests:
Rad je osmišljen s ciljem da se izdvoje i prikažu novija istraživanja fenomenologije cerebralne paralize i da se skrene pažnja stručne i naučne javnosti na neophodnost i značaj formiranja nacionalnog registra. Poseban naglasak je na... more
Rad je osmišljen s ciljem da se izdvoje i prikažu novija istraživanja fenomenologije cerebralne paralize i da se skrene pažnja stručne i naučne javnosti na neophodnost i značaj formiranja nacionalnog registra. Poseban naglasak je na izmenama definicije cerebralne paralize tokom prethodnih decenija, na različitosti postojećih klasifikacija i na varijabilnosti podataka o preva-lenci cerebralne paralize i pridruženih stanja i poremećaja. Prikazano je i upoređeno šest najčešće korišćenih definicija i predstavljene tri klasifikacije (konvencionalna, fiziološka i Evropska klasifikacija cerebralne paralize). Uporedo su prikazani podaci o učestalosti s osvrtom na nalaze dostupnih nacionalnih istraživanja. Prikazom najčešćih pridruženih poremećaja je istaknuta heterogenost pojavnih stanja cerebralne paralize i ukazano na vi-soku zastupljenost višestruke ometenosti u ovoj populaciji. Umesto zaključ-ka, upućen je svojevrsni apel za iniciranje formiranja nacionalnog registra i sagledavanje mogućnosti sistematskog organizovanja usluga i podrška na nivou populacije osoba s cerebralnom paralizom i njihovih porodica. Ključne reči: motorički poremećaj, nacionalni registar, planiranje usluga, višestruka ometenost
The paper was designed with the aim to select and present the recent research on phenomenology of cerebral palsy and to draw the attention of the professional and scientific public to the necessity and importance of establishing a national registry. Special emphasis was on changes to the cerebral palsy definition over the past decades, on the diversity of existing classifications and on the variability in the data on the prevalence of cerebral palsy and associated conditions and disorders. The six most commonly used definitions were introduced and compared, as well as three classifications (conventional, physiological and European classification of cerebral palsy). Data on the frequency were presented along with an overview of the findings of national surveys available. By presenting the most common associated disorders, the heterogeneity of manifestations of the conditions in cerebral palsy was emphasized. The high prevalence of multiple disabilities in this population was acknowledged. Instead of a conclusion, a kind of an appeal for initiating the formation of the national registry and considering possibilities of systematic organization of service and support at the level of the population of persons with cerebral palsy and their families was addressed.
Keywords: motor disorder, national registry, service planning, multiple disabilities
The paper was designed with the aim to select and present the recent research on phenomenology of cerebral palsy and to draw the attention of the professional and scientific public to the necessity and importance of establishing a national registry. Special emphasis was on changes to the cerebral palsy definition over the past decades, on the diversity of existing classifications and on the variability in the data on the prevalence of cerebral palsy and associated conditions and disorders. The six most commonly used definitions were introduced and compared, as well as three classifications (conventional, physiological and European classification of cerebral palsy). Data on the frequency were presented along with an overview of the findings of national surveys available. By presenting the most common associated disorders, the heterogeneity of manifestations of the conditions in cerebral palsy was emphasized. The high prevalence of multiple disabilities in this population was acknowledged. Instead of a conclusion, a kind of an appeal for initiating the formation of the national registry and considering possibilities of systematic organization of service and support at the level of the population of persons with cerebral palsy and their families was addressed.
Keywords: motor disorder, national registry, service planning, multiple disabilities
Research Interests:
The aim of this study was to examine the changes in family activities dynamics in the everyday life of families with a child with cerebral palsy as compared to families with a child with typical development. The sample of this... more
The aim of this study was to examine the changes in family activities dynamics in the everyday life of families with a child with cerebral palsy as compared to families with a child with typical development. The sample of this descriptive, cross-sectional and comparative research consisted of 110 families with a child with cerebral palsy and 134 families with a child with typical development. The Child Participation in Family Activities Questionnaire (Child-PFA; Axelsson & Wilder 2014) was used. The results showed that the members of the family with a child with typical development went on outings, on vacation or weekend and were engaged in organized activities, indoors or outdoors activities more frequently together than family members of the family with a child with cerebral palsy. The frequencies of routine chores, family outings, and going on vacation or weekend were confirmed predictors of changes, as these were time-consuming and financially demanding activities that implied better availability of information and transport and wider social network. Empirical evidence proves that the consequences of the presence of cerebral palsy are visible in the dynamics of family activities.
Cilj istraživanja je bio da se ispita promena dinamike porodičnih aktivnosti u svakodnevnom životu porodica sa detetom s cerebralnom paralizom u odnosu na porodice sa detetom tipičnog razvoja. Uzorak ovog deskriptivnog, transverzalnog i komparativnog istraživanja je činilo 110 porodica sa detetom s cerebralnom paralizom i 134 porodica sa detetom tipičnog razvoja. Primenjen je Upitnik o participaciji deteta u porodičnim aktivnostima (Child-PFA; Axelsson & Wilder 2014). Rezultati su pokazali da su se članovi porodice sa detetom tipičnog razvoja češće bavili zajedničkim aktivnostima u zatvorenom ili na otvorenom, organizovanim aktivnostima, da su češće zajedno izlazili i odlazili na odmor ili vikend nego članovi porodice sa detetom s cerebralnom paralizom. Kao prediktori promena potvrđeni su frekventnost obavljanja rutinskih poslova, zajedničkih porodičnih izlazaka i odlazaka na odmor ili vikend, odnosno vremenski i finansijski zahtevnije aktivnosti koje podrazumevaju bolju dostupnost informacija i transporta i širu socijalnu mrežu. Empirijski je potvrđeno da su posledice prisustva cerebralne paralize vidljive u dinamici porodičnih aktivnosti.
Cilj istraživanja je bio da se ispita promena dinamike porodičnih aktivnosti u svakodnevnom životu porodica sa detetom s cerebralnom paralizom u odnosu na porodice sa detetom tipičnog razvoja. Uzorak ovog deskriptivnog, transverzalnog i komparativnog istraživanja je činilo 110 porodica sa detetom s cerebralnom paralizom i 134 porodica sa detetom tipičnog razvoja. Primenjen je Upitnik o participaciji deteta u porodičnim aktivnostima (Child-PFA; Axelsson & Wilder 2014). Rezultati su pokazali da su se članovi porodice sa detetom tipičnog razvoja češće bavili zajedničkim aktivnostima u zatvorenom ili na otvorenom, organizovanim aktivnostima, da su češće zajedno izlazili i odlazili na odmor ili vikend nego članovi porodice sa detetom s cerebralnom paralizom. Kao prediktori promena potvrđeni su frekventnost obavljanja rutinskih poslova, zajedničkih porodičnih izlazaka i odlazaka na odmor ili vikend, odnosno vremenski i finansijski zahtevnije aktivnosti koje podrazumevaju bolju dostupnost informacija i transporta i širu socijalnu mrežu. Empirijski je potvrđeno da su posledice prisustva cerebralne paralize vidljive u dinamici porodičnih aktivnosti.
Research Interests:
Cilj rada je da se ispita povezanost zastupljenosti problematičnog ponašanja kod dece sa cerebralnom paralizom iz perspektive majki i pojedinih dimenzija participacije u kući. Procenjeni su broj aktivnosti, frekventnost uključivanja,... more
Cilj rada je da se ispita povezanost zastupljenosti problematičnog ponašanja kod dece sa cerebralnom paralizom iz perspektive majki i pojedinih dimenzija participacije u kući. Procenjeni su broj aktivnosti, frekventnost uključivanja, stepen uključenosti, nivo roditeljskog zadovoljstva, struktura sredinskih faktora, dostupnost i/ili adekvatnost resursa i ukupna podrška. Ispitanici sa cerebralnom paralizom ispoljavaju više problematičnog ponašanja nego ispitanici tipičnog razvoja. Razlike su nađene u svim ispitivanim dimenzijama participacije u aktivnostima u kućnom okruženju, sa izuzetkom frekventnosti uključivanja. Što je problematično ponašanje više zastupljeno, uključenost u svakodnevne aktivnosti je manja, sredinski faktori se više doživaljavaju kao otežavajući, odnosno kao barijere aktivnom uključivanju, dok je nivo roditeljskog zadovoljstva ostvarenom participacijom niži. Porodično okruženje i svakodnevne aktivnosti porodičnog života treba da pruže mogućnosti deci sa cerebralnom paralizom da se aktivno priključe i da razvijaju svoje socijalne veštine i kompetencije.
The aim of this study was to investigate the relation between the extent of challenging behaviors exhibited by children with cerebral palsy from the perspective of mothers and particular dimensions of home participation. Number of activities, frequency of participation, level of involvement, level of parental satisfaction, the structure of environmental factors, the availability and/or adequacy of resources and overall support were assessed. Participants with cerebral palsy manifested more problematic behavior than those of typical development. Differences were found in all examined dimensions of participation in activities in the home environment, with the exception of the frequency. More challenging behavior reported by mothers was followed by lower both involvement level and parental satisfaction with the participation level, while environmental factors were seen as more hindering or as barriers to active participation. Family environment and everyday activities of family life should provide opportunities for children with cerebral palsy to become more actively included and to develop their social skills and competences.
The aim of this study was to investigate the relation between the extent of challenging behaviors exhibited by children with cerebral palsy from the perspective of mothers and particular dimensions of home participation. Number of activities, frequency of participation, level of involvement, level of parental satisfaction, the structure of environmental factors, the availability and/or adequacy of resources and overall support were assessed. Participants with cerebral palsy manifested more problematic behavior than those of typical development. Differences were found in all examined dimensions of participation in activities in the home environment, with the exception of the frequency. More challenging behavior reported by mothers was followed by lower both involvement level and parental satisfaction with the participation level, while environmental factors were seen as more hindering or as barriers to active participation. Family environment and everyday activities of family life should provide opportunities for children with cerebral palsy to become more actively included and to develop their social skills and competences.
Research Interests: Participation, Challenging Behaviour, Child Behavior Problems, Family Environment, Home Environment, and 10 moreChildren With Cerebral Palsy, Child’s Challenging Behaviour, Mothers of Children with Cerebral Palsy, Problemi U Ponašanju, Deca Sa Cerebralnom Paralizom, Participacija, Porodično Okruženje, Kućno Okruženje, Majke, and Majke Dece S Cerebralnom Paralizom
U radu su prikazani rezultati pilot studije čiji je cilj bio da se ispitaju mogućnosti primene Upitnika o kvalitetu života u vezi sa zdravljem (HRQOL) za decu i mlade – KIDSCREEN-10 (Verzije za roditelje) u istraživačke svrhe u populaciji... more
U radu su prikazani rezultati pilot studije čiji je cilj bio da se ispitaju mogućnosti primene Upitnika o kvalitetu života u vezi sa zdravljem (HRQOL) za decu i mlade – KIDSCREEN-10 (Verzije za roditelje) u istraživačke svrhe u populaciji osoba sa cerebralnom paralizom (CP) u Republici Srbiji. Ukupno je bilo uključeno 112 roditelja dece i mladih starosti od osam do 18 godina. Prvu grupu je činilo 47 roditelja dece i mladih sa CP, prosečnog uzrasta 13,06 godina (SD 2,75), a kontrolnu 65 roditelja dece i mladih tipičnog razvoja, prosečnog uzrasta 12,11 godina (SD 2,65). Grupe su bile ujednačene prema polu i uzrastu dece. Utvrđene vrednosti Kronbahovog α koeficijenta od 0,729 u grupi ispitanika sa CP, odnosno 0,752 u kontrolnoj grupi, ukazuju da je dobijena prihvatljiva, ali niža interna konzistentnost u poređenju sa vrednostima dobijenim u originalnom internacionalnom (α=0,78) i nacionalnom normativnom uzorku (α=0,76). Man-Vitnijev U test je otkrio statistički značajnu razliku stepena HRQOL između grupa (U=685,0, z=-4,978, p < 0,001, r=0,47). Tačnije, roditelji dece i mladih sa CP procenjuju kvalitet života svoje dece kao niži (Mdn=41,71) u poređenju sa roditeljima dece i mladih tipičnog razvoja (Mdn=52,65). Pored toga, u grupi roditelja dece i mladih sa CP je uočena statistička značajnost razlike rezultata u odnosu na informanta (χ2=8,969, df=2, p=0,011). Naknadna poređenja su pokazala da je stepen HRQOL bio statistički značajno viši (U=7,500, z=-2,834, p=0,005) ukoliko su majke vršile procenu (Mdn=44,96) u poređenju sa očevima (Mdn=34,09), uz srednju jačinu uticaja razlike (r=0,48). KIDSCREEN-10 (Verzija za roditelje) ima dobre potencijale za primenu u istraživačke svrhe u populaciji osoba sa CP. Potrebno je ponoviti istraživanje na većem uzorku, obuhvatiti iri spektar sociodemografskih faktora, ispitati psihometrijske karakteristike, kao i mogućnosti primene u kliničkoj praksi.
This paper presents the results of a pilot study aimed to examine the possibilities of application of the KIDSCREEN-10 Health Related Quality of Life Questionnaire (HRQOL) for Children and Young People (Parent Version) in research purposes in the population of persons with cerebral palsy (CP) in the Republic of Serbia. A total of 112 parents of children and youth aged from eight to 18 years were included. The first group consisted of 47 parents of children and youth with CP, mean age of 13.06 years (SD 2.75). Control group consisted of 65 parents of children and youth of typical development, mean age of 12.11 years (SD 2.65). There were no statistical significances between these groups according to both gender and age of children. Obtained values of Cronbach’s alpha coefficient (0.729 in group of participants with CP and 0.752 in control group) indicate that internal consistency is acceptable, but slightly lower when compared to the values obtained previously in both original international (α=0.78) and national normative samples (α=0.76). Man-Whitney U test revealed a statistically significant difference in HRQOL level between two groups (U=685.0, z=-4.978, p<0.001, r=0.47). More specifically, group of parents of children and youth with CP assessed quality of life of their children as lower (Mdn=41.71) in comparison to parents of children and youth of typical development (Mdn = 52.65). On the other hand, a statistically significant difference of the results in relation to informant was noticed in the group of parents of children and youth with CP (χ2=8.969, df=2, p=0.011). Subsequent comparisons showed that HRQOL level was statistically significantly higher (U=7.500, z=-2.834, p=0.005) when mothers were informants (Mdn=44.96) compared with fathers (Mdn = 34.09), with a medium effect size value (r=0.48). KIDSCREEN-10 (Parent Version) has a good potential for use in research purposes in the population of persons with CP. It is necessary to repeat the study on a larger sample, to include a wider range of socio-demographic factors, to examine psychometric properties, and possibilities of implementation in clinical practice.
This paper presents the results of a pilot study aimed to examine the possibilities of application of the KIDSCREEN-10 Health Related Quality of Life Questionnaire (HRQOL) for Children and Young People (Parent Version) in research purposes in the population of persons with cerebral palsy (CP) in the Republic of Serbia. A total of 112 parents of children and youth aged from eight to 18 years were included. The first group consisted of 47 parents of children and youth with CP, mean age of 13.06 years (SD 2.75). Control group consisted of 65 parents of children and youth of typical development, mean age of 12.11 years (SD 2.65). There were no statistical significances between these groups according to both gender and age of children. Obtained values of Cronbach’s alpha coefficient (0.729 in group of participants with CP and 0.752 in control group) indicate that internal consistency is acceptable, but slightly lower when compared to the values obtained previously in both original international (α=0.78) and national normative samples (α=0.76). Man-Whitney U test revealed a statistically significant difference in HRQOL level between two groups (U=685.0, z=-4.978, p<0.001, r=0.47). More specifically, group of parents of children and youth with CP assessed quality of life of their children as lower (Mdn=41.71) in comparison to parents of children and youth of typical development (Mdn = 52.65). On the other hand, a statistically significant difference of the results in relation to informant was noticed in the group of parents of children and youth with CP (χ2=8.969, df=2, p=0.011). Subsequent comparisons showed that HRQOL level was statistically significantly higher (U=7.500, z=-2.834, p=0.005) when mothers were informants (Mdn=44.96) compared with fathers (Mdn = 34.09), with a medium effect size value (r=0.48). KIDSCREEN-10 (Parent Version) has a good potential for use in research purposes in the population of persons with CP. It is necessary to repeat the study on a larger sample, to include a wider range of socio-demographic factors, to examine psychometric properties, and possibilities of implementation in clinical practice.
Research Interests: HRQoL Health Related Quality of Life, Health-related Quality of Life, Children With Cerebral Palsy, Mothers of Children with Cerebral Palsy, Majke Dece S Cerebralnom Paralizom, and 9 moreAdolescents with Cerebral Palsy, Questionnaire for Parents, Parents of Children with Cerebral Palsy, Hrqol, Deca S Cerebralnom Paralizom, Adolescenti S Cerebralnom Paralizom, Kvalitet Života U Vezi Sa Zdravljem, Upitnik Za Roditelje, and Roditelji Dece S Cerebralnom Paralizom
In this paper, the contemporary literature focused on quality of life of families with a child with disability was analyzed. The main research questions were: what theoretical models of family quality of life are represented in the... more
In this paper, the contemporary literature focused on quality of life of families with a child with disability was analyzed. The main research questions were: what theoretical models of family quality of life are represented in the literature, which are the key factors and dominant predictors of quality of life of families with a child with disabilities and which possibilities for enhancing and improving of the quality of life of these families are presented. Systematization of the knowledge in this field was carried by the available literature review and the analysis of results presented in allocated studies. As a result of comprehensive search, a total of twelve studies published in the current and previous decade was presented. These studies provided answers to the research questions with their results. As the basic factors of quality of life of families with a child with disability were allocated: level of disability of child and intensity of behavioral problems manifestations, financial situation of the family, family relations, health status of all members, practical help from extended family members and friends, followed by the adequacy of services and their partnerships with family. The quality of family life exceeds the needs of a member with disabilities, and sums up the needs of all family members, as well as the strengths of the family functioning. In addition, family quality of life requires a partnership between families and professionals in setting of priorities and achieving their common goals. It is necessary to promote an environment that supports and enhances the quality of life of the whole family when selecting and planning family centered professional support.
U radu je analizirana savremena literatura koja se bavi proučavanjem kvaliteta života porodica sa detetom sa ometenošću. Osnovna istraživačka pitanja bila su: koji teorijski modeli porodičnog kvaliteta života su predstavljeni u literaturi, koji su ključni faktori i dominantni prediktori kvaliteta života porodica sa detetom sa ometenošću i koje su mogućnosti pospešivanja, odnosno poboljšanja kvaliteta života ovih porodica. Revijalnim pregledom dostupne literature i analizom rezultata prikazanih u izdvojenim studijama, sistematizovana su saznanja iz ove oblasti. Kao rezultat sveobuhvatne pretrage, prikazano je ukupno dvanaest istraživanja koja su objavljena u tekućoj i prethodnoj deceniji, a koja su svojim rezultatima pružala odgovore na postavljena istraživačka pitanja. Kao osnovni faktori kvaliteta života porodica sa detetom sa ometenošću izdvajaju se: stepen ometenosti deteta i intenzitet ispoljavanja problema u ponašanju, finansijsko stanje porodice, porodični odnosi, zdravstveno stanje svih članova, praktična pomoć od članova šire porodice i od prijatelja, zatim adekvatnost servisnih usluga i parterstvo sa porodicom. Kvalitet porodičnog života prevazilazi potrebe člana sa ometenošću, a sažima u sebi potrebe svih članova porodice, kao i jake strane funkcionisanja porodične zajednice, ali i zahteva partnerski odnos između porodice i stručnjaka u postavljanju prioriteta i ostvarivanju zajedničkih ciljeva. U odabiru i planiranju usluga usmerenih na porodicu neophodno je promovisati okruženje koje pruža podršku i poboljšava kvalitet života cele porodice.
U radu je analizirana savremena literatura koja se bavi proučavanjem kvaliteta života porodica sa detetom sa ometenošću. Osnovna istraživačka pitanja bila su: koji teorijski modeli porodičnog kvaliteta života su predstavljeni u literaturi, koji su ključni faktori i dominantni prediktori kvaliteta života porodica sa detetom sa ometenošću i koje su mogućnosti pospešivanja, odnosno poboljšanja kvaliteta života ovih porodica. Revijalnim pregledom dostupne literature i analizom rezultata prikazanih u izdvojenim studijama, sistematizovana su saznanja iz ove oblasti. Kao rezultat sveobuhvatne pretrage, prikazano je ukupno dvanaest istraživanja koja su objavljena u tekućoj i prethodnoj deceniji, a koja su svojim rezultatima pružala odgovore na postavljena istraživačka pitanja. Kao osnovni faktori kvaliteta života porodica sa detetom sa ometenošću izdvajaju se: stepen ometenosti deteta i intenzitet ispoljavanja problema u ponašanju, finansijsko stanje porodice, porodični odnosi, zdravstveno stanje svih članova, praktična pomoć od članova šire porodice i od prijatelja, zatim adekvatnost servisnih usluga i parterstvo sa porodicom. Kvalitet porodičnog života prevazilazi potrebe člana sa ometenošću, a sažima u sebi potrebe svih članova porodice, kao i jake strane funkcionisanja porodične zajednice, ali i zahteva partnerski odnos između porodice i stručnjaka u postavljanju prioriteta i ostvarivanju zajedničkih ciljeva. U odabiru i planiranju usluga usmerenih na porodicu neophodno je promovisati okruženje koje pruža podršku i poboljšava kvalitet života cele porodice.
Research Interests:
Background: During the last few decades, focus of rehabilitation outcome has been redirected to the lifetime monitoring of quality of life. The purpose of this study was to investigate the differences in quality of life perceptions... more
Background: During the last few decades, focus of rehabilitation outcome has been redirected to the lifetime monitoring of quality of life. The purpose of this study was to investigate the differences in quality of life perceptions between participants with spinal cord injury and participants of typical population. Methods: This cross-sectional controlled study of 100 adults aged 18–65 years was based on two questionnaires, Short Form-36 Health Survey (SF-36) and Spinal Cord Injury Quality of Life Questionnaire (QL-23), completed by 23 participants with paraplegia, 21 participants with tetraplegia, and 56 participants of typical population. Mann-Whitney U-test for planned comparison between groups and χ2 test were used to analyze the differences between research groups. Results: Participants from control group perceived their general quality of life at higher level in comparison to participants with spinal cord injury (U=415.000, z=-5.804, P<0.000). Negative influence of spinal cord injury was detected in six domains (physical functioning, physical role, bodily pain, vitality, social functioning, mental health). Statistical differences between participants with paraplegia and participants with tetraplegia only in domain of functional limitations (U=103.000, z=-3.256, P<0.005). Conclusion: The participants with spinal cord injury perceived both health-related and general quality of life at a lower level in comparison to controls. However, the injury level only partially determined the estimated quality of life.
Research Interests:
During the last few decades, focus of rehabilitation outcome has been redirected to the lifetime monitoring of quality of life. The purpose of this study was to investigate the differences in quality of life perceptions between... more
During the last few decades, focus of rehabilitation outcome has been redirected to the lifetime monitoring of quality of life. The purpose of this study was to investigate the differences in quality of life perceptions between participants with spinal cord injury and participants of typical population. This cross-sectional controlled study of 100 adults aged 18-65 years was based on two questionnaires, Short Form-36 Health Survey (SF-36) and Spinal Cord Injury Quality of Life Questionnaire (QL-23), completed by 23 participants with paraplegia, 21 participants with tetraplegia, and 56 participants of typical population. Mann-Whitney U-test for planned comparison between groups and χ(2) test were used to analyze the differences between research groups. Participants from control group perceived their general quality of life at higher level in comparison to participants with spinal cord injury (U=415.000, z=-5.804, P<0.000). Negative influence of spinal cord injury was detected in s...
Drawings are a significant determinant of children’s maturation and can be considered a reflection of the achieved level of a child’s intellectual abilities, but also an indicator of a child’s maturity and his or her emotional adaptation.... more
Drawings are a significant determinant of children’s maturation and can be
considered a reflection of the achieved level of a child’s intellectual abilities, but
also an indicator of a child’s maturity and his or her emotional adaptation.
The aim of this study was to determine the developmental level of artistic expression
in students with cerebral palsy through the estimation of developmental stage by
interpreting human figure drawings, and through defining the characteristics of
artistic expression in relation to gender, age, type of school, grade, and upper limbs
laterality of students with cerebral palsy.
The study was conducted on the sample of 37 elementary school students, of both
genders, aged 8–19, and diagnosed with cerebral palsy. The developmental level
of artistic expression was determined on the basis of the stages determined as the
criteria for human figure drawings.
The results show that in the population of students with cerebral palsy the
most frequent developmental stage of artistic expression was the Beginning of
Conventional Drawings of human figures; that the better achievement with the
statistical significance was found in girls when compared to boys (p < 0.05), among
participants from regular school in relation to participants from special school (p
< 0.01), among older participants as compared to participants from junior grades
(p < 0.05), and in participants aged 12–14 when compared to those from the group
of 8–11 years of age (p < 0.05).
These findings indicate that children with cerebral palsy go through different
developmental stages of artistic expression more slowly than typically developing children, which may be a consequence of primary disability, experiential factors,
and specific development of these children.
considered a reflection of the achieved level of a child’s intellectual abilities, but
also an indicator of a child’s maturity and his or her emotional adaptation.
The aim of this study was to determine the developmental level of artistic expression
in students with cerebral palsy through the estimation of developmental stage by
interpreting human figure drawings, and through defining the characteristics of
artistic expression in relation to gender, age, type of school, grade, and upper limbs
laterality of students with cerebral palsy.
The study was conducted on the sample of 37 elementary school students, of both
genders, aged 8–19, and diagnosed with cerebral palsy. The developmental level
of artistic expression was determined on the basis of the stages determined as the
criteria for human figure drawings.
The results show that in the population of students with cerebral palsy the
most frequent developmental stage of artistic expression was the Beginning of
Conventional Drawings of human figures; that the better achievement with the
statistical significance was found in girls when compared to boys (p < 0.05), among
participants from regular school in relation to participants from special school (p
< 0.01), among older participants as compared to participants from junior grades
(p < 0.05), and in participants aged 12–14 when compared to those from the group
of 8–11 years of age (p < 0.05).
These findings indicate that children with cerebral palsy go through different
developmental stages of artistic expression more slowly than typically developing children, which may be a consequence of primary disability, experiential factors,
and specific development of these children.
Research Interests:
The aim of this paper is to allocate studies dealing with the identification of predictors and the definition of the importance, nature and extent of social participation of children with cerebral palsy in the school environment. A review... more
The aim of this paper is to allocate studies dealing with the identification of predictors and the definition of the importance, nature and extent of social participation of children with cerebral palsy in the school environment. A review of literature dealing with the subject will be carried out and the knowledge of the field systematized. The selected studies will be analyzed and the predictors and determinants of participation defined. Based on the analysis guidelines for the upgrade of social participation of children with cerebral palsy will be outlined and suggestions for the implementation of this knowledge in the practical work in inclusive terms given. The results suggest that there is a complex relation between disability, participation and school environment and that the predictors cannot be viewed as isolated entities but only as combined models of the interactive physical and cognitive-behavioral variables. The key steps in the professional intervention comprise the development of strategies that will enable children with cerebral palsy to take full advantage of the opportunities provided by daily school activities in terms of active social inclusion.
Cilj rada je da se, revijalnim pregledom literature, izdvoje istraživanja koja su u svoj fokus postavila identificiranje prediktora i utvrđivanje značenja, prirode i obujma socijalne participacije djece s cerebralnom paralizom u školskom okruženju i da se, analizom izdvojenih studija, sistematiziraju saznanja iz ovog područja, što bi rezultiralo kreiranjem smjernica za unaprjeđenje društvenog sudjelovanja ove djece i implementacijom ovako sumiranih saznanja u praktičan rad u inkluzivnim uvjetima. Dobiveni rezultati upućuju na zaključak da postoji složen odnos između onesposobljenosti, participacije i školske sredine i da se prediktori ne mogu izdvojiti i promatrati kao izolirani entiteti, već isključivo kao kombinirani modeli interaktivnih fizičkih i kognitivno-bihevioralnih varijabli. Ključni koraci u stručnom interveniranju podrazumjevaju razvijanje strategija kojima će se omogućiti djeci s cerebralnom paralizom da u punoj mjeri iskoriste mogućnosti koje svakodnevne školske aktivnosti pružaju u pogledu aktivnog socijalnog uključivanja.
Cilj rada je da se, revijalnim pregledom literature, izdvoje istraživanja koja su u svoj fokus postavila identificiranje prediktora i utvrđivanje značenja, prirode i obujma socijalne participacije djece s cerebralnom paralizom u školskom okruženju i da se, analizom izdvojenih studija, sistematiziraju saznanja iz ovog područja, što bi rezultiralo kreiranjem smjernica za unaprjeđenje društvenog sudjelovanja ove djece i implementacijom ovako sumiranih saznanja u praktičan rad u inkluzivnim uvjetima. Dobiveni rezultati upućuju na zaključak da postoji složen odnos između onesposobljenosti, participacije i školske sredine i da se prediktori ne mogu izdvojiti i promatrati kao izolirani entiteti, već isključivo kao kombinirani modeli interaktivnih fizičkih i kognitivno-bihevioralnih varijabli. Ključni koraci u stručnom interveniranju podrazumjevaju razvijanje strategija kojima će se omogućiti djeci s cerebralnom paralizom da u punoj mjeri iskoriste mogućnosti koje svakodnevne školske aktivnosti pružaju u pogledu aktivnog socijalnog uključivanja.
Research Interests: Participation, Disability Theory, Disability, Literature Review, Peers, and 11 moreLiterature Reviews, Children With Cerebral Palsy, Socijalna Participacija, Deca Sa Cerebralnom Paralizom, Participacija, Deca S Cerebralnom Paralizom, Pregled Literature, Ometenost, Vršnjaci, Deca S Cerebralnom Paralizon, and Deca Sa Cerebralnom Paralizon
Медицинска рехабилитација особa са инвалидитетом, без обзира на то да ли је у питању урођени или стечени инвалидитет, мора бити праћена професионалном рехабилитацијом и неопходна је синхронизација свих рехабилитационих секвела. Циљ рада... more
Медицинска рехабилитација особa са инвалидитетом, без обзира на то да ли је у питању урођени или стечени инвалидитет, мора бити праћена професионалном рехабилитацијом и неопходна је синхронизација свих рехабилитационих секвела. Циљ рада јесте да се, увидом у доступну литературу, изврши ревијални преглед истраживања која су за свој циљ имала утврђивање ефикасности професионалне рехабилитације и дефинисање предиктора запослености особа са инвалидитетом. Резултати указују на чињеницу да је успех професионалне рехабилитације директно одређен комплексном интеракцијом између фактора повреде, оштећења и повреде, личних фактора и фактора средине, што утиче и на резултате повратка на посао. Такође, може се закључити да је тешко издвојити предикторе запослености особа са инвалидитeтом и дефинисати тешкоће са којима се суочава ова популација приликом заснивања радног односа или повратка на посао а да они могу бити генерализовани и да се у потпуности могу односити на сваку подгрупу у оквиру популације особа са инвалидитетом.
Medical rehabilitation of people with disabilities, regardless of whether it is a congenital or acquired disability, must be followed by vocational rehabilitation and synchronization of all rehabilitative consequences is necessary. The objective of this paper is that, by examining the available literature, conduct review of research that are aimed to detect effectiveness of vocational rehabilitation and to define predictors of employment of people with disabilities. The results suggest that the success of vocational rehabilitation is directly determined by a complex interaction between factors of injury, damage, injury, personal factors and environmental factors, which affect the results of returning to work. Also, one could conclude that it could be difficult to isolate the predictors of employment of people with disabilities and to define the difficulties with which this population is facing with during the employment or returning to work and that they could be generalized and completely related to each subgroup within the population of people with disabilities.
Medical rehabilitation of people with disabilities, regardless of whether it is a congenital or acquired disability, must be followed by vocational rehabilitation and synchronization of all rehabilitative consequences is necessary. The objective of this paper is that, by examining the available literature, conduct review of research that are aimed to detect effectiveness of vocational rehabilitation and to define predictors of employment of people with disabilities. The results suggest that the success of vocational rehabilitation is directly determined by a complex interaction between factors of injury, damage, injury, personal factors and environmental factors, which affect the results of returning to work. Also, one could conclude that it could be difficult to isolate the predictors of employment of people with disabilities and to define the difficulties with which this population is facing with during the employment or returning to work and that they could be generalized and completely related to each subgroup within the population of people with disabilities.
Research Interests:
Cilj ovog rada je da se napravi osvrt na istraživanja koja su u svom istraživačkom fokusu imala utvrđivanje i izdvajanje faktora i determinanti moralnog rasuđivanja dece i adolescenata sa intelektualnom ometenošću. Revijalni pregled... more
Cilj ovog rada je da se napravi osvrt na istraživanja koja su u svom istraživačkom fokusu imala utvrđivanje i izdvajanje faktora i determinanti moralnog rasuđivanja dece i adolescenata sa intelektualnom ometenošću. Revijalni pregled dostupne literature je načinjen sa istorijskog aspekta. Data je deskripcija utvrđenih karakteristika i faktora od značaja u svrhu razumevanja načina i obima njihovog uticaja na moralni razvoj. Analizom 15 izdvojenih studija sistematizovana su saznanja iz ove oblasti. Rezultati prikazanih istraživanja ukazuju na to da deca i adolescenti sa intelektualnom ometenošću ne napreduju kroz razvojne stadijume podjednakom brzinom i istim tempom kao njihovi vršnjaci bez intelektualne ometenosti niti dostižu više stadijume moralnog razvoja. Razumevanje složenosti i raznolikosti uticaja izdvojenih faktora na moralni razvoj zahteva širi fokus od samog njihovog utvrđivanja
The aim of this paper was to make an overview of studies focused on determination and identification of factors and determinants of moral reasoning of children and adolescents with intellectual disability. The available literature review was conducted from the historical point of view. Description of identified characteristics and factors of importance was provided in order to understand the nature and extent of their impact on moral development. The knowledge in this field was systematized by the analysis of selected studies. Results of 15 researches here presented suggest that children and adolescents with intellectual disability do not progress through developmental stages with equal speed and same tempo as their peers without intellectual disability neither they reach higher stages of moral development. Understanding of the complexity and diversity of the impact of allocated factors on moral development requires a broader focus than just their determination.
The aim of this paper was to make an overview of studies focused on determination and identification of factors and determinants of moral reasoning of children and adolescents with intellectual disability. The available literature review was conducted from the historical point of view. Description of identified characteristics and factors of importance was provided in order to understand the nature and extent of their impact on moral development. The knowledge in this field was systematized by the analysis of selected studies. Results of 15 researches here presented suggest that children and adolescents with intellectual disability do not progress through developmental stages with equal speed and same tempo as their peers without intellectual disability neither they reach higher stages of moral development. Understanding of the complexity and diversity of the impact of allocated factors on moral development requires a broader focus than just their determination.
Research Interests:
Циљ рада јесте да се ревијалним прегледом литературе и критичком анализом резултата приказаних у издвојеним студијама систематизују сазнања о ефектима хипотерапије на децу и одрасле са моторичким поремећајима, са посебним освртом на децу... more
Циљ рада јесте да се ревијалним прегледом литературе и критичком анализом резултата приказаних у издвојеним студијама систематизују сазнања о ефектима хипотерапије на децу и одрасле са моторичким поремећајима, са посебним освртом на децу са церебралном парализом. Као резултат свеобухватне претраге прикупљено је и прегледано укупно 44 истраживања, од којих је 13 истраживања испунило критеријуме укључивања, односно да је за циљ имало хипотерапију као облик третмана, а за циљну групу особе са моторичким поремећајима. Резултати указују на позитиван утицај програма хипотерапије на опште функционалне способности и поједине сегменте моторичког функционисања испитиваних група. Међутим, уочено је и то да издвојене студије имају многа ограничења и прилично мањкавости, што доводи у питање валоризацију резултата приказаних у њима. Из тог разлога, уместо доношења било каквог коначног суда, значајније би било да се ова проблематика додатно осветли даљим истраживањима, првенствено емпиријским, и да се на темељима нових сазнања створи свеобухватнија слика која би хипотерапију учинила мање контраверзном него што је данас.
The aim of this paper is to systematize knowledge on the effects of hippotherapy on children and adults with motor disorders, with the special focus on children with cerebral palsy, by review of available literature and critical analysis of the results shown in selected studies. As a result of the comprehensive search, a total of 44 studies were collected and examined, and 13 of them met the inclusion criteria, that is the hippotherapy as a form of treatment and people with motor disorders in the focus of research. The results indicate a positive impact of the hippotherapy program on functional abilities and on certain aspects of motor functioning of the research groups. However, many limitations and shortcomings of selected studies have been noted therefore questioning the shown evaluation results. For this reason, instead of making any final decision, it would be more important to explicate these issues in the further researches, mainly empirical, and to create a comprehensive illustration on the basis of new information which would make hippotherapy less controversial form of treatment than it is today.
The aim of this paper is to systematize knowledge on the effects of hippotherapy on children and adults with motor disorders, with the special focus on children with cerebral palsy, by review of available literature and critical analysis of the results shown in selected studies. As a result of the comprehensive search, a total of 44 studies were collected and examined, and 13 of them met the inclusion criteria, that is the hippotherapy as a form of treatment and people with motor disorders in the focus of research. The results indicate a positive impact of the hippotherapy program on functional abilities and on certain aspects of motor functioning of the research groups. However, many limitations and shortcomings of selected studies have been noted therefore questioning the shown evaluation results. For this reason, instead of making any final decision, it would be more important to explicate these issues in the further researches, mainly empirical, and to create a comprehensive illustration on the basis of new information which would make hippotherapy less controversial form of treatment than it is today.
Research Interests: Hippotherapy, Literature Review, Physical disability, Disability, Adapted Physical Activity, Literature Reviews, and 11 moreChildren With Cerebral Palsy, Cerebral Palsy and Hippotherapy, Deca Sa Cerebralnom Paralizom, Deca S Cerebralnom Paralizom, Pregled Literature, People with Motor Disorders, Children with Physical Disability, Hipoterapija, Terapijsko Jahanje, Osobe Sa Motoričkim Poremećajima, and Telesna Invalidnost
Резиме / Abstract Целта на овој труд е да се изнесе прегледот на систематската литература, на приложените истражувања во областа на ризик факторите и тешкотиите во раниот развој кај децата родени со асистираното оплодување, да се... more
Резиме / Abstract
Целта на овој труд е да се изнесе прегледот на систематската литература, на приложените истражувања во областа на ризик факторите и тешкотиите во раниот развој кај децата родени со асистираното оплодување, да се систематизира постоечкото знаење во оваа поле и да се лоцираат факторите на важност за раната интервенција. Со цел да се проценат објавените податоци за ризик факторите и раниот развој на децата родени по асистирано оплодување, направено е истражување на обемна литература за да се идентификуваат објавените документи повр-зани со исходот од акушерските и неонатал-ните бремености по користење на асистирана и репродуктивна технологија, зачестеноста на мултиплицираната бременост и ризикот од предвременото породување, неонаталниот статус, просечната развиеност, тежината при раѓање, резултатите од невролошки развој, раниот когнитивен и моторен развој.
The aim of this paper is to present a systematic literature review of the researches conducted in the area of risk factors and difficulties in the early development of children born after assisted conception, to systematize current knowledge in this field and allocate the factors of importance for the early intervention. In order to evaluate the published data on risk factors and early development of children born after assisted conception, an extensive literature search was conducted to identify the published papers related to the obstetric and neonatal outcome of pregnancies after assisted reproduction technology, the incidence of multiple pregnancy and the risk of preterm delivery, the neonatal status, the mean gestational age, the average birth weight, the neuro-developmental outcomes and early cognitive and motor development.
Целта на овој труд е да се изнесе прегледот на систематската литература, на приложените истражувања во областа на ризик факторите и тешкотиите во раниот развој кај децата родени со асистираното оплодување, да се систематизира постоечкото знаење во оваа поле и да се лоцираат факторите на важност за раната интервенција. Со цел да се проценат објавените податоци за ризик факторите и раниот развој на децата родени по асистирано оплодување, направено е истражување на обемна литература за да се идентификуваат објавените документи повр-зани со исходот од акушерските и неонатал-ните бремености по користење на асистирана и репродуктивна технологија, зачестеноста на мултиплицираната бременост и ризикот од предвременото породување, неонаталниот статус, просечната развиеност, тежината при раѓање, резултатите од невролошки развој, раниот когнитивен и моторен развој.
The aim of this paper is to present a systematic literature review of the researches conducted in the area of risk factors and difficulties in the early development of children born after assisted conception, to systematize current knowledge in this field and allocate the factors of importance for the early intervention. In order to evaluate the published data on risk factors and early development of children born after assisted conception, an extensive literature search was conducted to identify the published papers related to the obstetric and neonatal outcome of pregnancies after assisted reproduction technology, the incidence of multiple pregnancy and the risk of preterm delivery, the neonatal status, the mean gestational age, the average birth weight, the neuro-developmental outcomes and early cognitive and motor development.
Summary / Cerebral palsy is a well-recognized, heterogeneous condition persisting through the lifespan. In many individuals with cerebral palsy, motor disorders are associated by other comorbidities, including disturbances of sensation,... more
Summary /
Cerebral palsy is a well-recognized, heterogeneous condition persisting through the lifespan. In many individuals with cerebral palsy, motor disorders are associated by other comorbidities, including disturbances of sensation, perception, cognition and communication, epilepsy, emotional, behavioural and secondary musculoskeletal problems. Children with cerebral palsy face various challenges that can manifest in different ways over the life course, such as reduced and less diverse participation in daily activities at home, school and in the community, when compared to peers.
In the International Classification of Functioning, Disability, and Health (ICF), participation is defined as a person’s “involvement in life situations”, reflecting the interaction of the person, activity and environment. However, little is known on the participation of children with disabilities in developing countries with fewer resources, such as Serbia.
This study aimed to examine the characteristics of community participation of children with cerebral palsy in comparison to their peers with typical development and the effect of the environment on this participation, from the perspective of parents.
The results of our study confirmed that the overall participation of children with cerebral palsy in the community was lower in comparison to the participation of children with typical development. Children with cerebral palsy participated in fewer activities, less frequently and were involved to a lesser extent. Differences were also evident at the level of individual activity types.
Higher frequency, greater involvement level and a broader variety of activities were the desired types of change, as reported by parents. Parents of children with cerebral palsy highlighted engaging in activities that were beneficial for functional, motor and health status of the child, that were involving social interaction and communication and those providing children with the opportunities to develop social skills.
By comparing the structures of environmental factors, the results of our study indicated more barriers and fewer facilitators in the group of children with cerebral palsy. Additionally, the environment was overall less supportive, environmental factors were rated less often as helpful in the child’s participation, and community resources were less available and/or adequate. For most children with cerebral palsy, barriers included physical and cognitive demands of typical community-based activities, as well as the physical layout of community settings. On the other hand, the supports included attitudes and actions of other members of the community towards the child, relationships with peers and social demands of typical activities. A lack of more adequate services was confirmed.
Functional limitations children with cerebral palsy (gross motor, fine manual and intellectual functioning) were associated with the lower involvement in community-based activities. Activities affected by functional limitations were unstructured and organized physical activities, getting together with other children, and to a lesser extent, community events, neighbourhood outings, overnight visits or trips and extracurricular classes and lessons. Children with cerebral palsy with more severe levels of intellectual disability were at increased risk of fewer supporting factors and collectively less support and help from the environment.
New findings may aid the identification of families with a child with cerebral palsy who may need interventions to improve children's participation in the community environment.
Key words: participation, disability studies, International Classification of Functioning, Disability and Health, disability, children with cerebral palsy, involvement, barriers, environment, community-based activities
Cerebral palsy is a well-recognized, heterogeneous condition persisting through the lifespan. In many individuals with cerebral palsy, motor disorders are associated by other comorbidities, including disturbances of sensation, perception, cognition and communication, epilepsy, emotional, behavioural and secondary musculoskeletal problems. Children with cerebral palsy face various challenges that can manifest in different ways over the life course, such as reduced and less diverse participation in daily activities at home, school and in the community, when compared to peers.
In the International Classification of Functioning, Disability, and Health (ICF), participation is defined as a person’s “involvement in life situations”, reflecting the interaction of the person, activity and environment. However, little is known on the participation of children with disabilities in developing countries with fewer resources, such as Serbia.
This study aimed to examine the characteristics of community participation of children with cerebral palsy in comparison to their peers with typical development and the effect of the environment on this participation, from the perspective of parents.
The results of our study confirmed that the overall participation of children with cerebral palsy in the community was lower in comparison to the participation of children with typical development. Children with cerebral palsy participated in fewer activities, less frequently and were involved to a lesser extent. Differences were also evident at the level of individual activity types.
Higher frequency, greater involvement level and a broader variety of activities were the desired types of change, as reported by parents. Parents of children with cerebral palsy highlighted engaging in activities that were beneficial for functional, motor and health status of the child, that were involving social interaction and communication and those providing children with the opportunities to develop social skills.
By comparing the structures of environmental factors, the results of our study indicated more barriers and fewer facilitators in the group of children with cerebral palsy. Additionally, the environment was overall less supportive, environmental factors were rated less often as helpful in the child’s participation, and community resources were less available and/or adequate. For most children with cerebral palsy, barriers included physical and cognitive demands of typical community-based activities, as well as the physical layout of community settings. On the other hand, the supports included attitudes and actions of other members of the community towards the child, relationships with peers and social demands of typical activities. A lack of more adequate services was confirmed.
Functional limitations children with cerebral palsy (gross motor, fine manual and intellectual functioning) were associated with the lower involvement in community-based activities. Activities affected by functional limitations were unstructured and organized physical activities, getting together with other children, and to a lesser extent, community events, neighbourhood outings, overnight visits or trips and extracurricular classes and lessons. Children with cerebral palsy with more severe levels of intellectual disability were at increased risk of fewer supporting factors and collectively less support and help from the environment.
New findings may aid the identification of families with a child with cerebral palsy who may need interventions to improve children's participation in the community environment.
Key words: participation, disability studies, International Classification of Functioning, Disability and Health, disability, children with cerebral palsy, involvement, barriers, environment, community-based activities
Research Interests:
Motor development is the most intense during the childhood period, and consequently, it requires the most of the attention and adequate monitoring. One of the reasons is the fact that each motor dysfunction has consequences on other... more
Motor development is the most intense during the childhood period, and consequently, it requires the most of the attention and adequate monitoring. One of the reasons is the fact that each motor dysfunction has consequences on other developmental domains, and therefore, compromises overall psychomotor development. The aim of this paper is to, by examining the available literature extensively, allocate and present specific, widely used instruments of children's motor development assessment during the childhood period, created in order to identify developmental motor dysfunctions and disorders and designed to evaluate motor development itself. A literature review was conducted by searching electronic databases EBSCO, Science Direct, and Scopus. The references of identified studies were hand-searched for additional articles. For the purposes of this paper, five assessment tools were presented. These instruments were selected on the basis of the frequency of their use in research work and on the basis of availability of comprehensive and relevant information. In addition to the description of the structure and characteristics of instruments, for each of them, strengths are listed and limitations noted. It can be concluded that in order to get an adequate insight into the motor abilities and motor development in general, it is advisable to use more than one instrument of assessment. A comprehensive insight into all motor substructures is important from the aspect of the treatment of deficient or impaired motor functions and in terms of the determination of a child’s motor potentials.
Research Interests:
Social integration refers to the process of comprehensive engagement of persons with impairments and disabilities in all aspects of family and social life. It is the key issue and the ultimate goal of rehabilitation of persons with spinal... more
Social integration refers to the process of comprehensive engagement of persons with impairments and disabilities in all aspects of family and social life. It is the key issue and the ultimate goal of rehabilitation of persons with spinal cord injury (hereinafter: SCI), covering all aspects of medical and professional rehabilitation. In most cases, people with SCI are healthy and able to participate actively in social life. However, despite the impact and invaluable importance of functional restoration, there are many factors representing significant barriers to social integration of persons from this population. The aim of this research was focused on the exploration of level of social integration in adult persons with SCI in comparison to those without SCI, as well as among adult persons with paraplegia and tetraplegia. This cross-sectional study included 100 participants of both gender, between the ages of 18 and 65 years. The entire sample was divided into three subgroups: 23 participants with paraplegia, 21 participants with tetraplegia, and 56 participants of typical population. Community Integration Questionnaire – CIQ and socio-demographic questionnaire were used. Differences in social integration levels among participants with SCI and participants without SCI were found in all examined domains (p< 0,05). Comparing results of participants with paraplegia and tetraplegia, statistically significant difference was observed only in home integration domain (χ2 = 17,746; df = 9; p = 0,038). Future research should examine the relation between a wider range of sociodemographic characteristics and various aspects of social integration of persons with SCI.
Research Interests: Social Integration, Spinal Cord Injuries, Traumatic Spinal cord injuries, Community integration, Spinal Cord Injuries/therapy, and 6 moreSpinal Cord Injuries/rehabilitation, Socijalna Integracija, povreda kičmene moždine, adult persons with disabilities, integracija u zajednicu, and Odrasle Osobe Sa Invaliditetom
Social integration represents the final and most important goal of the rehabilitation process. In order for individual to successfully and independently perform daily activities, some level of functional independence is necessary. In this... more
Social integration represents the final and most important goal of the rehabilitation process. In order for individual to successfully and independently perform daily activities, some level of functional independence is necessary. In this paper the research question was asked: Is social integration determined by the functional independence? The study included 100 subjects of both gender, aged 18-65 years, residing in the territory of the Republic of Serbia. The control group (K) consisted of 56 patients without spinal cord injury or other impairments. The experimental group (E-1) consisted of 23 patients diagnosed with injury of the thoracic, lumbar or sacral part of the spinal cord injury (paraplegia). The experimental group (E-2) consisted of 21 subjects with injury of cervical (neck), part of the spinal cord (tetraplegia, quadriplegia). The aim of this section study was to determine the degree of correlation between functional independence and social integration of adults with spinal cord injury. The instruments used consisted of General socio-demographic questionnaire, Test for the assessment of functional independence and Social integration questionnaire. The degree of functional independence showed significant differences among subjects with and without spinal cord injury, but also the differences between subjects with different level of injury. Also, the functional independence showed a high degree of correlation with social integration. Most of the independent variables of functional independence provided a statistically significant correlation with the independent variable of social integration.
Research Interests: Paraplegia, Social Integration, Quadriplegia, Tetraplegia, Spinal Cord Injuries, and 9 moreTraumatic Spinal cord injuries, Spinal Cord Injuries/therapy, Spinal Cord Injuries/rehabilitation, Socijalna Integracija, Functional independence, povreda kičmene moždine, paraplegija, kvadriplegija, and funkcionalna nezavisnost
The changes are an integral part of the life cycle of each family. However, families with children with disabilities are facing many challenges every day due to which everyday family dynamic is changing. Dimensions of the changes... more
The changes are an integral part of the life cycle of each family. However, families with children with disabilities are facing many challenges every day due to which everyday family dynamic is changing. Dimensions of the changes affecting family life can be observed in different aspects of family life. The aim of this study was to determine participation in the home environment of children with cerebral palsy and quality of life of their families, as well as to further examine the correlation between these two characteristics. Patterns of participation were analyzed through their parents’ assessment and compared with the patterns of participation of children with typical development. Associations with certain personal, family and environmental factors were examined. The differences were the most noticeable in diversity of activities (r = 0.70) and level of involvement (r = 0.60). Effect size of differences in family quality of life was the greatest in emotional well-being followed by physical/material well-being (r = 0.36, and r = 0.33, respectively). Correlation of participation in the home and family quality of life was confirmed in Family Interaction and Parenting indicating the importance that the existence of opportunities for active participation within the home environment has for promoting and fostering of communication and relationships between family members. In accordance with the results presented, it can be concluded that the presence of cerebral palsy led to changes in certain dimensions of social participation. The consequences of these changes were visible in the degree to which parents express satisfaction with family quality of life. The obtained results were discussed in relation to the findings of previous and current studies.
Research Interests:
Демографске тенденције у земљи и свету указују на прогресиван раст популације старих људи. Поред тога, литературни подаци говоре о упадљивој корелацији између старења и инвалидитета. То су неки од разлога због чега се старе особе и... more
Демографске тенденције у земљи и свету указују на прогресиван раст популације старих људи. Поред тога, литературни подаци говоре о упадљивој корелацији између старења и инвалидитета. То су неки од разлога због чега се старе особе и проблематика старења и старости све више налазе у истраживачком фокусу дефектологије. Овај рад има за циљ да направи дистинкцију између медицинске и социјалне димензије рехабилитације старих лица, са посебним освртом на соматопедски, односно дефектолошки аспект рехабилитације, као и на истраживања која наглашавају значај очувања функционалних способности и социјалне компетентности за најостваривију социјалну партиципацију и интеграцију старих лица.
Demographic trends in our country and worldwide indicate the progressive growth of the elderly population. In addition, literature data shows the conspicuous correlation between the aging and disability. These are some of the reasons why are elderly people and the issues of aging and old age more often in the research focus of defectology. The aim of this paper is to make a distinction between medical and social dimension of rehabilitation of the elderly people with a special consideration of somatopedic or defectological aspect of rehabilitation, as well as of studies that emphasized the importance of preserving functional abilities and social competences in order to accomplish social participation and integration of elderly people in society.
Demographic trends in our country and worldwide indicate the progressive growth of the elderly population. In addition, literature data shows the conspicuous correlation between the aging and disability. These are some of the reasons why are elderly people and the issues of aging and old age more often in the research focus of defectology. The aim of this paper is to make a distinction between medical and social dimension of rehabilitation of the elderly people with a special consideration of somatopedic or defectological aspect of rehabilitation, as well as of studies that emphasized the importance of preserving functional abilities and social competences in order to accomplish social participation and integration of elderly people in society.
Research Interests:
У овој монографији анализирали смо студије које се баве социјалном партиципацијом особа са инвалидитетом, са посебним нагласком на особе са церебралном парализом и особе са мултиплом склерозом. Циљ истраживања је дефинисање релевантних... more
У овој монографији анализирали смо студије које се баве социјалном партиципацијом особа са инвалидитетом, са посебним нагласком на особе са церебралном парализом и особе са мултиплом склерозом. Циљ истраживања је дефинисање релевантних фактора који о(не)могућавају социјалну партиципацију особа са инвалидитетом.
У литeратури се могу наћи студије које су се бавиле социјалном партиципацијом и функционалним способностима особа са инвалидитетом које су инвалидитет дефинисале у складу са Међународном класификацијом функционисања, инвалидитета и здравља. Међутим, већина студија се ослања на традиционалне дефиниције инвалидности, које инвалидитет посматрају кроз симптоматологију церебралне парализе и мултипле склерозе и лимитиран одабир активности свакодневног живота. Анализиране су оне студије које су у својој методологији истраживања и опису социјалне партиципације користиле биопсихосоцијални приступ.
Потврђена је основна претпоставка, да је квалитет социјалне партиципације особа са инвалидитетом нижи од нивоа који се може достићи у односу на њихове преостале способности.
In this monograph we have analyzed the studies focused on the social participation of people with disabilities with a special emphasis on the people with cerebral palsy and people with multiple sclerosis. The aim was to define the relevant factors that are the facilitators or the barriers to social participation of people with disabilities.
In the literature, studies that have dealt with social participation and functional abilities of people with disabilities and have been based on the definition of disability according to International Classification of Functioning, Disability and Health, can be found. However, most studies have relied on the traditional definition of disability, the disability seen through the symptoms of cerebral palsy and multiple sclerosis and a limited selection of activities of daily living. Therefore, the studies which have been using the biopsychosocial approach in their research methodology and description of social participation have been analyzed.
The basic assumption, that the quality of social participation of people with disabilities is below the level that can be achieved in accordance with their remaining abilities, has been confirmed.
У литeратури се могу наћи студије које су се бавиле социјалном партиципацијом и функционалним способностима особа са инвалидитетом које су инвалидитет дефинисале у складу са Међународном класификацијом функционисања, инвалидитета и здравља. Међутим, већина студија се ослања на традиционалне дефиниције инвалидности, које инвалидитет посматрају кроз симптоматологију церебралне парализе и мултипле склерозе и лимитиран одабир активности свакодневног живота. Анализиране су оне студије које су у својој методологији истраживања и опису социјалне партиципације користиле биопсихосоцијални приступ.
Потврђена је основна претпоставка, да је квалитет социјалне партиципације особа са инвалидитетом нижи од нивоа који се може достићи у односу на њихове преостале способности.
In this monograph we have analyzed the studies focused on the social participation of people with disabilities with a special emphasis on the people with cerebral palsy and people with multiple sclerosis. The aim was to define the relevant factors that are the facilitators or the barriers to social participation of people with disabilities.
In the literature, studies that have dealt with social participation and functional abilities of people with disabilities and have been based on the definition of disability according to International Classification of Functioning, Disability and Health, can be found. However, most studies have relied on the traditional definition of disability, the disability seen through the symptoms of cerebral palsy and multiple sclerosis and a limited selection of activities of daily living. Therefore, the studies which have been using the biopsychosocial approach in their research methodology and description of social participation have been analyzed.
The basic assumption, that the quality of social participation of people with disabilities is below the level that can be achieved in accordance with their remaining abilities, has been confirmed.
Research Interests:
Velkoska, A., Ajdinski, G., & Milicevic, M. (2010). Attachment theory of the children with autism and Down syndrome. In G. Nedovic et al. (Eds.), Thematic Collection of Papers „Special Education and Rehabilitation – Science and/or... more
Velkoska, A., Ajdinski, G., & Milicevic, M. (2010). Attachment theory of the children with autism and Down syndrome. In G. Nedovic et al. (Eds.), Thematic Collection of Papers „Special Education and Rehabilitation – Science and/or Practice“ (pp. 529–547). Novi Sad: Society of Special Educators and Rehabilitators of Vojvodina. ISBN 978-86-913605-1-1
The general aim of this study was to explore the emotional ties between a child with a disability and its attachment figure (mother) and pathology that can occur in this emotional bond. For this propose, we study two children with disability (child with autism and child with Down syndrome) and to access the results we used version 3 of the Q-sort test, which consists of 90 items. Here we presented characteristics of a “secure attachment” with the primary caregiver, also characteristics of “insecure attachment”, classifications, causes of insecure attachment and methods that can help us to recover emotional ties. We gave a special explanation of disorganization / disorientation, as most frequent insecure attachment of the child with disabilities. Throughout the analysis, we determined that both examined children have an insecure attachment. According to the results of the Person coefficient of correlation child with Down syndrome has 0.23 ratios of attachment, and child with autism has a coefficient of – 0.35. The results of the analysis were compared with standardized coefficients that are considered as a characteristic of the safest child – criterion sort.
The general aim of this study was to explore the emotional ties between a child with a disability and its attachment figure (mother) and pathology that can occur in this emotional bond. For this propose, we study two children with disability (child with autism and child with Down syndrome) and to access the results we used version 3 of the Q-sort test, which consists of 90 items. Here we presented characteristics of a “secure attachment” with the primary caregiver, also characteristics of “insecure attachment”, classifications, causes of insecure attachment and methods that can help us to recover emotional ties. We gave a special explanation of disorganization / disorientation, as most frequent insecure attachment of the child with disabilities. Throughout the analysis, we determined that both examined children have an insecure attachment. According to the results of the Person coefficient of correlation child with Down syndrome has 0.23 ratios of attachment, and child with autism has a coefficient of – 0.35. The results of the analysis were compared with standardized coefficients that are considered as a characteristic of the safest child – criterion sort.
Research Interests:
Stanojkovska-Trajkovska, N., Petrov, R., & Milicevic, M. (2010). Foster families a form of non-institutional protection of children with special educational needs in the Republic of Macedonia. In G. Nedovic et al. (Eds.), Thematic... more
Stanojkovska-Trajkovska, N., Petrov, R., & Milicevic, M. (2010). Foster families a form of non-institutional protection of children with special educational needs in the Republic of Macedonia. In G. Nedovic et al. (Eds.), Thematic Collection of Papers „Special Education and Rehabilitation – Science and/or Practice“ (pp. 75–91). Novi Sad: Society of Special Educators and Rehabilitators of Vojvodina. ISBN 978-86-913605-1-1
With the Social Protection Law, Republic of Macedonia provides help for the children without parents and parental care, on a population-wide basis or only for the children with special educational needs, through one of the forms of non-institutional protection, fostering in an another family. With reference to children with special educational needs, we wouldn’t be able to base the study only on their individual monitoring, and a thorough analysis of the information obtained from the foster families and the social work centers is inevitable.
With the Social Protection Law, Republic of Macedonia provides help for the children without parents and parental care, on a population-wide basis or only for the children with special educational needs, through one of the forms of non-institutional protection, fostering in an another family. With reference to children with special educational needs, we wouldn’t be able to base the study only on their individual monitoring, and a thorough analysis of the information obtained from the foster families and the social work centers is inevitable.
Research Interests:
Research Interests:
Monografska publikacija Rodna ravnopravnost u Srbiji: stanje i perspek-tive autorke dr Sanje Ćopić je objavljena 2016. godine, a izdavač je Institut za kriminološka i sociološka istraživanja u Beogradu. Nastala je kao rezultat rada... more
Monografska publikacija Rodna ravnopravnost u Srbiji: stanje i perspek-tive autorke dr Sanje Ćopić je objavljena 2016. godine, a izdavač je Institut za kriminološka i sociološka istraživanja u Beogradu. Nastala je kao rezultat rada autorke na projektu Kriminal u Srbiji: fenomenologija, rizici i mogućnosti socijalne intervencije (broj 47011) koji finansira Ministarstvo prosvete, na-uke i tehnološkog razvoja Republike Srbije. Kao recenzentkinje, navedene su prof. dr Vesna Nikolić-Ristanović i dr Ivana Stevanović. Knjiga ima 160 stranica i sadržajno je podeljena na pet poglavlja, pored uvodnih razmatra-nja, zaključka i spiska korišćene literature. Uvodna razmatranja podsećaju čitaoca da pitanje rodne ravnopravnos-ti prevazilazi izolovano posmatrano unapređivanje položaja žena. U suštini, pitanje rodne ravnopravnosti je pitanje univerzalnih ljudskih prava i ključni je preduslov društvene pravde, uspostavljanja demokratije, postizanja soci-jalnog mira i pravde, ekonomskog prosperiteta, razvoja društva i unapređe-nja društvenih odnosa (str. 9). Autorka navodi da je u Nacionalnoj strategiji za poboljšanje položaja žena i unapređivanje rodne ravnopravnosti za period 1 Ovaj tekst je nastao kao rezultat na projektu " Kriminal u Srbiji: fenomenologija, rizici i mogućnosti socijalne intervencije " (broj 47011) koji finansira Ministarstvo prosvete, nauke i tehnološkog razvoja Republike Srbije. 2 Milena Milićević, mileninaadresa@gmail.com
Research Interests:
Milićević, M. (2016). Marina Hughson: Mnogo odgovornosti, premalo podrške: sami roditelji na Zapadnom Balkanu, Institut za kriminološka i sociološka istraživanja, Beograd, 2015 (prikaz knjige). Beogradska defektološka škola, 22(2),... more
Milićević, M. (2016). Marina Hughson: Mnogo odgovornosti, premalo podrške: sami roditelji na Zapadnom Balkanu, Institut za kriminološka i sociološka istraživanja, Beograd, 2015 (prikaz knjige). Beogradska defektološka škola, 22(2), 111–115. UDK: 364.4-058.832(497-15)(049.32), 347.63-058.832(497-15)(049.32), 305-055.1/.2(497-15)(049.32). COBISS.SR-ID: 225773836. ISSN: 0354-8759
Research Interests:
Milićević, M. (2015). Ljeposava Ilijić: Osuđeni i deprivacije: Uticaj karakteristika ličnosti na intenzitet doživljavanja zatvorskih deprivacija. Beogradska defektološka škola, 21(3), 91–95 (prikaz knjige).
Research Interests:
Милићевић, М. (2012). Епидемија попустљивог васпитања – Роберт Шо и Стефани Вуд: Епидемија попустљивог васпитања – учити из туђег искуства, Психополис институт, Нови Сад, 2012. Зборник Института за педагошка истраживања, 44(2), 427–431... more
Милићевић, М. (2012). Епидемија попустљивог васпитања – Роберт Шо и Стефани Вуд: Епидемија попустљивог васпитања – учити из туђег искуства, Психополис институт, Нови Сад, 2012. Зборник Института за педагошка истраживања, 44(2), 427–431 (приказ књиге). ISSN 0579-6431
Research Interests:
The environment is a known predictor of participation generally. However, little is known about the role of environment in community participation of children with cerebral palsy (CP) in Serbia. This cross-sectional study was aimed to... more
The environment is a known predictor of participation generally. However, little is known about the role of environment in community participation of children with cerebral palsy (CP) in Serbia. This cross-sectional study was aimed to explore the differences between children with CP and typically developing (TD) children related to the environmental features important for community participation.
A convenience sample included 106 children with CP (60 males; mean age 12.7y [SD 3.4y]; GMFCS–E&R levels I–III=64; IV–V=42), and 132 TD children (64 males; mean age 12.0y [SD 3.1y]). Parents completed the Participation and Environment Measure for Children and Youth (PEM-CY). The number of supports and barriers, and environmental helpfulness and resources scores were calculated. Logistic regression was used to examine the likelihood that environmental features would be rated as supports or barriers and reported as helpful and resources as available/adequate in supporting the child’s community participation (controlling for age).
Children with CP were 0.91 (95% CI 0.87–0.96) and 0.89 times (95% CI 0.84–0.94) less likely to have available and/or adequate environmental help and resources for participation in the community compared to TD children, respectively. The number of supports (p=0.506) and barriers (p=0.131) did not contribute significantly to the model.
The essential difference between the environmental features significant for community participation of children with CP and TD children is not in the number of barriers or facilitators. Our finding indicates that difference is in the readiness of the community environment to fulfil its mediating role in participation outcomes through assistance, support and resources.
A convenience sample included 106 children with CP (60 males; mean age 12.7y [SD 3.4y]; GMFCS–E&R levels I–III=64; IV–V=42), and 132 TD children (64 males; mean age 12.0y [SD 3.1y]). Parents completed the Participation and Environment Measure for Children and Youth (PEM-CY). The number of supports and barriers, and environmental helpfulness and resources scores were calculated. Logistic regression was used to examine the likelihood that environmental features would be rated as supports or barriers and reported as helpful and resources as available/adequate in supporting the child’s community participation (controlling for age).
Children with CP were 0.91 (95% CI 0.87–0.96) and 0.89 times (95% CI 0.84–0.94) less likely to have available and/or adequate environmental help and resources for participation in the community compared to TD children, respectively. The number of supports (p=0.506) and barriers (p=0.131) did not contribute significantly to the model.
The essential difference between the environmental features significant for community participation of children with CP and TD children is not in the number of barriers or facilitators. Our finding indicates that difference is in the readiness of the community environment to fulfil its mediating role in participation outcomes through assistance, support and resources.
Research Interests:
Autori polaze od definicije propriocepcije kao zbira neuronskih inputa iz zglobnih kapsula, ligamenata, tetiva, mišića i kože, tačnije od definicije propriocepcije kao višeslojnog sistema koji utiče na motornu kontrolu i koji ima ulogu u... more
Autori polaze od definicije propriocepcije kao zbira neuronskih inputa iz zglobnih kapsula, ligamenata, tetiva, mišića i kože, tačnije od definicije propriocepcije kao višeslojnog sistema koji utiče na motornu kontrolu i koji ima ulogu u regulaciji ponašanja. Osim toga, proprioceptivni poremećaji i/ili smetanje doprinose poteškoćama u motornom planiranju i posturalnoj kontroli, a smatra se da predstavljaju i jedan od elemenata bihejvioralnih ispada koji dodatno negativno utiču na učestvovanje deteta u svakodnevnim zadacima.
U ovoj retrospektivnoj studiji su prikazani rezultati analize zastupljenosti proprioceptivne stimulacije u svakodnevnom somatopedskom defektološkom (re)habilitacionom radu. Primenjena je analiza sadržaja postojeće defektološke dokumentacije prikupljene tokom individualnog rada u prethodnih 15 godina. Finalnim uzorkom je obuhvaćeno 127 ispitanika sa dostupnom kompletnom dokumentacijom uzrasta od rođenja do navršenih 16 godina života.
Korekcija posturalnih reakcija i uvežbavanje balansa kroz različite pokrete najčešće su planirani i sprovođeni sa ciljem dostizanja dinamičke ravnoteže i ravnoteže na mobilnoj osnovi, a posebno u okviru preventivno-korektivnog rada koji preovladava na osnovnoškolskom uzrastu. Kao metod izbora, izdvaja se ciljana selekcija proprioceptivnih i vestibularnih signala (kinestezija), njihovo usmeravanje, pojačavanje i ponavljanje. Primena rekvizita je indikovana za potrebe stimulisanja zone narednog razvoja i stabilizovanja osvojene razvojne faze.
Inkorporiranje elemenata stimulacije propriocepcije u različite forme tretmana se pokazalo kao optimalno u ostvarivanju (re)habilitacionih potencijala deteta. Nerazdvojiva od vežbi balansa, što uključuje dinamičku i statističku ravnotežu, stimulacija propriocepcije pojačava efekat vežbi jačanja mišićne snage, njihove elastičnosti i izdržljivosti, doprinosi stabilizovanju posture i usvajanju motornih obrazaca, bazičnih i diferenciranih. Posmatrajući propriocepciju kao osnov kinestetskog doživljaja, nizom praktičnih primera, autori nastoje da prikažu važnost postavljanja propriocepcije kao ciljano selektovanog i doziranog elementa somatopedskog defektološkog (re)habilitacionog rada.
U ovoj retrospektivnoj studiji su prikazani rezultati analize zastupljenosti proprioceptivne stimulacije u svakodnevnom somatopedskom defektološkom (re)habilitacionom radu. Primenjena je analiza sadržaja postojeće defektološke dokumentacije prikupljene tokom individualnog rada u prethodnih 15 godina. Finalnim uzorkom je obuhvaćeno 127 ispitanika sa dostupnom kompletnom dokumentacijom uzrasta od rođenja do navršenih 16 godina života.
Korekcija posturalnih reakcija i uvežbavanje balansa kroz različite pokrete najčešće su planirani i sprovođeni sa ciljem dostizanja dinamičke ravnoteže i ravnoteže na mobilnoj osnovi, a posebno u okviru preventivno-korektivnog rada koji preovladava na osnovnoškolskom uzrastu. Kao metod izbora, izdvaja se ciljana selekcija proprioceptivnih i vestibularnih signala (kinestezija), njihovo usmeravanje, pojačavanje i ponavljanje. Primena rekvizita je indikovana za potrebe stimulisanja zone narednog razvoja i stabilizovanja osvojene razvojne faze.
Inkorporiranje elemenata stimulacije propriocepcije u različite forme tretmana se pokazalo kao optimalno u ostvarivanju (re)habilitacionih potencijala deteta. Nerazdvojiva od vežbi balansa, što uključuje dinamičku i statističku ravnotežu, stimulacija propriocepcije pojačava efekat vežbi jačanja mišićne snage, njihove elastičnosti i izdržljivosti, doprinosi stabilizovanju posture i usvajanju motornih obrazaca, bazičnih i diferenciranih. Posmatrajući propriocepciju kao osnov kinestetskog doživljaja, nizom praktičnih primera, autori nastoje da prikažu važnost postavljanja propriocepcije kao ciljano selektovanog i doziranog elementa somatopedskog defektološkog (re)habilitacionog rada.
Research Interests:
U ovom tekstu autori analiziraju krivičnopravni okvir mera bezbednosti medicinskog karaktera, s jedne strane, i nastoje da identifikuju i prikažu najčešće probleme uočene u njihovoj praktičnoj primeni, s druge strane. Nakon uvodnog... more
U ovom tekstu autori analiziraju krivičnopravni okvir mera bezbednosti medicinskog karaktera, s jedne strane, i nastoje da identifikuju i prikažu najčešće probleme uočene u njihovoj praktičnoj primeni, s druge strane. Nakon uvodnog izlaganja u kojem se krivičnopravni okvir sagledava kroz krivično materijalno i procesno pravo, najpre se analiziraju podaci o krivičnom delu, broju izvršenih dela i ranijoj osuđivanosti, o vrsti mere bezbednosti (u odnosu na ustanovu u kojoj se mera sprovodi) i njihovom trajanju. U nastavku se razmatraju problemi u praktičnoj primeni koji se odnose na praksu i dinamiku sprovođenja ovih mera bezbednosti u zdravstvenim ustanovama, a prvenstveno su izdvojene sledeće teme: veštačenje, smeštajni kapaciteti i nedostatak stručnih radnika s osvrtom na tretman osuđenih lica i pripreme za postpenalni prihvat. Izdvojene teme su prodiskutovane u kontekstu važećih propisa Republike Srbije. Rezultati ove studije ilustruju da je ispunjavanje ciljeva mera bezbednosti medicinskog karaktera u preovladavajućim krivičnopravnim i praktičnim uslovima višestruko otežano. Osnovni problemi su prodiskutovani sa aspekta svrhe izricanja mera bezbednosti i kroz paradoks dužine trajanja mera u pojedinim slučajevima, naglašavajući neujednačenost u primeni mera i nesklad između propisanog i praktičnog.
In this paper, the authors analyze the criminal-law framework of security measures of a medical character, on the one hand, and try to identify and demonstrate the most common problems identified in their practical application, on the other hand. After the introduction in which the criminal law framework is examined through criminal and criminal procedural law, authors were analyzed the data on the criminal offense, the number of committed crimes and previous convictions, the type of security measure (in relation to the institution in which the measure is being conducted) and their duration. The paper also discusses problems in practical application related to the practice and dynamics of implementation of these security measures in healthcare institutions, primarily focusing on the following topics: expertise, accommodation capacities and the lack of skilled workers with a view to treatment of convicted persons and preparations for post-penal acceptance. These topics are discussed in the context of the laws of the Republic of Serbia. The results of this study illustrate that the fulfillment of the objectives of medical security measures is difficult. The basic problems are discussed in terms of the purpose of imposing security measures and through the paradox of the duration of measures in individual cases, highlighting the unevenness in the application of measures and the discrepancy between legal norm and practice.
In this paper, the authors analyze the criminal-law framework of security measures of a medical character, on the one hand, and try to identify and demonstrate the most common problems identified in their practical application, on the other hand. After the introduction in which the criminal law framework is examined through criminal and criminal procedural law, authors were analyzed the data on the criminal offense, the number of committed crimes and previous convictions, the type of security measure (in relation to the institution in which the measure is being conducted) and their duration. The paper also discusses problems in practical application related to the practice and dynamics of implementation of these security measures in healthcare institutions, primarily focusing on the following topics: expertise, accommodation capacities and the lack of skilled workers with a view to treatment of convicted persons and preparations for post-penal acceptance. These topics are discussed in the context of the laws of the Republic of Serbia. The results of this study illustrate that the fulfillment of the objectives of medical security measures is difficult. The basic problems are discussed in terms of the purpose of imposing security measures and through the paradox of the duration of measures in individual cases, highlighting the unevenness in the application of measures and the discrepancy between legal norm and practice.
Research Interests:
Children with challenging behaviour often have difficulties in engaging in activities of daily living, including household chores. Having household responsibilities is one of the first steps towards future independent living. This... more
Children with challenging behaviour often have difficulties in engaging in activities of daily living, including household chores. Having household responsibilities is one of the first steps towards future independent living. This preliminary study aimed to examine the relationship among challenging behaviour and participation in household chores of boys and girls aged 7–18 years. The sample included 142 participants (49.3% males), mean age 11.8 years (SD=3.2). To collect the data, Child’s Challenging Behaviour Scale, Version 2 (CCBS) and Home Section of the Participation and Environment Measure for Children and Youth (PEM-CY) were used. Partial correlation was used to explore the relationship between the extent of challenging behaviour exhibited by a child during daily life and the frequency of participation and the involvement level in household chores, while controlling for age. Generally, those children who participated in household chores more frequently or with a higher involvement level exhibited less challenging behaviours and their parents were more confident in their parenting skills. The less frequent household chores were associated with non-compliant or uncooperative behaviours, while lower level of involvement was related to reliance on routine, including refusal to deviate from routine. Fewer correlation coefficients were confirmed in girls, mostly related to their independence, overall extent of challenging behaviour and the frequency of participation. The study findings point to the importance of further research of the challenging behaviour consequences that can be detected in the everyday engagement of school age children.
Research Interests:
The research was conducted in order to explore children’s participation in computer and video games, from the perspective of their parents. The main research questions were: what types of change were needed, and whether the desire for... more
The research was conducted in order to explore children’s participation in computer and video games, from the perspective of their parents. The main research questions were: what types of change were needed, and whether the desire for change was related to the children’s participation in other home-based activities. Participation was operationalized through the frequency and involvement level. Type(s) of change included changes in frequency, involvement and/or variety of activities. The sample consisted of 141 children, aged 7–18 years (mean 11.78 ± 3.21). The Home Section of Participation and Environment Measure for Children and Youth (PEM-CY; Coster, Law, & Bedell, 2010) was used. Needed changes were related to the frequency of children’s participation in household chores (p=.006, η2p=.05), playing computer and video games (p<.001, η2p=.15), and socializing (p=.026, η2p=.03), as well as to the level of involvement in arts, crafts, music and hobbies (p<.001, η2p=.06), socializing (p=.004, η2p=.05), and school preparation (p=.015, η2p=.04). Less frequent computer and video games were desired when creative activities were less frequent (p=.040, r=.23) and when children were less involved in socializing with family members or houseguests (p=.026, r=.24). Less involvement was desired when indoor play and games were less frequent (p=.007, r=.29) and when socializing using technology was more frequent (p=.007, r=.30). The results confirmed that parents associated both frequency and involvement of their children in computer and video games with participation in several other home-based activities.
Research Interests:
Tokom poslednje tri decenije, interes za istraživanja kvaliteta života ne jenjava. Složenost ovog multidimenzionalnog konstrukta je rezultirala pojavom brojnih instrumenata namenjenih njegovoj proceni, kao i pojavom bliskih ili srodnih... more
Tokom poslednje tri decenije, interes za istraživanja kvaliteta života ne jenjava. Složenost ovog multidimenzionalnog konstrukta je rezultirala pojavom brojnih instrumenata namenjenih njegovoj proceni, kao i pojavom bliskih ili srodnih termina, od kojih je najrasprostranjeniji kvalitet života povezan sa zdravljem. Intenziviranje interesovanja za ovaj koncept je primetno i u okviru nacionalne naučne i stručne javnosti. Rad je osmišljen s ciljem da se izdvoji i analizira savremena literatura koja se bavi proučavanjem kvaliteta života osoba sa ometenošću ili invaliditetom na teritoriji Republike Srbije. Osnovna istraživačka pitanja bila su: koje polazne definicije kvaliteta života autori navode, koji je odnos između teorijskih definicija kvaliteta života, formulacije istraživačkih ciljeva i/ili hipoteza i njihove dalje operacionalizacije, kao i koji su instrumenti procene primenjeni. Pretraga nacionalnih bibliografsko-kataloških baza podataka i repozitorijuma, elektronski dostupnih nacionalnih časopisa i zbornika naučnih skupova sa radovima štampanim u celini je rezultirala izdvajanjem 45 studija koje su ispunjavale osnovni kriterijum uključivanja – ispitivanje kvaliteta života osoba sa ometenošću ili osoba sa trajnim invaliditetom koje je sprovedeno na teritoriji Republike Srbije nakon 2000. godine. Najvećim brojem studija, 20 (44,4%), bile su obuhvaćene osobe sa telesnim invaliditetom, motoričkim poremećajima ili ratnim povredama. Primenom analize sadržaja, prvenstveno je uočen nedostatak jasne distinkcije i nedoslednost u korišćenju termina kvaliteta života i kvaliteta života povezanog sa zdravljem uz konsekvetno upitan odabir instrumenata procene. Na dečijem uzrastu je primetna manja frekventna upotreba verzija instrumenata za decu, odnosno dominantna je procena roditelja ili procena roditelja u ime deteta. Rezultati ove studije ilustruju da je potrebno jasnije sagledati povezanost odabrane definicije i terminologije i dodatno preispitati odabir instrumenata procene u nekim narednim istraživanjima. Otežana interpretacija nalaza istraživanja i poteškoće u komparaciji sa sličnim istraživanjima su neke od mogućih posledica.
Ključne reči: kvalitet života, ometenost, istraživanje, metodološke osnove, Srbija
Ključne reči: kvalitet života, ometenost, istraživanje, metodološke osnove, Srbija
Research Interests:
Kvalitet porodičnog života je kompleksan konstrukt koji se sve više koristi u studijama ometenosti. Postavljanje pitanja o psihometrijskim karakteristikama mernih instrumenata je uvek opravdano. Ovo istraživanje je sprovedeno sa ciljem da... more
Kvalitet porodičnog života je kompleksan konstrukt koji se sve više koristi u studijama ometenosti. Postavljanje pitanja o psihometrijskim karakteristikama mernih instrumenata je uvek opravdano. Ovo istraživanje je sprovedeno sa ciljem da se ispita faktorska struktura Skale porodičnog kvaliteta života (Beach Center Family Quality of Life Scale – Beach FQOL Scale; Hoffman et al., 2006) na srpskom jeziku kao jednog od najkorišćenijih instrumenata u ovoj oblasti. Uzorak je činilo 159 porodica sa detetom s cerebralnom paralizom i 154 porodica sa detetom tipičnog razvoja, oba pola, uzrasta od sedam do 18 godina koje žive na teritoriji Republike Srbije. Sprovedena je eksplorativna faktorska analiza, a odabrana je analiza glavnih komponenti bez rotacije faktora. Uočeno je da sve stavke imaju velike faktorske težine za ekstrahovane faktore (iznad 0,53 u grupi porodica sa detetom s cerebralnom paralizom, odnosno 0,59 u grupi porodica sa detetom tipičnog razvoja). Najniži procenti objašnjene varijanse iznose 45,69%, odnosno 51,70% i zabeleženi su u domenu Fizičko/materijalno blagostanje, dok su najveće vrednosti nađene u domenu Porodične interakcije i za obe grupe iznose 65,07%, odnosno 57,90%. Na osnovu rezultata, zaključeno je da sve ispitivane stavke za svaki od Beach FQOL domena pokazuju zadovoljavajući stepen zasićenja, odnosno fakorske težine za ekstrahovani faktor. Rezultati ove analize podržavaju originalni model jednog faktora.
Ključne reči: kvalitet života porodice, cerebralna paraliza, faktorska analiza
Ključne reči: kvalitet života porodice, cerebralna paraliza, faktorska analiza
Research Interests:
Children with developmental disabilities, including cerebral palsy (CP), often experience restriction in community participation. The previous empirical and theoretical consideration of community participation of children with CP did not... more
Children with developmental disabilities, including cerebral palsy (CP), often experience restriction in community participation. The previous empirical and theoretical consideration of community participation of children with CP did not take into account the family quality of life (FQOL) as a potential factor that could have affected the participation of these children. The aim of this study was to examine the association between community participation of children with CP and FQOL and draw comparisons with their peers with typical development (TD). The sample of this descriptive, cross-sectional and comparative research consisted of 109 families with children with CP and 133 families with children with TD, both genders, aged between seven and 18 years. The Participation and Environment Measure for Children and Youth (PEM-CY) and The Beach Center Family Quality of Life Scale (Beach FQOL Scale) were used. The Spearman's rank-order correlation coefficients were calculated to test the strength of a relationship between two sets of data for each group separately. The results indicate interrelation between the subjective dimension of community participation as expressed through parental desire for change, and both parenting aspect of family life (ρ=-.24) and social and emotional support within the family emotional well-being (ρ=-.20) in the group of children with CP. However, a greater number of statistically significant correlations is confirmed in the group of children with TD. Comparing the distribution of results between the two groups, the most noticeable is the absence of connection between FQOL and diversity and frequency of community participation in the group of children with CP, which is confirmed in the group of children with TD. The conclusion underlines that the reflection of changes that affect family life after the birth
of a child with CP can be seen in various aspects of FQOL.
Key words: community participation, family quality of life, cerebral palsy, family life
of a child with CP can be seen in various aspects of FQOL.
Key words: community participation, family quality of life, cerebral palsy, family life
Research Interests: Community Engagement & Participation, Community Participation, Health, Family and social networks, Economic Resources, Leisure time, as Quality of Life domains, Community participation and engagement, Disability Family Quality of Life, and 2 moreChildren With Cerebral Palsy and Family Quality of Life
Research subject: During the last two decades, families have been increasingly encouraged to take continuous care of their child with cerebral palsy. Consequently, the way of changing of family life and its quality has become a research... more
Research subject: During the last two decades, families have been increasingly encouraged to take continuous care of their child with cerebral palsy. Consequently, the way of changing of family life and its quality has become a research subject in disability studies. Method: The aim of this study was to explore the impact of child, family, environment and service support characteristics as potential predictors on the quality of life in families with children with cerebral palsy residing in the Republic of Serbia. The sample was recruited using convenience sampling and consisted of 110 families of children with cerebral palsy, of both genders, between 7 and 18 years of age (M=12,67, SD=3,41). A hierarchical multiple regression was calculated to predict family quality of life based on four sets of independent variables. Child and family characteristics, frequency and magnitude of perceived physical, attitudinal, and policy barriers, and parental perceptions and experiences with professional support were included. Results: Child's challenging behavior was one of the strongest predictors of the quality of family life, b=-.29, t (106)=-3.18, p<.01. The household income also accounted for a significant proportion of unique variance in predicting the quality of family life, b=-.21, t(106)=-2.17, p<.05. Moreover, household income was no longer a significant predictor when the extent of challenging behavior exhibited by the child and the magnitude of perceived environmental barriers entered the regression model. The results confirm that household income and perceived everyday care-giving difficulties are associated with the reduced quality of family life. Conclusion: The conclusion underlines the importance of the environment in improving the quality of family life. However, the reinforcing intervention in the domain of environmental barriers could contribute to the quality of family life by overcoming the lower income and behavioral problems.
Research Interests:
OBJECTIVES Families with children with physical disability experience various environmental barriers in their community. In order to achieve social inclusion as an ultimate goal of social equality, it is important to identify the impact... more
OBJECTIVES
Families with children with physical disability experience various environmental
barriers in their community. In order to achieve social inclusion as an ultimate
goal of social equality, it is important to identify the impact of certain
environmental factors important for the active involvement of children with
physical disability. This paper presents the results of research conducted in order
to examine the current state of programs and services in different communities as
an environmental barrier to families with a child with cerebral palsy.
METHODOLOGY
This study was designed and conducted as a non-experimental, descriptive and
explorative. A total of 114 families with a child with cerebral palsy was included in
a survey; 66 lived in urban, 22 in suburban and 26 in rural areas of the Republic of
Serbia. The average age of 64 boys and 50 girls was 12 years 10 months. The Craig
Hospital Inventory of Environmental Factors for Children – Parent Version (CHIEFCP;
McCauley et al., 2013) on Serbian was used. Results were analyzed by
descriptive statistics, while differences were examined in relation to the type of
community as an independent variable using non-parametric Kruskal-Wallis Htest.
RESULTS
Kruskal-Wallis H-Test indicated statistically significant differences in frequency
(p=.006), magnitude (p=.003) and overall impact (p=.002) among families who
lived in an urban, suburban and rural type of community. Perceived lack of
programs and services for children with physical disability was the highest rated
as a barrier in suburban communities compared to urban and rural ones. The
main study limitations are related to convenience sampling and the lack of
information on the representativeness of our sample. Additionally, the results
were based on parents’ perspectives solely.
IMPLICATIONS
The main implications are related to the need to improve support systems of
social inclusion in suburban areas. Improving the structure of environmental
factors should be implemented by removing the existing barriers, according to the
needs of families with a child with a physical disability. Future studies could
examine what changes and what kind of programs and community services
parents refer to as needed and/or desired, and relate this information to specific
environmental factors.
ORIGINALITY VALUE
To our knowledge, this is the first study that includes both the frequency and the
magnitude of the impact of lack of programs and services as a problem faced by
children with cerebral palsy and their families in our country. Moreover, the
comparative overview of the different types of communities is provided. This
study adds to the previous knowledge about environmental barriers to full social
inclusion in the population of children with physical disabilities by indicating
suburban communities as the priority one in the planning of future steps in social
policy.
KEY WORDS
Services in community, social inclusion, disability, suburban, rural, type of
community, environmental barrier
Families with children with physical disability experience various environmental
barriers in their community. In order to achieve social inclusion as an ultimate
goal of social equality, it is important to identify the impact of certain
environmental factors important for the active involvement of children with
physical disability. This paper presents the results of research conducted in order
to examine the current state of programs and services in different communities as
an environmental barrier to families with a child with cerebral palsy.
METHODOLOGY
This study was designed and conducted as a non-experimental, descriptive and
explorative. A total of 114 families with a child with cerebral palsy was included in
a survey; 66 lived in urban, 22 in suburban and 26 in rural areas of the Republic of
Serbia. The average age of 64 boys and 50 girls was 12 years 10 months. The Craig
Hospital Inventory of Environmental Factors for Children – Parent Version (CHIEFCP;
McCauley et al., 2013) on Serbian was used. Results were analyzed by
descriptive statistics, while differences were examined in relation to the type of
community as an independent variable using non-parametric Kruskal-Wallis Htest.
RESULTS
Kruskal-Wallis H-Test indicated statistically significant differences in frequency
(p=.006), magnitude (p=.003) and overall impact (p=.002) among families who
lived in an urban, suburban and rural type of community. Perceived lack of
programs and services for children with physical disability was the highest rated
as a barrier in suburban communities compared to urban and rural ones. The
main study limitations are related to convenience sampling and the lack of
information on the representativeness of our sample. Additionally, the results
were based on parents’ perspectives solely.
IMPLICATIONS
The main implications are related to the need to improve support systems of
social inclusion in suburban areas. Improving the structure of environmental
factors should be implemented by removing the existing barriers, according to the
needs of families with a child with a physical disability. Future studies could
examine what changes and what kind of programs and community services
parents refer to as needed and/or desired, and relate this information to specific
environmental factors.
ORIGINALITY VALUE
To our knowledge, this is the first study that includes both the frequency and the
magnitude of the impact of lack of programs and services as a problem faced by
children with cerebral palsy and their families in our country. Moreover, the
comparative overview of the different types of communities is provided. This
study adds to the previous knowledge about environmental barriers to full social
inclusion in the population of children with physical disabilities by indicating
suburban communities as the priority one in the planning of future steps in social
policy.
KEY WORDS
Services in community, social inclusion, disability, suburban, rural, type of
community, environmental barrier
Research Interests:
OBJECTIVES Family quality of life is a complex construct that refers to the conditions where the family's needs are met, and their members enjoy living together. Poverty is, on the other hand, one of the qualitative indicators of social... more
OBJECTIVES Family quality of life is a complex construct that refers to the conditions where the family's needs are met, and their members enjoy living together. Poverty is, on the other hand, one of the qualitative indicators of social exclusion, a phenomenon that affects individuals and families in Serbia in the transition period. This study examines the impact of poverty on the quality of life in families living in the Republic of Serbia. METHODOLOGY This study was designed and conducted as a non-experimental, descriptive and explorative. A random sample consisted of 154 families residing in the Republic of Serbia. The Beach Center (FQOL) Family Quality of Life Scale (Hoffman et al., 2006) on Serbian was used. Poverty was operationalized through material status and housing conditions, both subjectively assessed on a three-level scale (below average, average, above average). Material status was related to the monthly household income, average income per member, and whether the housing issues was resolved or family owned a car. Housing conditions were assessed in relation to the living space size (total and per household member), existing sanitary conditions, availability of clean and warm water and electricity, heating method and the use of modern information and communication systems and technologies (fixed and/or mobile telephone, computer, internet). Family quality of life included four domains
(Family interaction, Parenting, Emotional well-being, Physical well-being) and
overall FQOL score.
RESULTS
Results were analyzed by descriptive statistics, and FQOL differences were
examined in relation to the family material status, housing conditions and average
monthly household income as independent variables. Kruskal-Wallis H-Test
indicated statistically significant differences between three FQOL domains and
overall score in relation to material status and housing conditions (p<.05),
excepted for Parenting (p>.05). Positive and small to medium statistically
significant correlations were found between all four domains and overall score
with the average income (p<.01).
IMPLICATIONS
Families with below average material status and housing conditions are at risk of
low FQOL. The differences are most obvious in physical/material well-being, and
the least at parenting as seen through the activities that adult family members do
to help children grow and develop in multiple areas of life (Park et al., 2003;
Hoffman et al., 2006). The low levels of parental satisfaction with FQOL are
associated with lower levels of monthly household income, therefore indicating
the influence that poverty has on quality of life of families in the Republic of
Serbia.
ORIGINALITY VALUE
This study adds to the previous knowledge about impoverished families by
indicating that the relationships among family members and the environment in
which the family functions, their emotional and internal aspects of life, as well as
their physical, material and financial well-being are connected to their material
status, housing conditions and income. Additionally, family income is associated
with parenting aspect of family life.
KEY WORDS
Poverty, family, family quality of life, physical well-being, material status, Serbia
(Family interaction, Parenting, Emotional well-being, Physical well-being) and
overall FQOL score.
RESULTS
Results were analyzed by descriptive statistics, and FQOL differences were
examined in relation to the family material status, housing conditions and average
monthly household income as independent variables. Kruskal-Wallis H-Test
indicated statistically significant differences between three FQOL domains and
overall score in relation to material status and housing conditions (p<.05),
excepted for Parenting (p>.05). Positive and small to medium statistically
significant correlations were found between all four domains and overall score
with the average income (p<.01).
IMPLICATIONS
Families with below average material status and housing conditions are at risk of
low FQOL. The differences are most obvious in physical/material well-being, and
the least at parenting as seen through the activities that adult family members do
to help children grow and develop in multiple areas of life (Park et al., 2003;
Hoffman et al., 2006). The low levels of parental satisfaction with FQOL are
associated with lower levels of monthly household income, therefore indicating
the influence that poverty has on quality of life of families in the Republic of
Serbia.
ORIGINALITY VALUE
This study adds to the previous knowledge about impoverished families by
indicating that the relationships among family members and the environment in
which the family functions, their emotional and internal aspects of life, as well as
their physical, material and financial well-being are connected to their material
status, housing conditions and income. Additionally, family income is associated
with parenting aspect of family life.
KEY WORDS
Poverty, family, family quality of life, physical well-being, material status, Serbia
Research Interests:
The paper presents the preliminary results of research conducted in order to examine the differences in the distribution of various associated disorders in a population of children and young people with cerebral palsy. The functional... more
The paper presents the preliminary results of research conducted in order to examine the differences in the distribution of various associated disorders in a population of children and young people with cerebral palsy. The functional profile included data on the type of cerebral palsy, the level of impairment of gross motor, fine bimanual and manual abilities, the level of functional independence, intellectual disability, present sensory impairments, communication disorders and socialization. Due to the prevalence of health problems, data on the general health status and the presence of epilepsy are also included. The study included 117 participants diagnosed with cerebral palsy, 66 (56.4%) male and 51 (43.6%) female, aged from seven to 18 years, residing on the territory of the Republic of Serbia. Functional Profile was created by implementing Gross Motor Function Classification System – Expanded and Revised (GMFCS–E&R; Palisano, Rosenbaum, Bartlett, & Livingston, 2007), Manual Ability Classification System (MACS; Eliasson et al., 2006), Bimanual Fine Motor Function (BFMF; Beckung & Hagberg, 2002) and Functional Independence Measure for Children (WeeFIM; Msall et al., 1994). Other data were collected from available medical, educational or psychological documentation, and from members of the expert team, their parents or caregivers. In addition to descriptive statistics, χ2 test of independence and Mann-Whitney U-test for group comparison were applied. Statistically significant differences were confirmed in relation to the level of functional independence in the domains of self-care (p=0.029, r=0.201), cognition (p=0.000, r=0.461) and overall independence (p=0.008, r=0.244). In addition, statistically significant differences were found in the domain of communication (p=0.001, r=0.297), intellectual abillities (p=0.000, r=0.617) and socialization (p=0.000, r=0.441), but also in relation to the health problems present (p=0.010, ϕ =0.258). The results obtained indicate that the dominant disorders, as an associated ones, can be considered as indicators of multiple disabilities in children diagnosed with cerebral palsy. The results were further discussed in relation to previous and current, primarily population-based studies of the phenomenology of cerebral palsy.
Keywords: associated disorders, the diagnosis of cerebral palsy, functional profile
Keywords: associated disorders, the diagnosis of cerebral palsy, functional profile
Research Interests:
The research topic is based on the assumption of a multitude of causes of challenging behaviour in a population of children with developmental disabilities. The aim of the paper is to present preliminary results on the association between... more
The research topic is based on the assumption of a multitude of causes of challenging behaviour in a population of children with developmental disabilities. The aim of the paper is to present preliminary results on the association between challenging behaviour and certain characteristics of a child with cerebral palsy perceived from the parents’ perspective. The sample included 115 participants with cerebral palsy (65 male), 7–18 years old, from the Republic of Serbia. To collect the data, Child’s Challenging Behaviour Scale, Version 2 (CCBS; Bourke-Taylor, Law, Howie, & Pallant, 2013) was used. Communication, cognition, and social skills were rated on a six-point ordinal scale. Motor abilities profile consisted of the gross motor (Gross Motor Function Classification System – Expanded and Revised, GMFCS–E&R; Palisano, Rosenbaum, Bartlett, & Livingston, 2007), fine manual (Manual Ability Classification System – MACS; Eliasson et al., 2006) and bimanual abilities (Bimanual Fine Motor Function – BFMF; Beckung & Hagberg, 2002). Descriptive statistics and Spearman’s rank correlation coefficients were calculated. The preliminary data showed that not all variables were statistically significantly correlated. Particularly, only communication (ρ=.194, p=.038), cognition (ρ=.210, p=.024), and social skills (ρ=.426, p<.001) correlated positively with the extent of challenging behaviour exhibited by a child with cerebral palsy during daily life. The results indicated that parents perceived their child’s behavior as more challenging if communication, cognition, and social skills were assessed as more severely limited. On the other hand, parents equally perceived behavior as challenging regardless of the limitations in motor abilities. The results suggest the possibility of intervention in the field of challenging behavior by improving communication, socialization, and cognition of children with cerebral palsy.
Research Interests: Child Behavior Problems, Family Environment, Behavior Problems, Children With Cerebral Palsy, Child’s Challenging Behaviour, and 7 moreMothers of Children with Cerebral Palsy, Problemi U Ponašanju, Deca Sa Cerebralnom Paralizom, Majke Dece S Cerebralnom Paralizom, Parents of Children with Cerebral Palsy, Deca S Cerebralnom Paralizom, and Roditelji Dece S Cerebralnom Paralizom
The aim of this study was to examine differences in functional profiles of schoolchildren with cerebral palsy related to their participation in homework activities. Participation is operationalized through its frequency in the home... more
The aim of this study was to examine differences in functional profiles of schoolchildren with cerebral palsy related to their participation in homework activities. Participation is operationalized through its frequency in the home environment. The sample consisted of 105 pupils with cerebral palsy from elementary (n=90) and high school (n=15) from the territory of the Republic of Serbia. To collect the data, Home Section of the Participation and Environment Measure for Children and Youth (PEM-CY; Coster, Law, & Bedell, 2010) was used. The functional profile included gross motor, fine manual and bimanual abilities, functional independence, data on the type of cerebral palsy, mobility aids use, cognition, sensory and communication impairments, epilepsy and other types of health problems presence. Descriptive statistics, χ2 test of independence and Mann-Whitney U-test for planned group comparison were applied. The results indicated that 16 (15.8%) pupils never participated in homework activities. Statistically significant differences with moderate to strong effect size were confirmed. Compared to participants who participated in these activities, spastic quadriplegia dominated among those who had never participated (62.5% versus 25.9%, p<.05, V=0.33). A higher percentage of them used a wheelchair (87.5% versus 40.0%, p=.018, V=0.39). Pupils who never participated in homework activities had more severe limitations of gross motor (p<.001, r=.47), fine manual (p<.001, r=.43), and bimanual abilities (p=.001, r=.32). The level of their functional independence was lower (p<.001, r=.53) than in those pupils who participated in homework activities. Similar results were obtained when cognition (p=.001, r=.44) and communication (p=.001, r=.39) were examined. Results demonstrated that there was no significant difference between pupils related to epilepsy and health problems. In order to better consider the possibilities of improving active participation in homework activities, it is necessary to supplement the educational profile of pupils with the functional profile.
Research Interests:
Milićević, M. (2015). Sredinske barijere uključivanju učenika sa cerebralnom paralizom u redovno školovanje. U N. Gutvajn, M. Stančić & J. Stanišić (Ur.), Zbornik rezimea VI međunarodne naučne konferencije “Inkluzija u predškolskoj... more
Milićević, M. (2015). Sredinske barijere uključivanju učenika sa cerebralnom paralizom u redovno školovanje. U N. Gutvajn, M. Stančić & J. Stanišić (Ur.), Zbornik rezimea VI međunarodne naučne konferencije “Inkluzija u predškolskoj ustanovi i osnovnoj školi”, Sremska Mitrovica, 12. jun 2015. (str. 66, 142). Beograd: Institut za pedagoška istraživanja; Sremska Mitrovica: Visoka škola strukovnih studija za obrazovanje vaspitača – Sirmijum. ISBN 978-86-7447-124-1
Research Interests: Inclusive Education, Special Education Needs and Inclusive Practice, Special and inclusive education, Učenici S Cerebralnom Paralizom, Schoolchildren with Cerebral Palsy, and 12 moreEnvironmental Barriers, Parents’ Perspective on Iclusion, Parents’ Perspective on Inclusion, Inclusion of Children with Cerebral Palsy in Regular Schools, Improving Inclusive Education Practice, Inkluzivno Obrazovanje, Sredinske Barijere, Perspektiva Roditelja, Uključivanje Dece Sa Cerebralnom Paralizom U Redovne Škole, Unapređivanje Inkluzivne Obrazovne Prakse, Inkluzivna Praksa, and Specijalno Obrazovanje
Milićević, M., & Klić, I. (2014). Kvaliteta života djece s teškoćama u razvoju i kroničnim bolestima – Obilježja procjene iz perspektiva djece i njihovih roditelja. U A. Žic-Ralić i Z. Bukvić (Ur.), Zbornik sažetaka i radova 10. kongresa... more
Milićević, M., & Klić, I. (2014). Kvaliteta života djece s teškoćama u razvoju i kroničnim bolestima – Obilježja procjene iz perspektiva djece i njihovih roditelja. U A. Žic-Ralić i Z. Bukvić (Ur.), Zbornik sažetaka i radova 10. kongresa edukacijskih rehabilitatora s međunaronim sudjelovanjem „Poticajno okruženje za cjeloživotno učenje“, Varaždin, 24.-25. travnja 2014.; Organizator: Savez edukacijskih rehabilitatora Hrvatske (str. 22–33). Zagreb: Savez edukacijskih rehabilitatora Hrvatske. ISBN 9789539676092
Research Interests: Assessment, Quality of life, Evaluation, Literature Review, Health related Quality of Life, and 29 moreRehabilitation outcomes measurement, Self Assessment, Rehabilitation outcomes, Parental report, Self-report, Evaluacija, Parent Report, Questionnaire for Parents, Kvalitet Života U Vezi Sa Zdravljem, Upitnik Za Roditelje, Pregled Literature, Quality of Life Evaluation, Children with Developmental Disorders, Children with Developmental Disorder, Children with Developmental Disabilities, Children with Chronic Disease, Self-Reported Quality of Life, Parent Proxy-Report, Kvalitet Života, Deca S Teškoćama U Razvoju, Deca Sa Razvojnom Ometenošću, Razvojni Poremećaji, Deca S Hroničnim Bolestima, Procena, Samostalni Izveštaj O Kvalitetu Života, Ishodi Rehabilitacije, Procena Iz Perspektive Dece, Procena Iz Perspektive Roditelja, and Samoprocena
Milićević, M., Krstić, D., & Milosavljević, S. (2015). Zajednički izlasci kao porodična aktivnost dece i adolescenata sa cerebralnom paralizom. U S. Potić i S. Đorđević. (Ur.), Zbornik rezimea IV stručno-naučnog skupa sa međunarodnim... more
Milićević, M., Krstić, D., & Milosavljević, S. (2015). Zajednički izlasci kao porodična aktivnost dece i adolescenata sa cerebralnom paralizom. U S. Potić i S. Đorđević. (Ur.), Zbornik rezimea IV stručno-naučnog skupa sa međunarodnim učešćem „Aktuelnosti u edukaciji i rehabilitaciji osoba sa smetnjama u razvoju“, Beograd, 24-25. oktobar 2015. (str. 21–22). Beograd: Resursni centar za specijalnu edukaciju. ISBN: 978-86-89713-02-2
Research Interests: Cerebral Palsy, Family Environment, Physical handicapped (Cerebral Palsy), Children With Cerebral Palsy, Cerebralna Paraliza, and 11 moreDeca Sa Cerebralnom Paralizom, Porodično Okruženje, Adolescents with Cerebral Palsy, Deca S Cerebralnom Paralizom, Adolescenti S Cerebralnom Paralizom, Family Activities, Participation in Family Activities, Going on outings together, Porodične Aktivnosti, Participacija U Porodičnim Izlascima, and Zajednički Izlasci
Milićević, M., Krstić, D., & Jakovljević, D. (2014). Porodični kvalitet života dece i adolescenata sa cerebralnom paralizom. U S. Potić (Ur.), Zbornik rezimea III stručno-naučnog skupa sa međunarodnim učešćem „Aktuelnosti u edukaciji i... more
Milićević, M., Krstić, D., & Jakovljević, D. (2014). Porodični kvalitet života dece i adolescenata sa cerebralnom paralizom. U S. Potić (Ur.), Zbornik rezimea III stručno-naučnog skupa sa međunarodnim učešćem „Aktuelnosti u edukaciji i rehabilitaciji osoba sa smetnjama u razvoju“, Smederevo, 28-30. novembar 2014. (str. 23–24). Beograd: Resursni centar za specijalnu edukaciju. ISBN: 978-86-89713-01-5
Research Interests:
Milićević, M., Trgovčević, S., & Milosavljević, S. (2014). Participacija dece sa cerebralnom paralizom u kućnom okruženju – Učestalost uključivanja. U S. Potić (Ur.), Zbornik rezimea III stručno-naučnog skupa sa međunarodnim učešćem... more
Milićević, M., Trgovčević, S., & Milosavljević, S. (2014). Participacija dece sa cerebralnom paralizom u kućnom okruženju – Učestalost uključivanja. U S. Potić (Ur.), Zbornik rezimea III stručno-naučnog skupa sa međunarodnim učešćem „Aktuelnosti u edukaciji i rehabilitaciji osoba sa smetnjama u razvoju“, Smederevo, 28-30. novembar 2014. (str. 20–21). Beograd: Resursni centar za specijalnu edukaciju. ISBN: 978-86-89713-01-5
Research Interests:
Nikić, R., Pacić, S., Milićević, M., Eminović, F., Gavrilović, M. (2015). Participacija dece sa smetnjama u razvoju u zabavnim, kulturnim i umetničkim aktivnostima. U M. Petrović (Ur.), Zbornik sažetaka XVIII pedagoški forum scenskih... more
Nikić, R., Pacić, S., Milićević, M., Eminović, F., Gavrilović, M. (2015). Participacija dece sa smetnjama u razvoju u zabavnim, kulturnim i umetničkim aktivnostima. U M. Petrović (Ur.), Zbornik sažetaka XVIII pedagoški forum scenskih umetnosti "Artikulacija kao sredstvo komunikacije, interpretacije i značenja", Beograd, 11–13. decembar, 2015. (str. 75-77). Beograd: Fakultet muzičke umetnosti. ISBN 978-86-88619-64-6
Research Interests: Participation, Cerebral Palsy, Children with disabilities, Music Therapy for Children with Developmental Disabilities, Cultural activities, and 15 moreLeisure Time Activities, Children With Cerebral Palsy, Leisure Activities, Leisure and Recreational Activities, Cerebralna Paraliza, Participacija, Deca S Teškoćama U Razvoju, Deca Sa Razvojnom Ometenošću, Assessment of Life Habits, Life Habits, Kulturne Aktivnosti, Slobodne Aktivnosti, Deca Sa Smetnjama U Razvoju, Skala za procenu životnih navika, and Životne Navike
Milićević, M. (2016). Funkcionalne sposobnosti učenika s cerebralnom paralizom i njihovo učešće u aktivnostima pripreme za školu. U S. Potić (Ur.), Zbornik rezimea stručno-naučnog seminara sa međunarodnim učešćem Dani defektologa 2016“,... more
Milićević, M. (2016). Funkcionalne sposobnosti učenika s cerebralnom paralizom i njihovo učešće u aktivnostima pripreme za školu. U S. Potić (Ur.), Zbornik rezimea stručno-naučnog seminara sa međunarodnim učešćem Dani defektologa 2016“, Beograd, 11-14. februar 2016. (str. 199–200). Beograd: Društvo defektologa Srbije. ISBN: 978-86-84765-48-4
Research Interests: Participacija, Students with Cerebral Palsy, Pupils with Cerebral Palsy, Učenici S Cerebralnom Paralizom, Functional Profile, and 8 moreFunkcionalni Profil, Schoolchildren with Cerebral Palsy, Participation in Home Environment, Home Environment Participation, Participacija U Kući, Aktivnosti Pripreme Za Školu, School preparation, and Home Participation
Milićević M., & Nedović, G. (2013). Društvena prihvaćenost dece sa smetnjama u razvoju u uslovima inkluzivnog obrazovanja i vaspitanja. U N. Glumbić & V. Vučinić (Ur.), Zbornik rezimea Sedmog međunarodnog naučnog skupa „Specijalna... more
Milićević M., & Nedović, G. (2013). Društvena prihvaćenost dece sa smetnjama u razvoju u uslovima inkluzivnog obrazovanja i vaspitanja. U N. Glumbić & V. Vučinić (Ur.), Zbornik rezimea Sedmog međunarodnog naučnog skupa „Specijalna edukacija i rehabilitacija danas“, Beograd, 27 - 29. septembar 2013. (str. 113–114). Beograd: Univerzitet u Beogradu, Fakultet za specijalnu edukaciju i rehabilitaciju. ISBN: 978-86-6203-032-0
Research Interests:
Milićević, M., & Potić, S. (2011). Characteristics of social participation of children with cerebral palsy in terms of inclusive education: worldwide experiences. In N. Polovina et al. (Eds.), Abstracts of The 14th International... more
Milićević, M., & Potić, S. (2011). Characteristics of social participation of children with cerebral palsy in terms of inclusive education: worldwide experiences. In N. Polovina et al. (Eds.), Abstracts of The 14th International Scientific Conference “Educational research and educational practice – Initiative, Cooperation and Creativity in Contemporary Education”, Belgrade, November 25-26. 2011; Organizatori: Institut za pedagoška istraživanja; Privredna komora Srbije (pp. 145–146). Belgrade: Institute of Educational Research. ISBN: 978-86-7447-102-9
Research Interests: Inclusive Education, Literature Review, Factors That Effect the Effectiveness of Inclusive Education, Inclusive education, pedagogy and practice, Social Participation, and 15 moreContemporary issues in Education, Literature Reviews, Cerebralna Paraliza, Socijalna Participacija, Pregled Literature, Students with Cerebral Palsy, Pupils with Cerebral Palsy, Učenici S Cerebralnom Paralizom, Schoolchildren with Cerebral Palsy, Inkluzivno Obrazovanje, Inkluzivna Praksa, Educational research and school practice, Inkluzivno Školstvo, Savremeno Obrazovanje, and Pedagoška Istraživanja I Školska Praksa
Milićević, M., & Nedović, G. (2013). Instrumenti za procenu socijalne participacije osoba sa cerebralnom paralizom. U M. Đorđević i S. Banković. (Ur.), Zbornik rezimea II stručno-naučnog skupa sa međunarodnim učešćem „Aktuelnosti u... more
Milićević, M., & Nedović, G. (2013). Instrumenti za procenu socijalne participacije osoba sa cerebralnom paralizom. U M. Đorđević i S. Banković. (Ur.), Zbornik rezimea II stručno-naučnog skupa sa međunarodnim učešćem „Aktuelnosti u edukaciji i rehabilitaciji osoba sa smetnjama u razvoju“, Šabac, 25-27. oktobar 2013. (63). Beograd: Resursni centar za specijalnu edukaciju. ISBN: 978-86-89713-00-8
Milićević, M., & Potić, S. (2012). Ispitivanje kvaliteta života porodica osoba sa invaliditetom. U N. Dimić (Ur.), Zbornik rezimea stručno-naučnog seminara sa međunarodnim učešćem „Dani defektologa 2012“, Zlatibor, 11-14. januar 2012.... more
Milićević, M., & Potić, S. (2012). Ispitivanje kvaliteta života porodica osoba sa invaliditetom. U N. Dimić (Ur.), Zbornik rezimea stručno-naučnog seminara sa međunarodnim učešćem „Dani defektologa 2012“, Zlatibor, 11-14. januar 2012. (str. 82–83). Beograd: Društvo defektologa Srbije. ISBN: 978-86-84765-37-8
Милићевић, М., Потић, С., Недовић, Г., & Трговчевић, С. (2013). Особе са церебралном парализом у периоду транзиције у одрасло доба – Могућности и изазови адолесценције. У Н. Димић (Ур.), Зборник резимеа стручно-научног семинара са... more
Милићевић, М., Потић, С., Недовић, Г., & Трговчевић, С. (2013). Особе са церебралном парализом у периоду транзиције у одрасло доба – Могућности и изазови адолесценције. У Н. Димић (Ур.), Зборник резимеа стручно-научног семинара са међународним учешћем „Дани дефектолога 2013“, Суботица, 9-12. јануар 2013. (123). Београд: Друштво дефектолога Србије. ISBN: 978-86-84765-42-2
Krstić, D., & Milićević, M. (2012). Faktori odabira igara i igračaka za decu sa višestrukom ometenošću. U G. Nedović, S. Banković i S. Trgovčević (Ur.), Zbornik rezimea I stručno-naučnog skupa sa međunarodnim učešćem „Aktuelnosti u... more
Krstić, D., & Milićević, M. (2012). Faktori odabira igara i igračaka za decu sa višestrukom ometenošću. U G. Nedović, S. Banković i S. Trgovčević (Ur.), Zbornik rezimea I stručno-naučnog skupa sa međunarodnim učešćem „Aktuelnosti u edukaciji i rehabilitaciji osoba sa smetnjama u razvoju“, Šabac, 14-15. decembar 2012. (105). Novi Sad: Društvo defektologa Vojvodine. ISBN: 978-86-913605-3-5
Introduction Teaching physical education in inclusive terms raises a number of challenges that, among others, include the adaptability and availability of resources and equipment, the dynamics and organization of class, as well as the... more
Introduction
Teaching physical education in inclusive terms raises a number of challenges that, among others, include
the adaptability and availability of resources and equipment, the dynamics and organization of class, as
well as the very nature of physical activity. Th e aim of this paper is to systematize the knowledge about participation
of pupils with physical disabilities in regular physical education classes by reviewing of scientifi c
and professional literature.
Method
Th e available literature search was limited to peer-reviewed articles published in English or Serbian in
scholarly journals from 2000 to 2013. A total of 34 studies was collected and reviewed, of which 11 have
provided answers with their results to the research questions on the involvement and infl uence of inclusive
physical education classes on pupils with physical disabilities and their typically developed peers.
Results and discussion
Accessibility of physical resources (facilities, equipment), type of physical activity, and individual functional
abilities of pupils with physical disabilities, including behavioral diffi culties are identifi ed as the key
factors. Moreover, problems of peer victimization, and emphasized negative peer perceptions of skills
and capabilities of children with motor disorders, are found. Participation level is determined by location
of physical education classes, and prerequisites that certain areas of physical activities, by their nature,
are imposing, and this level is higher in individual than in team sports. As important aspects of inclusive
education, pupils with physical disabilities pointed to opportunities for achieving of friendships, gaining
of knowledge and experiences within a social context, improving of functional status and self-confi dence,
sense of solidarity and belonging to a group, in addition to satisfaction with the inclusion itself. Positive
changes in behavior and attitudes of pupils with typical development towards pupils with physical disabilities
are noted (fear overcoming, acceptance of diff erences, developing empathy, more understanding of the
needs of others).
Conclusion
Th e distinctive nature of the context and content of physical education classes strongly determine the
extent to which pupils can participate in planned activities. Th e results are encouraging considering that,
with adequate support services and respecting of their wishes and preferences, pupils with physical disabilities
can be included in regular physical education.
Key words: inclusion, motor disorders, pupils with developmental disabilities, physical education
Teaching physical education in inclusive terms raises a number of challenges that, among others, include
the adaptability and availability of resources and equipment, the dynamics and organization of class, as
well as the very nature of physical activity. Th e aim of this paper is to systematize the knowledge about participation
of pupils with physical disabilities in regular physical education classes by reviewing of scientifi c
and professional literature.
Method
Th e available literature search was limited to peer-reviewed articles published in English or Serbian in
scholarly journals from 2000 to 2013. A total of 34 studies was collected and reviewed, of which 11 have
provided answers with their results to the research questions on the involvement and infl uence of inclusive
physical education classes on pupils with physical disabilities and their typically developed peers.
Results and discussion
Accessibility of physical resources (facilities, equipment), type of physical activity, and individual functional
abilities of pupils with physical disabilities, including behavioral diffi culties are identifi ed as the key
factors. Moreover, problems of peer victimization, and emphasized negative peer perceptions of skills
and capabilities of children with motor disorders, are found. Participation level is determined by location
of physical education classes, and prerequisites that certain areas of physical activities, by their nature,
are imposing, and this level is higher in individual than in team sports. As important aspects of inclusive
education, pupils with physical disabilities pointed to opportunities for achieving of friendships, gaining
of knowledge and experiences within a social context, improving of functional status and self-confi dence,
sense of solidarity and belonging to a group, in addition to satisfaction with the inclusion itself. Positive
changes in behavior and attitudes of pupils with typical development towards pupils with physical disabilities
are noted (fear overcoming, acceptance of diff erences, developing empathy, more understanding of the
needs of others).
Conclusion
Th e distinctive nature of the context and content of physical education classes strongly determine the
extent to which pupils can participate in planned activities. Th e results are encouraging considering that,
with adequate support services and respecting of their wishes and preferences, pupils with physical disabilities
can be included in regular physical education.
Key words: inclusion, motor disorders, pupils with developmental disabilities, physical education
Milićević, M., Potić, S., Dutina, S. & Pacić, S. (2012). Psihološke teškoće osoba sa cerebralnom paralizom u odraslom dobu. U G. Nedović, S. Banković i S. Trgovčević (Ur.), Zbornik rezimea I stručno-naučnog skupa sa međunarodnim učešćem... more
Milićević, M., Potić, S., Dutina, S. & Pacić, S. (2012). Psihološke teškoće osoba sa cerebralnom paralizom u odraslom dobu. U G. Nedović, S. Banković i S. Trgovčević (Ur.), Zbornik rezimea I stručno-naučnog skupa sa međunarodnim učešćem „Aktuelnosti u edukaciji i rehabilitaciji osoba sa smetnjama u razvoju“, Šabac, 14-15. decembar 2012. (137). Novi Sad: Društvo defektologa Vojvodine. ISBN: 978-86-913605-3-5
Milićević, M., Potić, S., & Trgovčević, S. (2011). Socijalna participacija dece sa cerebralnom paralizom u porodičnom i vršnjačkom okruženju. U S. Potić i sar. (Ur.), Zbornik radova Prvog međunarodnog skupa studenata specijalne edukacije... more
Milićević, M., Potić, S., & Trgovčević, S. (2011). Socijalna participacija dece sa cerebralnom paralizom u porodičnom i vršnjačkom okruženju. U S. Potić i sar. (Ur.), Zbornik radova Prvog međunarodnog skupa studenata specijalne edukacije i rehabilitacije „Specijalna edukacija i rehabilitacija“, Beograd, 15-18. 04. 2011. (str. 44–52). Beograd: Univerzitet u Beogradu, Fakultet za specijalnu edukaciju i rehabilitaciju. ISBN: 978-86-6203-012-2
Potić, S., Milićević, M., & Šćepanović, M. (2012). Barijere i teškoće pri zapošljavanju osoba sa invaliditetom. U G. Nedović, S. Banković i S. Trgovčević (Ur.), Zbornik rezimea I stručno-naučnog skupa sa međunarodnim učešćem „Aktuelnosti... more
Potić, S., Milićević, M., & Šćepanović, M. (2012). Barijere i teškoće pri zapošljavanju osoba sa invaliditetom. U G. Nedović, S. Banković i S. Trgovčević (Ur.), Zbornik rezimea I stručno-naučnog skupa sa međunarodnim učešćem „Aktuelnosti u edukaciji i rehabilitaciji osoba sa smetnjama u razvoju“, Šabac, 14-15. decembar 2012. (145). Novi Sad: Društvo defektologa Vojvodine. ISBN: 978-86-913605-3-5
Trgovčević, S., Milićević, M., & Vidanović, V. (2013). Socijalna podrška odraslih osoba sa povredom kičmene moždine. U M. Đorđević i S. Banković. (Ur.), Zbornik rezimea II stručno-naučnog skupa sa međunarodnim učešćem „Aktuelnosti u... more
Trgovčević, S., Milićević, M., & Vidanović, V. (2013). Socijalna podrška odraslih osoba sa povredom kičmene moždine. U M. Đorđević i S. Banković. (Ur.), Zbornik rezimea II stručno-naučnog skupa sa međunarodnim učešćem „Aktuelnosti u edukaciji i rehabilitaciji osoba sa smetnjama u razvoju“, Šabac, 25-27. oktobar 2013. (85). Beograd: Resursni centar za specijalnu edukaciju. ISBN: 978-86-89713-00-8
Потић, С., Милићевић, М., & Недовић, Г. (2012). Кондуктивна едукација деце са моторичким поремећајима. У В. Милин & М. Марушић (Ур.), Зборник резимеа III научне конференције са међународним учешћем „Инклузија у предшколској установи и... more
Потић, С., Милићевић, М., & Недовић, Г. (2012). Кондуктивна едукација деце са моторичким поремећајима. У В. Милин & М. Марушић (Ур.), Зборник резимеа III научне конференције са међународним учешћем „Инклузија у предшколској установи и основној школи: квалитет, праведност и доступност образовања“, 15. јун 2012., Сремска Митровица (стр. 77–78). Београд: Институт за педагошка истраживања; Сремска Митровица: Висока школа струковних студија за образовање васпитача. ISBN: 978-86-7447-104-3
Milićević, M., Potić, S., & Klić, I. (2014). Assessment of motor functioning in children after acquired traumatic brain injury. In H. Omrčen & L. Fotak (Eds.), Abstract Book of 4th Student Congress of Neuroscience “Neuri 2014“,... more
Milićević, M., Potić, S., & Klić, I. (2014). Assessment of motor functioning in children after acquired traumatic brain injury. In H. Omrčen & L. Fotak (Eds.), Abstract Book of 4th Student Congress of Neuroscience “Neuri 2014“, Rijeka/Rab, April 25th-27, 2014.; Organized by: FOOS MedRi; University of Rijeka, Faculty of Medicine; Rab Psychiatric Hospital. (92). Rijeka: FOOS MedRi. ISBN: 978-953-7957-19-3
Nedović, G., Potić, S., Milićević, M., & Banković, S. (2012). The relation between the sensory information and motor behavior in special education and rehabilitation of people with disabilities. U Dž. Husremović i sur. (Ur.), Knjiga... more
Nedović, G., Potić, S., Milićević, M., & Banković, S. (2012). The relation between the sensory information and motor behavior in special education and rehabilitation of people with disabilities. U Dž. Husremović i sur. (Ur.), Knjiga sažetaka naučno-stručnog skupa „Drugi sarajevski dani psihologije“, Sarajevo, BIH, 20-21. april/travanj 2012.; Organizatori: Univerzitet u Sarajevu, Filozofski fakultet, Odsjek za psihologiju (55). Sarajevo: Filozofski fakultet.
Milićević, M., & Potić, S. (2012). The effect of early motor stimulation on speech development in children with risk factors. In V. Borota & N. Milošević (Eds.), Abstract Book of The First Symposium of Logopedists from Serbia “Prevention,... more
Milićević, M., & Potić, S. (2012). The effect of early motor stimulation on speech development in children with risk factors. In V. Borota & N. Milošević (Eds.), Abstract Book of The First Symposium of Logopedists from Serbia “Prevention, diagnosis and treatment of speech-language disorders“, Divcibare, May, 12-13. 2012.; Organized by Association Logopedists from Serbia (pp. 88–89). Belgrade: Association of Logopedists of Serbia. ISBN: 978-86-915577-0-6
Трговчевић, С., Недовић, Г., & Милићевић, М. (2013). Процена утицаја социјалне подршке на квалитет живота старих особа са параплегијом. У Н. Димић (Ур.), Зборник резимеа стручно-научног семинара са међународним учешћем Дани дефектолога... more
Трговчевић, С., Недовић, Г., & Милићевић, М. (2013). Процена утицаја социјалне подршке на квалитет живота старих особа са параплегијом. У Н. Димић (Ур.), Зборник резимеа стручно-научног семинара са међународним учешћем Дани дефектолога 2013“, Суботица, 9-12. јануар 2013. (122). Београд: Друштво дефектолога Србије. ISBN: 978-86-84765-42-2
Потић, С., & Милићевић, М. (2012). Процена дисфункције у сензорној интеграцији код особа са инвалидитетом. У Н. Димић (Ур.), Зборник резимеа стручно-научног семинара са међународним учешћем „Дани дефектолога 2012“, Златибор, 11-14. јануар... more
Потић, С., & Милићевић, М. (2012). Процена дисфункције у сензорној интеграцији код особа са инвалидитетом. У Н. Димић (Ур.), Зборник резимеа стручно-научног семинара са међународним учешћем „Дани дефектолога 2012“, Златибор, 11-14. јануар 2012. (стр. 83–84). Београд: Друштво дефектолога Србије. ISBN: 978-86-84765-37-8
Потић, С., Милићевић, М., Еминовић, Ф., Пацић, С., & Павловић, А. (2012). Соматопедска секција на Данима дефектолога у периоду од 2001. до 2011. године. У Н. Димић (Ур.), Зборник резимеа стручно-научног семинара са међународним учешћем... more
Потић, С., Милићевић, М., Еминовић, Ф., Пацић, С., & Павловић, А. (2012). Соматопедска секција на Данима дефектолога у периоду од 2001. до 2011. године. У Н. Димић (Ур.), Зборник резимеа стручно-научног семинара са међународним учешћем „Дани дефектолога 2012“, Златибор, 11-14. јануар 2012. (стр. 80–81). Београд: Друштво дефектолога Србије. ISBN: 978-86-84765-37-8
Milićević, M., Pacić, S., & Krstić, S. (2013). Pupils with physical disabilities in an inclusive physical education. In A. Nedeljkovic (Ed.), Book of Abstracts of International Scientific Conference “Effects of Physical Activity... more
Milićević, M., Pacić, S., & Krstić, S. (2013). Pupils with physical disabilities in an inclusive physical education. In A. Nedeljkovic (Ed.), Book of Abstracts of International Scientific Conference “Effects of Physical Activity Application to Anthropological Status with Children, Youth and Adults”, Belgrade, December 11-12, 2013 (pp. 186–187). Belgrade: University of Belgrade, Faculty of Sport and Physical Education. ISBN: 978-86-80255-98-9 (http://www.fsfvconference.rs/documents/book_of_abstracts_131221.pdf#page=188)
Milićević, M., & Klić, I. (2014). The nature of Developmental Coordination Disorder – Theoretical considerations. In H. Omrčen & L. Fotak (Eds.), Abstract Book of 4th Student Congress of Neuroscience “Neuri 2014“, Rijeka/Rab, April... more
Milićević, M., & Klić, I. (2014). The nature of Developmental Coordination Disorder – Theoretical considerations. In H. Omrčen & L. Fotak (Eds.), Abstract Book of 4th Student Congress of Neuroscience “Neuri 2014“, Rijeka/Rab, April 25th-27, 2014.; Organized by: FOOS MedRi; University of Rijeka, Faculty of Medicine; Rab Psychiatric Hospital. (93). Rijeka: FOOS MedRi. ISBN: 978-953-7957-19-3
Eminović, F., Pacić, S., Nikić, R., Slavković, S. & Milićević, M. (2012). Attitudes of parents of multiple handicapped children toward the process of deinstitutionalization [Meeting abstract]. Abstracts from the 10th Alps Adria Psychology... more
Eminović, F., Pacić, S., Nikić, R., Slavković, S. & Milićević, M. (2012). Attitudes of parents of multiple handicapped children toward the process of deinstitutionalization [Meeting abstract]. Abstracts from the 10th Alps Adria Psychology Conference – September 27th-29th 2012, Lignano Sabbiadoro, Italy. Review of Psychology, 19(1), 48. ISSN 1330-6812 (Print); ISSN 1849-0905 (Online).
Deinstitutionalization and dehospitalization are models
of operational principles of normalization, individualization,
and integration, a means to encourage building lasting
relationships in the family (biological or foster). The
attitude to overprotect children with disability can threaten
family functioning and their independence. To analyze and
to assess attitudes about the process of deinstitutionalization
we designed a questionnaire. The study included 34
families from the territory of the Republic of Serbia with
a child/children with multiple disabilities hospitalized in
a home for children and youth in Veternik. The results of
the research indicate that a very high percentage (85.3%)
of parents surveyed do not consider the return of children
and youth with disabilities a better solution. The 79.4% of
the parents/guardians believe that the return of the child to
the family can disturb family functioning. From the analysis
of our results and an analysis of the pertinent literature we
can conclude that families with disabled children are quite
worn and there is great fear and resistance to the process of
deinstitutionalization.
Deinstitutionalization and dehospitalization are models
of operational principles of normalization, individualization,
and integration, a means to encourage building lasting
relationships in the family (biological or foster). The
attitude to overprotect children with disability can threaten
family functioning and their independence. To analyze and
to assess attitudes about the process of deinstitutionalization
we designed a questionnaire. The study included 34
families from the territory of the Republic of Serbia with
a child/children with multiple disabilities hospitalized in
a home for children and youth in Veternik. The results of
the research indicate that a very high percentage (85.3%)
of parents surveyed do not consider the return of children
and youth with disabilities a better solution. The 79.4% of
the parents/guardians believe that the return of the child to
the family can disturb family functioning. From the analysis
of our results and an analysis of the pertinent literature we
can conclude that families with disabled children are quite
worn and there is great fear and resistance to the process of
deinstitutionalization.
Potić, S., Milićević, M., Zulić, M., Pacić, S., & Ivanović, L. (2011). Obeležja partnerstva između roditelja i nastavnika razredne nastave u procesu školovanja dece sa cerebralnom paralizom. U A. Komadina i sur. (Ur.), Zbornik sažetaka... more
Potić, S., Milićević, M., Zulić, M., Pacić, S., & Ivanović, L. (2011). Obeležja partnerstva između roditelja i nastavnika razredne nastave u procesu školovanja dece sa cerebralnom paralizom. U A. Komadina i sur. (Ur.), Zbornik sažetaka znanstveno-stručnog simpozija sa međunarodnim sudjelovanjem „Modeli rada s osobama s invaliditetom“, Mostar, BiH, 14-15. 10. 2011. (str. 91–92). Mostar: Caritas Biskupija Mostar-Duvno i Trebinje-Mrkan; Rehabilitacijsko-edukacijski centar za osobe s posebnim potrebama „Sveta obitelj“.
Potić, S., Milićević, M., & Nedović, G. (2012). Teachers' attitudes towards inclusive education: a literature review. U Dž. Husremović i sur. (Ur.), Knjiga sažetaka naučno-stručnog skupa „Drugi sarajevski dani psihologije“, Sarajevo, BIH,... more
Potić, S., Milićević, M., & Nedović, G. (2012). Teachers' attitudes towards inclusive education: a literature review. U Dž. Husremović i sur. (Ur.), Knjiga sažetaka naučno-stručnog skupa „Drugi sarajevski dani psihologije“, Sarajevo, BIH, 20-21. april/travanj 2012.; Organizatori: Univerzitet u Sarajevu, Filozofski fakultet, Odsjek za psihologiju (4). Sarajevo: Filozofski fakultet.
Potic, S., Milicevic, M., Ilic, S., Pavlovic, A., Mastilo, B & Zecevic, I. (2012). Preschool Education Of Children With Cerebral Palsy In The Republic Of Serbia. In M. Kulic & S. Potic (Eds.), Book of Proceedings and Summaries of II... more
Potic, S., Milicevic, M., Ilic, S., Pavlovic, A., Mastilo, B & Zecevic, I. (2012). Preschool Education Of Children With Cerebral Palsy In The Republic Of Serbia. In M. Kulic & S. Potic (Eds.), Book of Proceedings and Summaries of II International Scientific Conference „Special Education and Rehabilitation – Cerebral Palsy“, Novi Sad, October, 25-28. 2012; Organizers: University of Belgrade – Faculty of Special Education and Rehabilitation, Department of Special Education and Rehabilitation of Persons with Motor Disorders et al. (67). Belgrade: Society of Special Educators and Rehabilitators of Serbia. ISBN: 978-86-84765-40-8.
Potic, S., Milicevic, M., Stantic, S., Eminovic, F., & Pacic, S. (2011). The ability to perform transitive movements in the students with dual diagnosis as a determinant of participation in the physical education class. In S.... more
Potic, S., Milicevic, M., Stantic, S., Eminovic, F., & Pacic, S. (2011). The ability to perform transitive movements in the students with dual diagnosis as a determinant of participation in the physical education class. In S. Radisavljevic Janic et al. (Eds.), Book of Abstracts of International Scientific Conference “Effects of Physical Activity Application to Anthropological Status with Children, Youth and Adults”, Belgrade, December 10-11. 2011, (pp. 98–99). Belgrade: University of Belgrade, Faculty of Sport and Physical Education. ISBN: 978-86-80255-83-5
Потић, С., Меденица, В., & Милићевић, М. (2010). Дефектолошка процена као основ индивидуалног дефектолошког третмана. У Д. Рапаић (Ур.), Зборник резимеа стручно-научног скупа са међународним учешћем “5. сусрети наставника обавезних... more
Потић, С., Меденица, В., & Милићевић, М. (2010). Дефектолошка процена као основ индивидуалног дефектолошког третмана. У Д. Рапаић (Ур.), Зборник резимеа стручно-научног скупа са међународним учешћем “5. сусрети наставника обавезних ваннаставних индивидуалних активности”, Сомбор, 21. - 23. 05. 2010. (стр. 49–51). Нови Сад: Друштво дефектолога Војводине. ISBN: 978-86-913605-0-4
Потић, С., Меденица, В., & Милићевић, М. (2010). Превентивно-корективни рад са вишеструко ометеном децом. У Д. Рапаић (Ур.), Зборник резимеа стручно-научног скупа са међународним учешћем “5. сусрети наставника обавезних ваннаставних... more
Потић, С., Меденица, В., & Милићевић, М. (2010). Превентивно-корективни рад са вишеструко ометеном децом. У Д. Рапаић (Ур.), Зборник резимеа стручно-научног скупа са међународним учешћем “5. сусрети наставника обавезних ваннаставних индивидуалних активности”, Сомбор, 21. - 23. 05. 2010. (стр. 29–31). Нови Сад: Друштво дефектолога Војводине. ISBN: 978-86-913605-0-4
Циљ истраживања је био да се утврде карактеристике партиципације деце с церебралном парализом у кућном окружењу, окружењу заједнице и породичним активностима, као и да се испита на који начин је ова партиципација условљена одређеним... more
Циљ истраживања је био да се утврде карактеристике партиципације деце с церебралном парализом у кућном окружењу, окружењу заједнице и породичним активностима, као и да се испита на који начин је ова партиципација условљена одређеним срединским факторима и повезана са породичним квалитетом живота. Анализиране су објективна и субјективна димензија партиципације у кући и у заједници, као и фреквентност породичних активности, присуство испитаника и степен њихове укључености у активности. Затим, утврђен је степен родитељског задовољства одређеним аспектима породичног живота, испитана структура срединских фактора и степен у коме су услуге сервиса опажене као усмерене на породицу. Досадашња емпиријска и теоријска разматрања партиципације деце с церебралном парализом нису узимала у обзир квалитет породичног живота као потенцијални фактор са утицајем на њихову партиципацију у различитим окружењима, а није довољно испитано ни да ли усмереност подршке сервиса на породицу може да буде повезана са родитељским задовољством партиципацијом оствареном у појединим окружењима.
Истраживање које чини емпиријску основу овог рада је осмишљено и спроведено као неекспериментално, дескриптивно, експлоративно, фундаментално, трансверзално и компаративно. Узорком је обухваћено 110 испитаника с церебралном парализом и 134 испитаника типичног развоја старости између седам и 18 година, без статистичке значајности разлика у односу на узраст и пол испитаника.
Укупна партиципација испитаника с церебралном парализом у кући и у заједници је нижа у поређењу са партиципацијом испитаника типичног развоја. Испитаници с церебралном парализом партиципирају у мањем броју активности, мање фреквентно и укључују се у мањем степену. Разлике су евидентне и на нивоу појединачних домена активности. Обрасци партиципације у кући и заједници су упоредиви између група. Заједничко им је то да су разлике у фреквентности ипак мање него разлике у разноврсности и у степену укључености, Међутим, много више испитаника с церебралном парализом одсуствује у заједници, а када су присутни, минимално су укључени. Потврђено је да податак о фреквентности јављања појединих типова активности у кући и у заједници, изоловано посматран, може да створи привид о потпуној или приближно потпуној укључености деце и адолесцената с церебралном парализом у животне ситуације. Родитељи испитаника с церебралном парализом су мање задовољни партиципацијом у поређењу са родитељима испитаника типичног развоја и у већој мери изражавају жељу за променом уколико је партиципација у кући мање разноврсна, када је партиципација у заједници мање фреквентна или када је нижи степен укључености њихове деце и у кући и у заједници. Закључено је да присуство церебралне парализе у већој мери доводи до промена у објективној (разноврсност, фреквентност, степен укључености) него у субјективној димензији партиципације у кућном окружењу (жеља за променом). У заједници, пак, једино је фреквентност имала подједнаке предиктивне могућности у групама испитаника.
Кад је реч о породичним активностима, чланови породице испитаника типичног развоја чешће заједно излазе, одлазе на одмор или викенд и баве се организованим активностима, заједничким активностима у затвореном или на отвореном него чланови породице испитаника с церебралном парализом. Испитаници с церебралном парализом су се укључивали у мањи број породичних активности (припремање оброка, рутински послови, активности на отвореном). Кључне разлике су нађене у степену укључености који је нижи код испитаника с церебралном парализом у свим доменима него код испитаника типичног развоја.
Анализирајући однос између усмерености услуга на породицу и родитељског задовољства партиципацијом, нађено је да се родитељска перцепција искуства и стручне подршке одражава на њихову перцепцију партиципације свог детета с церебралном парализом у активностима у кући. У окружењу заједнице, није потврђено да са променама обима у којем су родитељи проценили услуге сервиса као усмерене на породицу долази до промена броја активности у којима су изразили жељу за променом. Налаз је објашњен доминантном усмереношћу услуга и стручне подршке на индивидуална, функционална достигнућа испитаника с церебралном парализом и консеквентним изостајањем ефеката у социјалном контексту. Иако налаз одступа од претпостављеног, његов значај не изостаје јер је указано на могућу недовољну заступљеност концепта партиципације у планирању услуга и евалуацији исхода примењених програма.
У кућном окружењу испитаника с церебралном парализом, као и у окружењу заједнице, потврђено је више баријера и мање фацилитатора, затим да је окружење мање подржавајуће, средински фактори збирно мање олакшавајући, а ресурси у мањем проценту доступни и/или адекватни. Најјаче баријере су потицале од физичких и когнитивних захтева типичних активности у кући и заједници и од физичког изгледа просторије и распореда намештаја и слободног простора у дому, то јест унутар и изван зграда. Као супортивни фактори, издвојени су социјални захтеви активности и однос детета са члановима породице, док су срединске структуре окружења заједнице остале уједначене према овом критеријуму. Сваки део срединских структура има независан и јединствен допринос у објашњавању статистичких разлика између група. Као најјачи предиктори издвојени су број баријера у кућном окружењу и индикатори помоћи и подршке и доступности и/или адекватности ресурса у заједници.
На основу анализе односа породичног квалитета живота и партиципације, закључено је да се један део промена које захватају живот породица детета с церебралном парализом може уочити у различитим аспектима повезаности партиципације детета у кући, заједници и породичним активностима, с једне стране и квалитета породичног живота, с друге стране.
Налази овог истраживања говоре у прилог мултидимензионалног концепта партиципације и пружају детаљнији увид у природу партиципације. Поред тога, показују да присуство церебралне парализе, као вишеструке ометености, доводи до промена у партиципацији деце и адолесцената из ове популације и родитељској перцепцији срединског окружења, а такође потврђују да су промене обрасца партиципације повезане са квалитетом живота породице.
Кључне речи: партиципација, укљученост, церебрална парализа, породица, породичне активности, услуге усмерене на породицу, породични квалитет живота, баријере, фацилитатори
Научна област: Специјална едукација и рехабилитација (Дефектологија)
Ужа научна област: Специјална едукација и рехабилитација особа са моторичким поремећајима (Соматопедија)
Истраживање које чини емпиријску основу овог рада је осмишљено и спроведено као неекспериментално, дескриптивно, експлоративно, фундаментално, трансверзално и компаративно. Узорком је обухваћено 110 испитаника с церебралном парализом и 134 испитаника типичног развоја старости између седам и 18 година, без статистичке значајности разлика у односу на узраст и пол испитаника.
Укупна партиципација испитаника с церебралном парализом у кући и у заједници је нижа у поређењу са партиципацијом испитаника типичног развоја. Испитаници с церебралном парализом партиципирају у мањем броју активности, мање фреквентно и укључују се у мањем степену. Разлике су евидентне и на нивоу појединачних домена активности. Обрасци партиципације у кући и заједници су упоредиви између група. Заједничко им је то да су разлике у фреквентности ипак мање него разлике у разноврсности и у степену укључености, Међутим, много више испитаника с церебралном парализом одсуствује у заједници, а када су присутни, минимално су укључени. Потврђено је да податак о фреквентности јављања појединих типова активности у кући и у заједници, изоловано посматран, може да створи привид о потпуној или приближно потпуној укључености деце и адолесцената с церебралном парализом у животне ситуације. Родитељи испитаника с церебралном парализом су мање задовољни партиципацијом у поређењу са родитељима испитаника типичног развоја и у већој мери изражавају жељу за променом уколико је партиципација у кући мање разноврсна, када је партиципација у заједници мање фреквентна или када је нижи степен укључености њихове деце и у кући и у заједници. Закључено је да присуство церебралне парализе у већој мери доводи до промена у објективној (разноврсност, фреквентност, степен укључености) него у субјективној димензији партиципације у кућном окружењу (жеља за променом). У заједници, пак, једино је фреквентност имала подједнаке предиктивне могућности у групама испитаника.
Кад је реч о породичним активностима, чланови породице испитаника типичног развоја чешће заједно излазе, одлазе на одмор или викенд и баве се организованим активностима, заједничким активностима у затвореном или на отвореном него чланови породице испитаника с церебралном парализом. Испитаници с церебралном парализом су се укључивали у мањи број породичних активности (припремање оброка, рутински послови, активности на отвореном). Кључне разлике су нађене у степену укључености који је нижи код испитаника с церебралном парализом у свим доменима него код испитаника типичног развоја.
Анализирајући однос између усмерености услуга на породицу и родитељског задовољства партиципацијом, нађено је да се родитељска перцепција искуства и стручне подршке одражава на њихову перцепцију партиципације свог детета с церебралном парализом у активностима у кући. У окружењу заједнице, није потврђено да са променама обима у којем су родитељи проценили услуге сервиса као усмерене на породицу долази до промена броја активности у којима су изразили жељу за променом. Налаз је објашњен доминантном усмереношћу услуга и стручне подршке на индивидуална, функционална достигнућа испитаника с церебралном парализом и консеквентним изостајањем ефеката у социјалном контексту. Иако налаз одступа од претпостављеног, његов значај не изостаје јер је указано на могућу недовољну заступљеност концепта партиципације у планирању услуга и евалуацији исхода примењених програма.
У кућном окружењу испитаника с церебралном парализом, као и у окружењу заједнице, потврђено је више баријера и мање фацилитатора, затим да је окружење мање подржавајуће, средински фактори збирно мање олакшавајући, а ресурси у мањем проценту доступни и/или адекватни. Најјаче баријере су потицале од физичких и когнитивних захтева типичних активности у кући и заједници и од физичког изгледа просторије и распореда намештаја и слободног простора у дому, то јест унутар и изван зграда. Као супортивни фактори, издвојени су социјални захтеви активности и однос детета са члановима породице, док су срединске структуре окружења заједнице остале уједначене према овом критеријуму. Сваки део срединских структура има независан и јединствен допринос у објашњавању статистичких разлика између група. Као најјачи предиктори издвојени су број баријера у кућном окружењу и индикатори помоћи и подршке и доступности и/или адекватности ресурса у заједници.
На основу анализе односа породичног квалитета живота и партиципације, закључено је да се један део промена које захватају живот породица детета с церебралном парализом може уочити у различитим аспектима повезаности партиципације детета у кући, заједници и породичним активностима, с једне стране и квалитета породичног живота, с друге стране.
Налази овог истраживања говоре у прилог мултидимензионалног концепта партиципације и пружају детаљнији увид у природу партиципације. Поред тога, показују да присуство церебралне парализе, као вишеструке ометености, доводи до промена у партиципацији деце и адолесцената из ове популације и родитељској перцепцији срединског окружења, а такође потврђују да су промене обрасца партиципације повезане са квалитетом живота породице.
Кључне речи: партиципација, укљученост, церебрална парализа, породица, породичне активности, услуге усмерене на породицу, породични квалитет живота, баријере, фацилитатори
Научна област: Специјална едукација и рехабилитација (Дефектологија)
Ужа научна област: Специјална едукација и рехабилитација особа са моторичким поремећајима (Соматопедија)